Damn it! They have not beaten you Liz. It may be delayed but damn it it will happen. Now you just cut that "I am beaten" crap out. Yes it sucks if they put you off but you do not give up! Not the Liz that I know. You have fought too hard to let it go so easily. It SUCKS It really sucks but it is not over. Sure take some time, be upset. then figure out how you are going to get this thing done.  There has to be some way you can work this problem out. I am going to pester you until you do.

Love and Hugs,
  Laurie

It is so humbling to come back here and see the level of support you are all showing me. Thank you Jess, Veronika, Jayne, Meagan, Laurie. Thank each and every one of you for taking the time to support me.


Its about 6pm in Melbourne and I have not heard anything today. I just wanted to say that the issue I am having over my surgery has nothing to do with Mr Ives or the Ladies who work in his office. Those women have been fantastic...I have nothing but good things to say. They have been working really hard on this issue since Friday for me and I trust that they would have rung me if the whole idea of surgery before Xmass was dead in the water...they haven't called and I bet they don't want to give me bad news if there is till a chance of good news....they believe their is a chance they can make this all work....I am trying to be as positive 

Liz

My fingers are crossed for you Liz!

Quote from: LizK on October 16, 2018, 02:07:48 AM
I just wanted to say that the issue I am having over my surgery has nothing to do with Mr Ives or the Ladies who work in his office. Those women have been fantastic...I have nothing but good things to say. They have been working really hard on this issue since Friday for me and I trust that they would have rung me if the whole idea of surgery before Xmass was dead in the water...they haven't called and I bet they don't want to give me bad news if there is till a chance of good news....they believe their is a chance they can make this all work....I am trying to be as positive 

Liz, I have everything crossed for you to get this done before Christmas. Keep staying positive girl. I and everyone else here will stay positive with you to keep your spirits up.

As for the reception staff at Mr Ives office, I spoke with two different ladies there this morning and one of them I also spoke with last week. Each time I found them to be very helpful and a pleasure to deal with. From those few brief encounters I had, I have no doubt that they would be doing everything they can to secure the earliest possible date for your surgery.

Hang in there, you will get through this.

Big hugs,
Jayne

Liz, you know that I've sent my support via email. I felt that I should give voice on here as well. Your past proves that you have the strength to see this through. If at any time you feel differently, you have a large support group to lean on ... use it. I'm not a crutch but I don't mind being a cane.

Faith

Stay positive!  We're all pulling for you.
Judi

So ends Day 5 Since I was told my surgery was going to be postponed ...Its now about 6pm in Melbourne so I won't be getting a call tonight either. Tomorrow marks a week since they rang and asked if I could admit a day earlier and I went through the paperwork with them. Everything is all good. Only to be rung the following day to say nope its not all okay. As it went 9am in Melbourne today I became acutely nervous and agitated with my blood pressure ..I immediately commenced a few minutes of deep breathing, flipped on Utube...found something funny to watch trying to clear my mind, eventually succumbing to the stupidity that is rampant in Utube content. 30 minutes later was much calmer. But this has been happening constantly over the last 5 days and sometime I feel much worse than I did this morning and my  BP that I took was horrible this morning when that was happening. So I hope it stops soon

I am no further ahead....question is that good or bad?
My take on a possible Answer: if they haven't called and said its off then its not off for the 28th. My guess is they are waiting on a final confirmation of something before letting me know either a new date or New Hospital details. Tomorrow at some point they will call to discuss the final arrangements.....but who knows really when it will be I sure don't.


Liz

BIG HUG Liz!!!

I'm thinking of you while you wait anxiously for an answer.

More hugs!
Jayne

Quote from: LizK on October 17, 2018, 02:11:20 AM
So ends Day 5 Since I was told my surgery was going to be postponed ...Its now about 6pm in Melbourne so I won't be getting a call tonight either. Tomorrow marks a week since they rang and asked if I could admit a day earlier and I went through the paperwork with them. Everything is all good. Only to be rung the following day to say nope its not all okay. As it went 9am in Melbourne today I became acutely nervous and agitated with my blood pressure ..I immediately commenced a few minutes of deep breathing, flipped on Utube...found something funny to watch trying to clear my mind, eventually succumbing to the stupidity that is rampant in Utube content. 30 minutes later was much calmer. But this has been happening constantly over the last 5 days and sometime I feel much worse than I did this morning and my  BP that I took was horrible this morning when that was happening. So I hope it stops soon

I am no further ahead....question is that good or bad?
My take on a possible Answer: if they haven't called and said its off then its not off for the 28th. My guess is they are waiting on a final confirmation of something before letting me know either a new date or New Hospital details. Tomorrow at some point they will call to discuss the final arrangements.....but who knows really when it will be I sure don't.


Liz

bugger, makes me wish i still had my old place with a granny flat and all to help others. had big plans to separate it and let others just use it. it had its own parking spot and everything, didnt even need to walk down the side of the house.. i curse my small place now, that is my nature and one i struggle to control helping others no matter what... gotten expensive in the past.. meh i say sometimes

liz, the worst case is its postponed till next year. i sure hope it doesnt get postponed for you at all. all i have to offer is my support and zen huggs.

I am sending positive thoughts your way. I hope you realize your dreams soon.

Hi Liz,

  So you are hanging out in Melbourne waiting to hear what they have to say and there's been no word yet? Damn that sucks. I'm afraid I would be bugging them to tell me something. Waiting can be so painful when so much hangs in the balance.
  But I known you are taking it all in stride and calmly letting them work something out while you quietly hope for the best... Okay Okay it sounded good didn't it? Unfortunately that is really all you can do. Well sister we are all waiting with you and hoping for the best.  Keep thinking good thought and keep that blood pressure down.

  Love ya Liz and I am here for you if you need someone to talk to or just vent. You know how to get to me.


Hugs,
  Laurie

Thanks Veronica, Rachael and Laurie I appreciate the support.

Today is the end of day 6 and I am done. Tomorrow I will call the surgeons rooms and find out what is actually going on. They have not called me back as promised nor any other form of communication. I can't do this anymore its driving me crazy. I have been lucky with all the support I have been shown here and in my private life. Got to spend some time chatting to good friends today so that helped a lot. Coming here and seeing you all showing me support makes a big difference...Thank you!! Maybe once I get an answer I can restart my life!!

Until tomorrow
Liz

@LizK with all you have gone through to get where you are, there is no "done" until you have reached your goal.  It is what is in the future, and you can do it.  Tomorrow may give new hope.
I understand how this would make you feel mentally unraveled.  Take a spa day tomorrow to unwind, it seems to help me at least.

Hugs, Jess

Liz the foundation of all this is knowledge and your mind - and in that sense you've already won.  You know exactly who you are and where you want to go.  Some details are easy and some are frustrating and challenging.  You will get there.  If not this week or the next several weeks, you still will.  Think of all this in percentages of your journey, the amazing things you have already achieved to get to this point.  I am proud of you. 

Quote from: LizK on October 18, 2018, 02:15:48 AM
Thanks Veronica, Rachael and Laurie I appreciate the support.

Today is the end of day 6 and I am done. Tomorrow I will call the surgeons rooms and find out what is actually going on. They have not called me back as promised nor any other form of communication. I can't do this anymore its driving me crazy. I have been lucky with all the support I have been shown here and in my private life. Got to spend some time chatting to good friends today so that helped a lot. Coming here and seeing you all showing me support makes a big difference...Thank you!! Maybe once I get an answer I can restart my life!!

Until tomorrow
Liz

@LizK
Dear Liz:
Never give up, never surrender....

Please keep us all updated with your followup efforts.
We are your biggest fans!!!!   We have shoulders available for you to lean on or to cry on.
Hugs,
Danielle

Quote from: Jessica on October 18, 2018, 02:26:53 AM
@LizK with all you have gone through to get where you are, there is no "done" until you have reached your goal.  It is what is in the future, and you can do it.  Tomorrow may give new hope.
I understand how this would make you feel mentally unraveled.  Take a spa day tomorrow to unwind, it seems to help me at least.

Hugs, Jess

Hi Jess when I said I was done I meant with the mucking about...no this whole process...I am past upset and heading towards angry. I will explain more further down but thanks for thinking of me

Quote from: Kendra on October 18, 2018, 07:02:52 AM
Liz the foundation of all this is knowledge and your mind - and in that sense you've already won.  You know exactly who you are and where you want to go.  Some details are easy and some are frustrating and challenging.  You will get there.  If not this week or the next several weeks, you still will.  Think of all this in percentages of your journey, the amazing things you have already achieved to get to this point.  I am proud of you. 

Thank you Kendra it has been a battle to get here and I will not get dumped at the posts, I will see this thing across the line. You are so right as far as what I have already achieved and I am not finished yet!!

Quote from: Alaskan Danielle on October 18, 2018, 10:15:37 AM
@LizK
Dear Liz:
Never give up, never surrender....

Please keep us all updated with your followup efforts.
We are your biggest fans!!!!   We have shoulders available for you to lean on or to cry on.
Hugs,
Danielle

Thanks Danielle I love this move is such a great spoof on the who genre. You are right "Never give up never surrender"  I am going to need those shoulders if this goes on much longer.


Thanks once again for the incredible support.

Take care

Liz

Liz, I really hope this gets resolved quickly now.  I have trouble believing that the medical bureaucracy is dragging its feet so badly.  I do understand the issues, and all the moving parts that need to be scheduled together, but damn, they can't give you progress reports?

Despite only doing two walks this week and being very stressed all week I manged to lose the last 400 grams that put me over the top for my surgical goal weight of BMI < 30....its now 29.9. I qualify for surgery 

Total Lost total of 15.5 kg since Sept 2017 but the majority has been lost from Jan 2018 at which point I was 104Kgs I am now 90.6.

I want to now work on a buffer of 5kg and get to my second goal which is 85kg.



So I called this morning Andy Said pretty much that the problem is the report saying I need an ICU bed and there is only one hospital I can do that at and we have to wait for the list to come up and then I can see if there is a spot.  It would be remiss of me not to follow the advice of your pain specialist...... All sounds pretty fair to me I thought

I went on to tell to him that I understand perfectly what the issue is with the ICU bed and how he has to follow this and I appreciate how hard they are working to fix this but maybe I need to fix this issue over the ICU bed and see his reasoning behind this. I went on to say to him that I could not understand my Dr's reasoning and wanted to talk to him about this...if my Dr came up with an alternative or was willing to reconsider his postion could we still do the 28th...Yes was the answer

I then asked if he could please set my Mind at ease...if the 28th won't work ,when can we do it and went on to ask ..."would it be like march April or as late as Nov -Dec next year."

He began to chuckle, he understood what was going on I think and then said, Oh  no I mean before Xmass or probably at worst January because many list get cancelled in January...they release the surgery lists slowly and some lists may be empty which he can then slot me in...however and this next peace of information explains the disconnect between me and the support staff....they have only released lists up till Mid November this year so far and they are full but there is the rest of November and Decembers lists to be release and if there is a space he will grab it. I think the office staff understand this but I never knew it so when I say I want a date I mean next month or next year (the staff are think I am meaning next week or the week after) I don't care when it is just give me a date. I am thinking its like filling in a Calendar...is that date free?...yup, so I can go ahead and book that theatre....it's not how it works at all. The reason she can't give me a date is because the hospital has not released what dates are available.... At worst its going to be sometime January providing there is a list available and Andy said to me he will grab any list he can to do including before the 28th. I said to him I understood with great clarity what the issues were but it was somewhat more reassuring knowing its not going to be next November. I can live with a delay but its the uncertainty that give me anxiety...he has promised that someone will get back to me with an update today.


So the issue remains the same however knowing how the process is working means it can change very quickly. I told Andy that I could be ready earlier if needed as well. I need to speak to my pain guy and see what is going on and if there is another way we can deal with this....I have sent him an email and his other secretary has sent him an email asking him to contact me urgently. If I can get him to look at another way of doing this rather than an ICU bed then the 28th can go ahead. In the mean time they will proceed with the ICU bed



The surgical lists are being released slowly over the next week or so and as soon as there is a spot I will get it.

The simplest way to do this is to find another way to manage without an ICU bed....I need to speak to my pain management Dr if I can ever get a hold of him...he is interstate today but I know where he will be on Tuesday.

There is no longer any point in me contacting Mr Ives Rooms and I won't be. I believe Andy when he says he will call.

I will continue with my prep(I started up walking again 2 days ago) and await a new Date...I am not even going to chase my pain management guy. He has 2 emails one of which is requesting he calls me so we shall see. Its likly going to be a terrible waste of everyones time and resources but one which I will be helpless to stop.

I intend to get back on with my life.

Liz                                       

PS: I will update again after talking withthem this afternoon.

NEW GCS Date


Remember, Remember the 4th of December


They just called a minute ago...you are the first to know.


Knox Hospital 4th December Admitting 5th December.....They are checking my private health details to ensure I am covered but barring that as an issue its a done deal.


More details when I have them


Liz

46 Days 

EDIT Shows how excited I was the actual dates are 4th December Operation, and admission on the 3rd of December

 Hi Liz,

  Well girl that sounds a lot more hopeful than it did when we talked yesterday. I will be awaiting another update.

Love & Hugs,
  Laurie

  Dang you I hit post and get a warning and it is your update.  Congrats Dec 4th it is . better reset the countdown.
  LJW