so after my last appointment, I complained and thought it was over

[jaybutterfly]

Turns out, despite my explicit request, the notes of the doctor I complained about have been forward to my GP in spite of my request. I am absolutely fuming and my anxiety is through the roof. I do not know what to do, but I will be going back to the GI services by phone shortly to tell them about this.

Frankly I dont want to go back, but its also put me off going to the doctors. The notes say that they dnt want to diagnose GID, but they do say I have a poor sense of identity and probable autism, which I have been tested for in the past and was deemed not to be the case. If I am not going to be listened to by doctors or staff, then why would I even bother?

The fact theyve sent this too my doctor and it's going to most likely be going in my notes makes me feel worried of what this will mean for me in the future.

[silvertime]

You have the right to revoke your consent of sharing information between parties. If your worried about it contact both and revoke their privilege and get yourself into see someone else.

However, I see your frustration but think about what they are telling you and try to see their perspective. If you still feel their diagnosis is wrong then do the aforementioned.


Sent from my iPhone using Tapatalk

[jaybutterfly]

You have the right to revoke your consent of sharing information between parties. If your worried about it contact both and revoke their privilege and get yourself into see someone else.

However, I see your frustration but think about what they are telling you and try to see their perspective. If you still feel their diagnosis is wrong then do the aforementioned.


Sent from my iPhone using Tapatalk

I know this has already been sent, the service is closed today so I will call them first thing monday to straighten this out, but this feels like a betrayal of trust to go behind my back and send it anyway.

[Northern Star Girl]

I know this has already been sent, the service is closed today so I will call them first thing monday to straighten this out, but this feels like a betrayal of trust to go behind my back and send it anyway.

@jaybutterfly
I sincerely trust that you can get this straightened out and resolved to your satisfaction....  I wonder if there was some bonifide medical reason for what your doctor shared with your GP... perhaps there were comparing notes for your treatment or medicine contradictions and side effects?

Personally for me, I am not against all of my doctors and surgeons sharing their notes and opinions about my medical needs....   I look at it as a benefit.

Please keep us all posted, as this is an important issue for all of us.
Hugs and well wishes,
Danielle

[jaybutterfly]

@jaybutterfly
I sincerely trust that you can get this straightened out and resolved to your satisfaction....  I wonder if there was some bonifide medical reason for what your doctor shared with your GP... perhaps there were comparing notes for your treatment or medicine contradictions and side effects?

Personally for me, I am not against all of my doctors and surgeons sharing their notes and opinions about my medical needs....   I look at it as a benefit.

Please keep us all posted, as this is an important issue for all of us.
Hugs and well wishes,
Danielle

I take issue with the fact that there is no medical or medicine related issue for there to be put over. Im not taking anything or have any health concerns, this is for diagnosis of dysphoria. He claims I backpedalled on agreeing with his idea of discharging me and putting me in explorative psychotherapy and wants to diagnose autism instead of GID.

I am fed up with the back and forth I have had with the services of 'youre autistic' when I am actually dyspraxic and that while there is overlap, they diagnose dyspraxia over autism if they believe that to be the more likely issue, and I was assessed continuously through my entire school life up until I was 17, so I find it absurd for him to be pushing that. I know what I am in that regard, and last I checked, autism doesn't rule out GID. I also take issue with the wording of that I have 'ambivalance' about my gender. I am dead sure male does not fit, but this doctor I saw kept spinning what I said to suit an outcome he was after. I told him I dont see myself as male, and he claims my comment is 'I didnt see myself as the same kind of male' there is a significant difference in what those phrases mean.

[Maid Marion]

Sorry to hear of your issues getting a proper diagnosis.  I could be that you have something that doesn't quite fit in the familiar "boxes."

It could be that self treatment is the only reasonable option at this point.  You might look for those with similar issues to yours and copy what they have done to obtain relief.  Take good notes or records of what works and doesn't work.  It is very important to know what doesn't work or fails really badly. Videos of yourself in different states may be worthwhile if you can do that.  This sort of evidence may be needed to get a proper diagnosis.  It may also be useful for getting a doctor to prescribe something for you.

[jaybutterfly]

got in touch with the services, the head of the clinical team is going to call me about 1 to sort this out.

There is wording in this that I really do not appreciate

'It could be explained that this behaviour and cross-dressing is a means to be noticed within his family.'

I strongly resent this, and the action plan continually recommends autism screenings.

UPDATE:

So I got called back about the assessment and it is the case that this has to go into my medical records for legal reasons, but I have explained that I feel there are comments in this letter that do not match what I have said and even are things not discussed in the interview. This will be reviewed later by the staff and they will get back to me, but sadly, it requires the doctor in questions' consent to have the letter altered or removed. Due to this it is unlikely to change.

On the plus side he has nothing to confirm a diagnosis of autism or any of his other comments, so I cannot be pushed into screenings and what have you.The second opinion will be considered seperate and potentially overwrite the first.

What does boggle my mind is the fact the letter even admits female internal identity as there. I probably didnt tick all the boxes but I find the pushing of autism to be in poor taste and the fact he put words in my mouth in said interview to really damage my trust in him. Why would I listen to someone who does that?