Susan's Place Transgender Resources

I really don't want to make this post but I feel like I should let you know.

I have an issue with my eyes. I thought it was just an infection but it might be something far more serious. In a long list, lol. My Laptop monitor is on its lowest brightness and it still is painful most of the time. I have an appointment with the hospital next week. I have had photosensitivity ever since I was in the navy. Have to wear sunglasses most of the time outside or I get massive headaches. But it's been worse lately. The site hurts my eyes. it's too bright.

If I am not here for a good long while, that's why. I am trying to get it sorted but... I am held together with spit and duct tape at this point, so... yeah. If I don't get another chance, thank you for the site. <3

Quote from: Sephirah on September 28, 2024, 04:04:06 PMI really don't want to make this post but I feel like I should let you know.

I have an issue with my eyes. I thought it was just an infection but it might be something far more serious. In a long list, lol. My Laptop monitor is on its lowest brightness and it still is painful most of the time. I have an appointment with the hospital next week. I have had photosensitivity ever since I was in the navy. Have to wear sunglasses most of the time outside or I get massive headaches. But it's been worse lately. The site hurts my eyes. it's too bright.

If I am not here for a good long while, that's why. I am trying to get it sorted but... I am held together with spit and duct tape at this point, so... yeah. If I don't get another chance, thank you for the site. <3

I hope they can figure out and fix what may be wrong with your eyes.
Would a screen filter help?  It can darken the screen and make it visible only within a specific angle range.  Something like those dark license plate covers.

Wishing you the best for sure.

Hugs,

Chrissy

So sorry to hear that, Lauren. You will truly be missed. As a long-time member, your experience and insight have been a great inspiration for many of us. But I understand the problems with vision issues. Hopefully, the hospital will figure it out and the fix will be a simple one.

My thoughts and prayers are with you,

Your friend,

Lori Dee

Thank you. I kind of always knew it was a downward spiral. 10 years ago they told me I wouldn't be alive for another 18 months. But meh. Here I am. And probably this will be sorted but it has me worried because it's been getting worse. Don't worry okay? It's probably all good. But I just wanted to say in case it isn't, and I can't be here anymore. Thank you for the site, and for everyone on it.

I'll probably take a break for a few weeks in case I have to go round with lassie dragging me off to abandoned wells while they pump me full of medication to fix whatever it is. It's probably nothing, and I'm hoping it isn't. But... yeah I'm kind of a bit scared at the moment, not gonna lie. :-\

Here is the test to find whether your mission on Earth is finished: if you're alive, it isn't.

Richard Bach

And we aren't done with you yet, so hang tough, sister!  :-*

Hugs!

Sephriah,

I do not know if you believe in prayer but I will pray for your well being and the wisdom of your medical optical team.  Intercessory prayers are good.

I realize you are scared.  That is a natural result of your concern about all of this.  Try to be positive about having good results.  We cannot ignore the possibility of unpleasant outcomes of course, but we can be hopeful for very good results.  Medical science has improved greatly over time.

Hugs,

Chrissy

Thank you, both. Chrissy, I don't.. personally. But I don't discount the possibility and that other people do, and that maybe it's a thing, so... thank you.

I hope you are right, Lori. Honestly... I don't want sympathy or anything okay? That makes me feel really... awkward. I am sure it will be okay and that I'll be apologising for making this thread in a few weeks. But my therapist insists that I need to not be like... well.. as I would put it "a camel's arse in a sandstorm." To talk about stuff because I am closed off most of the time. I am there for others but I never talk about my own stuff. Which is true. Because... I don't know. I always feel everyone else is more important. That I don't really matter. I dunno.

And this place means a lot to me. I might be slightly dosed up on painkillers at the moment so my eyes are probably screaming but I don't care. I can't feel it. Most of my internet stuff is like the darkest I can get, lol. Susan's is the light in the darkness. :D

One more thing..



Some tablets and screens have a DARK MODE.  Maybe that will work for you, if available to you.



Chrissy

Quote from: ChrissyRyan on September 28, 2024, 04:44:56 PMOne more thing..



Some tablets and screens have a DARK MODE.  Maybe that will work for you, if available to you.



Chrissy

Yeah I did ask Danielle if the site had something like that. It doesn't. I use that for most everything else. Doesn't matter though hon. The needs of the many... :)

Quote from: Sephirah on September 28, 2024, 04:46:16 PMYeah I did ask Danielle if the site had something like that. It doesn't. I use that for most everything else.

No, the device itself is what I was talking about.  Some Apple device screens have that dark mode.

Quote from: ChrissyRyan on September 28, 2024, 04:48:55 PMNo, the device itself is what I was talking about.  Some Apple device screens have that dark mode.

I only use my laptop for everything I do online. I am not one of these device people who have an alexa whispering in their ear. :)

It's okay, honestly. I am sorry for making the thread. I'll be likely back annoying you all in a while. <3

Sephira, I am so sorry to hear that!  Health problems are never good, but to have problems with your eyes must be particularly worrying.  I hope they are able to track down the problem and treat it.

I will miss your level-headed support and wisdom for the time you are away.  Please come back when and if you are able to.  I wish you all the best as you face this challenge.

Thank you, Kathy. I miss you around here, girl!!! Not gonna lie. You were a force of nature back in the day. <3

I hope you get sorted, I may not comment much on your posts as over my numpty head but I know you will be missed. XXXX

Praying for you.

 

Lot's of us do believe Sephirah, and we are prying for you.  We are not giving up on you.

Paulie,

Quote from: Sephirah on September 28, 2024, 04:04:06 PMI really don't want to make this post but I feel like I should let you know.

I have an issue with my eyes. I thought it was just an infection but it might be something far more serious. In a long list, lol. My Laptop monitor is on its lowest brightness and it still is painful most of the time.

Sephirah, is it painful if you look directly at a light and then the pain eases if you look away? Also, do you have any red looking blood vessels in a segment of the white of your eye, rather than the whole eye being painful? Especially, if you look at the mirror in a dark room and then shine a light toward your eyes, do both your pupils constrict equally?

Will pray for you today.

I am so sorry. Words can't really express the emotions.


If you have not already done so, you might want to look into a screen reader. I used to test a product I worked on with both "Jaws" and "NVidea". There are options.

~Jenn

I hope they are able to find something which helps you, Sephirah. Although you will definitely be missed, your personal health and welfare come first. We will be here for you, as you will always be with us.

Love always -- Jess

I wish the doctor will find a solution for your eye problem. Nowadays laser surgery or replacing the eye lens with an artificial one is popular here. Some of my friends in their 50s underwent it, saying they regained their eyesight.

barbie~~

Okay, so, update. I have "something" behind my right eye. Something making my sinuses go haywire. Making me like Gizmo from the Gremlins movies. "Bright Light! Bright Light!!"

The hospital can't work out what it is. I currently look like a pirate, lol. I have an eyepatch. I didn't even know those were a real thing lol. They took more pictures of my head than an OnlyFans primadonna on a selfie binge.

One doctor thinks it's an allergic reaction to something, another doctor thinks it might be a brain tumor. Go NHS! I kind of feel like it's more the first than the second.

But anyway, just wanted to let you know. I don't deserve this. I feel better at the moment. Not okay, but better. You folks always... this is why the site is what it is. I have even more medication, because yay? And have to go for more probing tomorrow. I don't deserve the level of... sheer awesomeness this site always seems to encourage.

Thank you. <3

Lauren. X

@Sephirah
Dear Sephirah:

My prayers are going "up" for YOU and for your doctors so that you
will soon be free of your troubling health situation....

... I look forward to reading your updates as you feel comfortable
sharing.

I have no doubt that everyone on the Forum is keeping you in our
uplifting thoughts. 

Many HUGS, ❤️❤️❤️❤️❤️❤️
Danielle [Northern Star Girl]

Quote from: Sephirah on October 03, 2024, 02:45:03 PMOkay, so, update. I have "something" behind my right eye. Something making my sinuses go haywire. Making me like Gizmo from the Gremlins movies. "Bright Light! Bright Light!!"

The hospital can't work out what it is. I currently look like a pirate, lol. I have an eyepatch. I didn't even know those were a real thing lol. They took more pictures of my head than an OnlyFans primadonna on a selfie binge.

One doctor thinks it's an allergic reaction to something, another doctor thinks it might be a brain tumor. Go NHS! I kind of feel like it's more the first than the second.

But anyway, just wanted to let you know. I don't deserve this. I feel better at the moment. Not okay, but better. You folks always... this is why the site is what it is. I have even more medication, because yay? And have to go for more probing tomorrow. I don't deserve the level of... sheer awesomeness this site always seems to encourage.

Thank you. <3

Lauren. X

I'm glad you are getting it sorted. Hopefully, it will be something that can be easily treated with antibiotics. Embrace the eyepatch. I had to wear one for two weeks due to double vision. You picked the right time of year. Halloween is coming, so just learn to say "Arrrgh" a lot, and no one will notice. (Subtle attempt at humor). I know it sucks, but hang tough, sister!

Well, the good news is that the doctors agree something is wrong and it isn't just in your head, although it really is in your head. Hopefully the eyepatch is making things a little more bearable. Have faith they will get this sorted out, and try not to worry about it. Worrying won't change anything, it just reduces your ability to enjoy life.

You don't deserve this, and hopefully the doctors will be able to get it resolved soon.

Love always -- Jess

Quote from: Lori Dee on October 03, 2024, 03:11:22 PMI'm glad you are getting it sorted. Hopefully, it will be something that can be easily treated with antibiotics. Embrace the eyepatch. I had to wear one for two weeks due to double vision. You picked the right time of year. Halloween is coming, so just learn to say "Arrrgh" a lot, and no one will notice. (Subtle attempt at humor). I know it sucks, but hang tough, sister!

I asked for antibiotics like 5 times from my GP, but they're terrified of prescribing them if you don't have a growth they can poke. They literally have leaflets in my local medical centre trying to scare people into avoiding them, so they don't get so-called "Superbugs" that get immune to them.

"Make Antibiotics Great Again! Suffer in silence!"

I mean I can kind of understand that but I have never taken them in my life before. It's one of the few things I've never had to deal with, lol.

Wish I could rock this, lol. Sadly not...

(https://i.pinimg.com/originals/2f/36/6a/2f366ab01ef28a7b5fe68a5dd0599d1c.jpg)

Quote from: Jessica_Rose on October 03, 2024, 03:17:08 PMWell, the good news is that the doctors agree something is wrong and it isn't just in your head, although it really is in your head. Hopefully the eyepatch is making things a little more bearable. Have faith they will get this sorted out, and try not to worry about it. Worrying won't change anything, it just reduces your ability to enjoy life.

You don't deserve this, and hopefully the doctors will be able to get it resolved soon.

Love always -- Jess

Thank you, Jess. Yeah it's definitely in my head... somewhere! Good thing I'm left-handed. ;D

Quote from: Sephirah on October 03, 2024, 02:45:03 PMOkay, so, update. I have "something" behind my right eye. Something making my sinuses go haywire. Making me like Gizmo from the Gremlins movies. "Bright Light! Bright Light!!"

The hospital can't work out what it is. I currently look like a pirate, lol. I have an eyepatch. I didn't even know those were a real thing lol.

First, hugs and all the encouragement I have to give. Second, it may take a few days to figure out, so its great you are being investigated. Once they've started, they'll have to finish!

Make sure you understand what they are telling you and if they use medical-ese ask them to translate. Communication is all here, especially once they've started start coning in on the diagnosis. At that point, getting them to write stuff down for you helps too because the amount of content can be overwhelming.

Quote from: Sephirah on October 03, 2024, 03:23:25 PMWish I could rock this, lol. Sadly not...

I love the bling! Mine was just a boring old cloth-covered piece of cardboard that I got at the pharmacy.

I know what you mean about antibiotics. In the Army, they gave me penicillin. I am not allergic and it works. That was over thirty years ago. Now if I need something, which is very rare, they give me Amoxicillin. I tell them to stop playing around with my health and give me the good stuff. I know it works, I am not allergic to anything. But no. Idiots don't use their heads. You can't have Superbugs develop immunity to something they never prescribe. They can't develop anything when they are dead. Kill the dang bug!

Quote from: TanyaG on October 03, 2024, 03:29:14 PMFirst, hugs and all the encouragement I have to give. Second, it may take a few days to figure out, so its great you are being investigated. Once they've started, they'll have to finish!

Make sure you understand what they are telling you and if they use medical-ese ask them to translate. Communication is all here, especially once they've started start coning in on the diagnosis. At that point, getting them to write stuff down for you helps too because the amount of content can be overwhelming.

Thank you, Tanya. :) Yeah, you're right. Doctors speak their own language. It's like Vulcan but more icy. ;) The Haynes Manual of the human body, lol.

I'll be okay. Honestly. The outpouring of support here is something else. I don't deserve you folks. I am usually the one offering it, but... to see it from the other side... you are all very special. Thank you.

Quote from: Lori Dee on October 03, 2024, 03:34:23 PMI love the bling! Mine was just a boring old cloth-covered piece of cardboard that I got at the pharmacy.

I know what you mean about antibiotics. In the Army, they gave me penicillin. I am not allergic and it works. That was over thirty years ago. Now if I need something, which is very rare, they give me Amoxicillin. I tell them to stop playing around with my health and give me the good stuff. I know it works, I am not allergic to anything. But no. Idiots don't use their heads. You can't have Superbugs develop immunity to something they never prescribe. They can't develop anything when they are dead. Kill the dang bug!

Yeah so is mine, Lori, lol. They have no idea of fashion, hahaha.

I get the whole resistance thing. Hospitals in the UK are like... you take your life in your hands these days. You can come out sicker than when you went in. But that's a symptom of how under pressure it all is. For every downside you have in the US... private healthcare isn't trying to deal with the weight of the world. You kind of have problems with every solution.

Back when I was a kid, though... the doctor used to just be like "Yeah here's some antibiotics. Come back in two weeks if it doesn't clear up." My brothers both had them. Now, you have to have green stuff probably pouring out of every orifice, I dunno. That's probably a help and a hinderance.

At least I know I'm not going crazy and I'm not just allergic to the internet, lol. :)

Will let you know more when I know more.

Dunno what I'd do without this place and you fine folks. As much as I take breaks, Susan's is my home. The best people seem to find their way here. :P

Quote from: Sephirah on October 03, 2024, 03:48:32 PMI get the whole resistance thing. Hospitals in the UK are like... you take your life in your hands these days.

Antibiotic resistance is worldwide - that's the problem. But saving them for when it really matters has saved at least one friend of ours, so there are benefits. Whatever they say about the NHS, when you have something that really matters, it really delivers. So lets face this with hope.

Quote from: TanyaG on October 03, 2024, 04:00:32 PMAntibiotic resistance is worldwide - that's the problem. But saving them for when it really matters has saved at least one friend of ours, so there are benefits. Whatever they say about the NHS, when you have something that really matters, it really delivers. So lets face this with hope.

I hope so. :) And I see your point. Thank you.

Go for this. Keep the faith. We are with you.