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Sharing my hormone horror story

Started by Marie, September 24, 2010, 04:25:58 PM

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Marie

So, I've been dealing with this US pharmacy for about 2 years and dutifully injecting my Estrogen every 2 weeks quite happily.

End of April I have my SRS and go off hormones and spiro.

Coming back home and after waiting for the allotted time I start back on my hormones, I'm running low so I order a new shipment.

A few weeks after starting this new batch I start to feel odd, my face is breaking out and incredibly oily, my sex drive is through the roof, i can't sleep and when i do it's for very long periods of time, I stop going to the gym, lose my appetite and start having headaches and muscle pains all through my body.

I'm starting to wonder if it's due to the lower dosage of Estrogen I've been on since returning from my SRS.

I schedule an appointment with my doctor to have my levels checked.  The results take 4 weeks to come back, all the while I'm taking my bi-weekly injections like a champ.

Well, the phone call eventually comes, it's my doctor.  Says my Testosterone levels are 70 times normal(4 times where I was pre-spiro/hrt), my Estrogen levels are nil and wants to see me immediately.

Something told me to check my vial, yep, sure enough.  Even though the outside "pill bottle" was labeled Estradiol Valerate, the actual ampule was labeled Testosterone Cypionate.  Perhaps due to the "ate" at the end my brain was seeing the correct medication name, regardless as you can imagine I was devastated.

Everyone I spoke to intimated to me that this was a major screw-up, even my doctor communicated to me that this was a "big deal".  To this effort I made several phone calls to several firms and private practice attorneys and wouldn't you know it.  None were interested in taking the case, the negligence of the pharmacy, my suffering, time spent on additional blood work and doctor visits, time spent once again going through the laser hair removal process, my belief my voice has deepened, therapy sessions, lost days at work, and the rollercoaster hormone ride that is for the most part not fully understood in the medical field did not have the air of dollar signs pharmacy malpractice attorneys look for.

In short, this has been a nightmare within a nightmare.  Ladies, check your vials, and hope what it says on the outside is really what is on the inside because if it's not you have no recourse other than choosing a different pharmacy.
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Summerfall

Omg, that's terrible. I'm glad you caught the mistake though. I hope you get through this without too many serious side effects.
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spacial

Amy

Thank you for posting this. It is important that we all check everything. Assuming that these people don't make mistakes is clearly nonsense.

I do hope you can fully recover.
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rejennyrated

Maybe it is my nasty suspicious mind but I instantly started to wonder how "Accidental" this mix up really was.

I mean if you were a religious extremist who disapproved of SRS and that worked in a pharmacy swapping Testosterone for estrogen could seem like a clever way to sabotage someone.

I hope you can get this sorted out because if my suspicions were any more than that then this could actually be a criminal hate crime.

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Flan

my opinion is to contact the pharmacy licensing board, a med "error" like this is unacceptable and possibly illegal (since T is a schedule 3 substance).
Soft kitty, warm kitty, little ball of fur. Happy kitty, sleepy kitty, purr, purr, purr.
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Marie

I reported them to the State board of Pharmacy and FDA medwatch.  If anybody knows any other agencies that would like to know about their mistake, I'd be more than "happy" to notify them as well.
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V M

I'm sorry that such a terrible thing happened to you and am glad you reported them... I would have to agree with Jenny in suspecting foul play

Such a "mistake" is inexcusable  >:(
The main things to remember in life are Love, Kindness, Understanding and Respect - Always make forward progress

Superficial fanny kissing friends are a dime a dozen, a TRUE FRIEND however is PRICELESS


- V M
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Marie

I'm staying with injectables, though from a different pharmacy.  I really wasn't given a date by which I would be back to normal from my doctor.  I was simply told "quickly" and a request for further explanation is still forthcoming hopefully.
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Alainaluvsu

That is a total nightmare hon, I'm so sorry :(

I hope they get to the bottom of this. I have a hard time understanding why an attorney wouldn't be all over this. What state are you in (out of curiousity)? As someone above suggested, this might be a criminal matter. You may want to contact your local PD, they may investigate this and come up with a reason for arrest, and if so hopefully the DA prosecutes. I really really hope there are no long term effects. Keep us up to date, this might not be the only time anybody has or ever will run into this!
To dream of the person you would like to be is to waste the person you are.



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Marie

The pharmacy I deal with is on the other side of the country.  I live in Delaware.

Attorneys are not interested in my case because they do not feel a jury will understand or be moved by the nature of my injuries as I have stated them.

I'm still waiting for direction from my doctor, she has been notably silent for several days after I asked her to provide me with a prognosis.  Based on her response I may attempt to recontact a few of the lawyers who were tentatively interested, but not willing to get involved at the time of our discussion.

I've been looking for Black and White laws on this type of mistake but have been coming up short.
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erocse

Wow!! I am so glad you posted this. I would have never checked the ampules. It made me run right upstairs and check mine.

  Erocse
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Janet_Girl

It sounds as though the pharmacy in question is in violation of state and federal laws.  I would suggest contacting Lambda Legal.  Someone in that pharmacy is guilt of misdirecting medications. 
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pebbles

Gosh that's horrendous. Holy ->-bleeped-<- I had no idea they might do something like that. You were at a serious risk of death from that ->-bleeped-<--up.

It sounds so suspect I wouldn't be surprised if it was a malicious act impossible to prove tho. if I was I'd so LOVE to "infect" this individual with massive hormone levels of the opposite sex & remove there gonads lets see how they enjoy the feeling of having there body mutate before there eyes nobody deserves that more than them.

It falls under the Legal Category of Prescription "Errors" You can sue for damages And put in a complaint of malpractice as it was a life threatening "blunder" so yeah you ought to be easily reimbursed I don't know why the lawyers won't take it.
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V M

The defense will counter that the ampules was labeled and that you are responsible for checking your own med.s

This is the reason most lawyers wont bite... But a good lawyer will be able to overcome such an argument and win your case

Basically the lawyers that wont bite on it are admitting that they don't have the experience or knowledge to win your case

I think you should pursue it further until you find the right lawyer for the job
The main things to remember in life are Love, Kindness, Understanding and Respect - Always make forward progress

Superficial fanny kissing friends are a dime a dozen, a TRUE FRIEND however is PRICELESS


- V M
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Marie

Thanks Janet I will contact Lambda Legal on Monday and post my results here.
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Alainaluvsu

How many orders did they fill before you finally noticed? If it's more than 1 order, I'd suspect criminal negligence. I just couldn't see a responsible pharmacist misfilling that order twice. Plus, what are the chances that somebody is going to mix estrogen up with testosterone on accident? And enough of them to fill you for as long as you took them. This was no stocking error.

Also, regardless if it's across the country, google the cities PD and call them. This sounds like possible attempted manslaughter to me. You might not be the only victim either. This is serious and could have (and may have still) done serious damage to your health.
To dream of the person you would like to be is to waste the person you are.



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lilacwoman

[quote author=Alainaluvsu
Also, regardless if it's across the country, google the cities PD and call them. This sounds like possible attempted manslaughter to me. You might not be the only victim either. This is serious and could have (and may have still) done serious damage to your health.
[/quote]

Switching medications is basically the same as the Tylenol case?   Admittedely massive doses of T perhaps won't kill directly but the anguish of reverting to male could make a person suicidal.
Is there any research into the effects of massive T apart from the horror stories of the bodybuilders?

On a practical side I had this reversal of my femaleness when I took Progesterone along with E and in just 3 weeks went hairy and flat chested.  Might have been a trick of my endocrine system but I had no way of checking and eventually the E got me back to where I was before.
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AmySmiles

Quote from: lilacwoman on September 25, 2010, 03:17:37 AM
Is there any research into the effects of massive T apart from the horror stories of the bodybuilders?

I was told by my therapist at one point that having a high T level (over 1000 maybe?) for an extended period can cause endocrine system problems.  She had a patient who was forced to be on medication for the rest of their life because it.  This came up over 6 months ago so I can't remember any details, but it's probably worth mentioning.
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JasminB

Wow thats a horrible experience, so sorry to hear :( My heart really goes out to you as i would be shattered in similar circumstances.

That being said I have hope you will find someone to take your case and it sounds like its going to be easy to get a settlement. Perhaps with a pharmaceutical company cheque FFS will become an option.
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Marie

FFS? :( I think I'd rather have my original voice back.
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