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I had Secondary Sigmoid Colon SRS with PAI

Started by SpiralCream, November 09, 2018, 11:23:54 AM

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LaLa_girl

Sharon,

Good to hear from you. I think it's common to feel down after major surgeries. Sorry to hear about the pain and discomfort u went through. I'm glad you feel better each day and no complications. You mentioned earlier that you wanted to correct the opening of the vagina. Did he fix it? By what method? The only thing I would fix my vulva is the gaping as well and he said can be fixed with fat graft. How deep is ur colon connection point?

Your picture looks great! I'm surprised your abdominal scar looks so good 3 weeks post.
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M. Sharon

Dear LaLagirl, He fixed my opening by constructing labia minora which is absence in previous surgery. He also created very natural clitoris hood and I am very pleases with new cosmetic appearance. I don't know which method he used technically but it definitely looks much better than before. Colon connection point is 1.5 inches he said but I doubt it is at 2" as dilator goes smooth till 2" and struggled to move forward there. After some discomfort of tightness and stretch meet at 2" passed, it again goes smoothly in but colon push back dilator after 15 min that I usually slowly push dilator back inside to reach desire depth ie. 4.5 inches currently. Dr.Sutin said colon surgeon cut 7" that I have total of more than 8" when I heal up completely. Colon never loose depth that I need not to worry about it whereas penile skin inversion will definitely loose 2 to 3" later in most patients. I got 5.5 initial depth and ended up 3.5 inches which is not compatible with any penetration sex. Scar is getting fade each week at belly and under breast. I will come back with recovery tips about buying necessary stuff to stock in before surgery to make you utmost convenience and to void unnecessary movement in your early recovery days.
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Linde

Just a clarification by a person who made her living with infection control & prevention.  It should not be seen aas a given that one gets a UTI after surgery and catheterization.  It is very common to experience UTI's in these situations, but all research we did on this, clearly indicated that somebody did a breach of sterile procedure.  In most cases, this breach was done by the staff who inserted the catheter!  If these persons would be better educated and would take more care about the possibility of an UTI when applying/inserting the catheter, most of those could be avoided!
02/22/2019 bi-lateral orchiectomy






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SpiralCream

I only had a UTI once, shortly after I returned home from Thailand.  It was entirely my fault, because I did not clean my vagina after dilation, for several sessions in a row.  I was lazy after returning home.  I only wiped with toilet paper, but did not rinse with water or betadine.  Since my UTI, I learned my lesson and I always rinse the area after every dilation with a water + betadine solution as originally instructed by the nurses in Thailand.  Since then I have had no UTI.  I think the risk for a UTI is higher in the weeks and months after colon SRS because of all the frequent bowel movements and loose stools.

I've noticed a few differences in recovery from M.Sharon and me.  Other than the blood clots, I had almost no bleeding during my recovery in Thailand and at home.  Sometimes I would see a tiny one or two drops of pink blood (mixed with other lube) on my pads, but it was very minimal.  I also had very little pain in my first dilation after surgery and very little pain throughout all my dilations since my surgery.  I have a little bit of pain and a tiny bit of blood when I increase my dilator size to a new larger size, but the pain and blood goes away after a few days.  The main issue is that the connection point between my vaginal tissue and colon tissue is still quite tight.  It stretches with dilation without any pain, but the default is to be quite tight.  I hope it will become less tight with more time and more dilations in the months to come.  It is not painful, just tight and needs to be stretched.

Recently I had a bit of an issue when I went to a bigger dilator size and had some more blood and pain than usual.  Nothing serious, just very minimal few drops of pink blood, nothing to fill my pads or even close to it.  But the pain wouldn't go away after using this larger dilator size, even after a week.  (it was not serious pain, I didn't need to take any pain medicine, maybe a 1 or 2 out of 10 on the pain scale, so almost nothing, but still it was a little bit of pain when previously I had no pain, so I was a bit worried).  I went to a LGBT clinic where they have a doctor who has examined many post-op transgender women.  She gave me a full exam and said everything looks healthy and fine.  She said the connection point of vaginal/colon tissue is very secure and healthy.  No tearing or bleeding or granulation inside or outside my vagina.  She said everything looks perfect.  It was a relief, and sure enough after another week or so the lingering pain from using a larger dilator size went away, and now I am using the larger dilator size without any problems.  I think at this point after 4 months post-op, it is safe to say that my surgery was a complete success and that Dr Burin did a wonderful job of creating strong sutures in my colon/vagina that has held strong and healed nicely with very little pain throughout.

Regarding the catheter, when I had my colon SRS, Dr Burin removed my catheter at 5 days post-op, while I was still in the hospital.  Maybe M.Sharon has to keep her catheter inside longer because she had more procedures done with external genital work and urethral fistula correction from her previous surgery.  But since I only had the secondary colon work done, the catheter was removed quite early.  It is also interesting to note that when I was coordinating my surgery in the months leading up to surgery, Peera (the patient coordinator at PAI) told me that Dr Burin was going to use a newer technique on me that would allow removal of the catheter earlier than usual.  So maybe that was a factor too.

As for breast implants, I think another interesting point of difference there.  Dr Burin urged me to get textured implants because they are safer in his opinion.  It's interesting that Dr Sutin advocated for smooth implants for M.Sharon.  In my research, I have learned that the overwhelming majority of breast implants used in the USA are smooth implants.  But in every other part of the world - Asia, Europe, Australia, etc - the overwhelming majority of breast implants used are textured implants.  You can see the difference in the "textured implant look" vs the "smooth implant look" when you look at the breasts of porn stars from the USA vs the porn stars from the UK or Asia.  They look different and the breasts also move differently.  I think it is a matter of personal preference which is better.  I am happy with my textured implants.

As for size, I am ok with my 375 cc implants.  But... if I had it to do again, I would choose 300 cc instead.  I think I should have gone with my initial instincts and done 300 cc, but I listened to my real-life friends (who also got implants) and also what I read on breast implant forums telling me that 300 cc is considered to be too small.  (for example if you go to JustBreastImplants.com, discussion for 300 cc implants is in the 'small' implants subforum, haha).  I know that many, many women would be happy with 375 cc implants or even larger, but I think my own personal preference is for smaller breasts.  But oh well.  375 cc isn't huge either.  I am consistently fitting in 34C or 34D bras - I am kind of between the two sizes.  And I think that's not considered to be too big by almost any standard.  And again, many women would be super jealous to have breasts in this size range. 

Now the part about my bowel movements.  At almost 4 months post-op, I think I am still healing.  But doing better.  I can eat anything I want and even eat big portions at meals without any problems.  Bowel movements are still a bit annoying though.  Sometimes I will go 10 hours or more without any bowel movements, but rarely sometimes I need to go twice in 1 hour.  And sometimes I need to sit on the toilet for a while because not all of the poo comes out at once.  Another problem I sometimes have is that I cannot pass gas easily without some poo coming out with it.  This makes sense because it is the function of the sigmoid colon to allow gas to pass without releasing poo.  I am hoping that this will get better over time as the rest of my colon adjusts to handle this job, but for now it is inconsistent.  Sometimes I pass gas and nothing else comes out, but sometimes a little bit of poo comes out with the gas.  Because sometimes it works fine, I have hope that this problem will eventually get better and go away completely with more time healing.

I think these are side effects of losing the sigmoid colon in the digestive tract (although I did not lose all of the sigmoid colon - the total length of sigmoid colon is about 15 inches, and the surgery only cut out 6-7 inches of it).  Although it's the least important part, it still has a function unlike the appendix.  The ability to pass gas easily, or the ability to store poo and release it all at once - those are things that the sigmoid colon does.  I am noticing that over time, the rest of my colon is learning to adjust as these issues are decreasing in frequency, but I am not sure if it will ever be 100% like normal.  I have hope though.  After all, 4 months is not enough time for the body to heal completely from major surgery.

Oh, forgot to mention about discharge and smell.  I forget when exactly, maybe it was a few weeks ago.  But there is almost no smell at all anymore.  There is still a little bit of discharge, but it is easily taken care of with a light maxi pad.  Maybe with more time, the discharge will stop completely, I hope.  It has only been 4 months post-op after all.  But the smell (which wasn't that bad to begin with) is really just gone now.  It doesn't smell like anything anymore.
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AnonyMs

Quote from: Dietlind on February 24, 2019, 11:19:51 AM
Just a clarification by a person who made her living with infection control & prevention.  It should not be seen aas a given that one gets a UTI after surgery and catheterization.  It is very common to experience UTI's in these situations, but all research we did on this, clearly indicated that somebody did a breach of sterile procedure.  In most cases, this breach was done by the staff who inserted the catheter!  If these persons would be better educated and would take more care about the possibility of an UTI when applying/inserting the catheter, most of those could be avoided!

Do you know of any papers on this?
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LaLa_girl

Sharon and Spiral

Thanks for the update ladies..happy to hear from both of you and hope ur recovery continues to get better.  How long did you stopped ur hormones before surgery? PAI only requires 5 days, but other surgery I have had in the past require a month. Spiral, can u hold on pooping like before? Like if u stuck on a bus or train lol..or have u had sex yet? Would love to hear ur experience. ..also, any advice on what to pack or eat would be highly appreciated from u 2.

Thx ❤️
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Linde

Quote from: AnonyMs on February 25, 2019, 12:54:47 AM
Do you know of any papers on this?
Not off hand.  I am retired to long that it have them readily available.  But it is a well know subject in the field of infection control.  Every well run hospital should have an infection control specialist on staff, and they can give you all the information you need.

Here is a papr that talks a little bit about it
If the staff makes sure that the biofilm gets destroyed,it will prevent an infection!

https://www.infectiousdiseaseadvisor.com/home/decision-support-in-medicine/infectious-diseases/urinary-tract-infection-uti-in-the-catheterized-patient/
02/22/2019 bi-lateral orchiectomy






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SpiralCream

Quote from: LaLa_girl on February 25, 2019, 06:25:53 AM
Sharon and Spiral

Thanks for the update ladies..happy to hear from both of you and hope ur recovery continues to get better.  How long did you stopped ur hormones before surgery? PAI only requires 5 days, but other surgery I have had in the past require a month. Spiral, can u hold on pooping like before? Like if u stuck on a bus or train lol..or have u had sex yet? Would love to hear ur experience. ..also, any advice on what to pack or eat would be highly appreciated from u 2.

Thx ❤️

I stopped hormones 1 week before sigmoid colon SRS. For other surgeries that I did previously, I think I stopped hormones 2 weeks before surgeries.  And yes I can hold my poop just like before. The main difference is that I need to go more often.  These days it is maybe 2-3 times per day of having to do poo? It used to be more often, earlier in my recovery. But  it's  not too bad now at 4 months post op. Hopefully with more time it will go down to 1-2 times per day. But I never have any danger of pooping in my pants, lol. I have full control and don't need a diaper or anything like that!  I have not had sex yet, so nothing to report there.  But I can still orgasm by myself no problem!  I am sure sex will feel even better!
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LaLa_girl

Spiral,

how's dilation at 4 months mark? Painful? What if u skip a day? And are u still doing it 2x per day?
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M. Sharon

Today is exactly 30 days post op and I am still in Bangkok. Poop is getting better this week I can hold when I go out to 7-11 store and Big C supermarket near hotel. Sense of poo urgency is significantly improved and I only need to poo 3-4 time a day. Poo are  normal poo but very less amount each time. UTI is gone since first day i started taking Augmentin. Peeing also a lot better with minimal bladder and urethra swelling stain where I had fistula healing and 2 weeks stain of catheter inserted. I eat more these day and no bowel upset has been encountered. But dare not to eat meat, burgers or rices in a large potion yet as i don't want to push my bowel habit within 1 mo postop. So most of foods I eat are kind of low fiber soft diet. Yes Spiralcream, I also get gas pass with poo sometime especially while i walk or stand up sometime, but fart in the bed never happen gas accompany with certain poo. I hope this will also get better in the months ahead. I would like to how when you step up to bigger dilator size spiralcream, I guess you were doing on #1 of complimentary white set for first two mo, don't you?
The dilator set sold by PAI for 6000baht (US$200) has little degree of curve at tip and its #1 is distinctly bigger than complimentary #1. Which #1 are you on now? or which #2 are you doing dear? I have final check up on 4th March and going back home on 6th. In fact, I was granted to safely back home since 3rd week postop. Yes I felt fit to go and have enough energy to set travel on 3rd week but I rent hotel on monthly basis and like to stay more weeks to deal with possible complication if there come up any. Of course UTI jumped in lately and managed with usual antibiotic I used to take when It happened in past and relieved. BA discomfort n tightness at breast seems getting better each week now. I am so happy now how my breast turned out in good LOOK sexier fuller figure with full DD size I think. I initially depress about my BA implants sizes i have chosen 500cc from what I got sharp pain n intense tightness and having got big discomfort in my early postop days that even considered to removed it as soon as I could. But now I started to feel very pleased when things got to settle in terms of look, pain, and tightness.  PS: Lala_girl I stopped taking hormone since many many years ago.
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LaLa_girl

Sharon,

Glad to hear from you and that your recovery is going well.  Kinda make me nervous poo came out when passing gas lol....I hope this is just a short term issue.  I assume you can hold your fart as well? Cross fingers..lol.. I hope you enjoy your last week in Bangkok and a safe journey home.
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M. Sharon

#131
It is 32'days since I had secondary colon srs and BA with Dr. Sutin at PAI. Yesterday and today I started to eat fried rice and asian meals like white rice with curry and no any bowel problem at all. But i had to go bathroom for 6 times but poo are normal in less amount as usual. No bowel pain nor stomach upset though. So far still no major complication except some bleeding by 7th day, and UTI by 3 week. So it can be said everything went very well. Some Bowel habit change and discomfort or moderate pain at incision, surgical areas are inevitable for this type of surgery and to be expected to deal with. These sideeffects are also getting slowly better i think.

Whoever the surgeon you choose at PAI (Dr. Burin or Dr. Sutin) for colon srs, the colon specialized surgeon they use who will perform on you is only one same person. To me, his name is pronounces as "Tha-we-sar" in Thai according to Jessie, the patient coordinator. For my particular case, it was like primary colon srs as I had to undergo all revision from previous penile skin srs from urethra fistula to every single part of new neo vagina except labia majora however it also has to be fixed to proper appropriate position as it goes wide open when my laps are spread. So it is 90% work of newly reconstruction of neo colon-vaginoplasty.

Tips for stuff to be stocked in your room are Condoms, a handheld small mirror, KY gel tube, saline water, blue pads sheets and betadine solution for dilation sessions. The hospital provide one big bottle betadine solution but it's not enough if you stay in bangkok more than 3 weeks postop.

you may also want to buy diaper pants or strip pads to wear to make you ease in bed throughout postop period. I bought both diaper pants and strip sanitary pads a lot that really make me easy sleep n indoor stay whole month postop. The hospital supply one pack of strip sanitary pads consists of 10 items but it's only for 3 days trial that I asked Jessie to sell this thing in my second postop week both PAI and Hospital do not have this thing to deliver extra for their patients. So Jessie helped me look for this product and it was so difficult to find that his finally call PAI messenger who come and pick sample pack from me to look around in town and got me delivered 5 packs in the evening. His transportation charges was only 50 thai baht.

'Ensure' nutritional powder were my main food to depend entire first 2 weeks when I can eat most foods due to strong bowel irregularity and difficult to sit on commode with my indwelling catheter for 2'weeks. I took dozens of Ensure drinks that really helped my recovery safely with colon srs. I did not ear any solid foods till 2.5 weeks and thereafter i started to order boiled rice from hotel twice a day.

PAI offers 2 sort of dilators set (kit of 2 stents made of glass and a kit 4 color stents made of unknown material) if their patients wish to buy. glass set sold with 3000 Baht and the rest one is of 6000 Thai baht approx $200. You can always deny if you think it unnecessary but I chose one (6000 baht kit) as it looks to me easier to dilate in future as its nose tip goes narrower to slightly expend to full width to reach its designated diameter and its nose about 10 degree curve for first 2 to 3 inches. I have no idea why these dilators has to be concave at tip but PAI nurse mentioned that it's easier to goes in. It really looks to me head of bullet train of Japan LoL, but i am sure it won't goes as fast as it runs into my vagina as I already fed up with their smallest free set #1 in my early dilation sessions. I don't know if I can use bigger sizes trouble free. Presently, I am still doing on conventional dilator #1 supplied as complimentary by PAI and has not get tested any of those of high tech ones. Purchased set's #1 is significantly bigger in width my current doing #1 so i think of asking Dr.Sutin try on me if he say i am ready in final check up. So there will be another disaster for me at PAI with step 2 dilation. Lol.

Many thanks spiralcream for her every single details as it guided me so well to get through my surgery. Hi LaLa girl, though we could not meet in person in March, yet I might come back Bangkok in April for follow up especially when i increase dilator size to get check for possible injury colon-skin joint as my home town does not have any transgender clinic or any service providers familiar with this thing. So if you are still in Bkk by April, I hope we could link up ! Lucky me I lives in neighbour country located next to Thailand that it takes only 1:55 hr flight from Bkk to my hometown and vise visa. So i can easily fly back whenever i need their attention.

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SpiralCream

Quote from: LaLa_girl on February 27, 2019, 07:47:47 AM
Spiral, how's dilation at 4 months mark? Painful? What if u skip a day? And are u still doing it 2x per day?

Dilation is not painful at all now.  I still dilate twice a day.  A few times I was just too tired and dilated only once a day.  The next time I dilated after that, it was more tight than usual.  So I try to keep dilating twice a day for now.  I think the amount you need to dilate will depend on how your body heals and how much you did dilation from your first surgery.  PAI did not give me a firm schedule that I need to follow for my dilation, so I am just going by how I feel.  If it feels tight, I dilate more often.  If it feels easy, I dilate less or increase dilator size to a larger diameter.

Quote from: M. Sharon on February 28, 2019, 10:06:17 AM
I would like to how when you step up to bigger dilator size spiralcream, I guess you were doing on #1 of complimentary white set for first two mo, don't you?
The dilator set sold by PAI for 6000baht (US$200) has little degree of curve at tip and its #1 is distinctly bigger than complimentary #1. Which #1 are you on now? or which #2 are you doing dear?

Yes I only used the smallest dilator size for the first 2 months after my sigmoid colon SRS.  After 2 months, I gradually increased dilator sizes.  I am currently using Dr Chettawut's dilator #4 (32 mm).  It is a size between PAI dilator #2 (31 mm) and PAI dilator #3 (34 mm).  I am using both Chet's dilators and PAI's dilators to increase my dilator size very gradually in 1 mm or 2 mm increments.  I am probably being overly cautious, but after the problems I had from my first surgery, I prefer to to be extra safe.  And besides, I have two sets of dilators, I might as well make use of them both!
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Koalapl

How much cost you to do revision? I have same problems and thinking to do revision.
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M. Sharon

Many thanks for info over dilation regime. It was easy switch from complimentary #1 to pai #1 when Dr.Sutin trained on me by last consultation last week. Of course Pai #1 is significantly larger in width than complimentary #1. I am home now and It is 43 days postop and pain and tightness uncomfort at breast, tummy and vulva areas are almost gone nearly got back to normal. I had bad bowel movement a few days ago as I ate lots of fried rice in large potion twice in same day and had to go bathroom for 15 times the whole day. Poo were normal poo but had many and last 6 times were almost nothing to poop for but had strong urge. It was very difficult to deal with upset lower part bowel movement that I took metronidazole pill on my own. Yes it did work, symptoms all gone within an hour as if it was taken away. And i convinced that I still have to take precaution with large meals in these early months. I am doing dilation pain free and mucus discharge were subsided even after dilation session. I only have to change my pad twice daily. Each time there is no discharge on pads at all. I am very pleased with it. Nothing to mention apart of bowel upset i got lately and everything are just going fine with me. I will keep update soon again. I am also exciting to hear your first sex experience Spiralcream ;) ;).
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LaLa_girl

Sharon,

Good to hear from you and your recovery is coming along.  I arrived bkk yesterday and will have my consultation today as well as blood work. I went to the night market last night and pretty much enjoy my last good meals for awhile haha. I stuff my face with seafood and fruits. The next 3 days will be clear liquid food...so I need to pickup a few juices from the market.  I am staying at One One hotel, nearby the clinic and it seems pretty good.  I hope everything goes smoothly like u and Spiral.  What day were u able to walk around? Like go downstairs buy food. Were u able to tour around the city after surgery? BBK is a interesting city and I wish I'm heeling well to tour the city a little during post op.

I can't wait to hear Spiral first sex experience as well 😂
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BecomingJasmyn

Hey my name is Jasmyn and I am so grateful to have found this thread SRS surgery is very important to me and I am trying to make the best decisions based on cost price and value and this thread and your story has been so precious thank you so much for such a comprehensive review of your journey.
I'mgoing to have to do my own investigation research of course and I likely will go to Thailand and speak directly with the hospital  for my own consultation my only complaint about this whole review is that so far price has not been discussed not even an estimate given I personally feel like since so much personal information has already been shared why not in order to help other girls share an estimate of the full cost that you endured during this journey it just makes things a little bit more difficult for me to follow in your footsteps without knowing exactly how much money I should have with me back overall this was a wonderful review and I am so grateful that you were able to share your story good luck on the rest of your recovery and thank you again you are helping girls that you may possibly never meet and that's a beautiful thing so thank you thank you thank you again
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M. Sharon

Hi LaLa girl, got your msg. My colon srs was on 29th Jan 2019 that Dr Sutin was right it was 2 months past according to month, calendar but to be exact, it is 45 days post op so far. I am doing very well now but my bowel movement is still irregular, but it seems slowly improve that I can stay 3-4 hrs without needing to go toilet. In total, still I have to go to bathroom to poop 5-6 times a day just to burst gas with very small poop each time. I am eating normal but not large potion at a time. All pain and discomfort at surgical area are 90% gone that I even started to hike hill using incline slope car track which i used to do every evening for a couple of years before and am doing great. No pain at tummy incision area at all. Mucus discharge are seen very rarely sometime on pad for a tiny wet and I never embarrass about it. I only need to change my pad every 8 hrs for my sanitary reason not because of discharge. Different people have different healing time but  i think you will start feel like good to walk outdoor about 2 weeks for a short distance. One One hotel have everything nearby and it's convenient place. I can find that hotel right before PAI, only 4-5 min walk i guess. You will feel fit and good to take city tour around 3 weeks as you get back enough energy and got lesser pain. For me I had vulva area repair that was big challenge for me to walk within first 2 weeks as if i just underwent primary sex change operation. If your case not include this job you will walk better even earlier after 10 days post op for shopping but be careful with strong urge of poo urgency that can last for a few weeks and caution for not lifting heavy things for 2 months.  Thus taking a long ride on a cab might be pretty challenge due to highly irregularity of bowel movement. Make sure you collect all stuffs you may need to use in your room for second n third week and if something needed emergency just skype to Jessie or Bune and they will arrange messenger to have you delivery for the things you need. Oh I misses Jessie and Bune they are very supportive, sweet and always ready to help and responsive as well. You are in GOOD hands with PAI and hope your colon srs will also go very well.
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LaLa_girl

I had consultation with Dr Sutin today and was feeling down. I guess after hearing all the risks and infections kinda worry me.  I keep asking me when I'm doing this to myself and blah blah blah.  I was feeling down pretty much all day.  I know at the end I will be much happier.  I am starting my 3 days prep now, so nothing but clear soup, clear juices and water.  Boun is so lovely and caring ❤️.  I'm very pleased with the staffs, dr Sutin, and staffs at hospital so far.

Oh btw, how much weight have you lost since the operation?
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M. Sharon

I lost 8 lbs approx 4 kg average after surgery but it regain fast after good rest n diet. Now i have even more weight than before surgery; on top of lost 4 kg ;)
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