Community Conversation => Intersex talk => Topic started by: Melissa on June 17, 2006, 02:41:28 AM Return to Full Version
Title: Mild Androgen Insensitivity Syndrome
Post by: Melissa on June 17, 2006, 02:41:28 AM
Post by: Melissa on June 17, 2006, 02:41:28 AM
I've been doing some research about myself and from what I have concluded is that I have Mild Androgen Insensitivity Syndrome. This is why I feminized so quickly. With MAIS, I am still fertile and was able to have kids, but also have the other symptoms. In other words, my body was not completely masculinized ever because the receptors for testosterone were not quite working right. This resulted in having a much more feminine appearance and um, underdeveloped equipment. So, this explains the physical appearance of my body.
However, in my research it appears that this is independant to transsexualism and therefore, I would be having both, which in my opinion is lucky, rather than having just one or the other. Now, thinking back to my other thread that theorizes that TS and IS may be linked, I wonder how many others may have experienced the same set of conditions as me. Looking feminine does not qualify, but undermasculinized (small) genitals do.
Melissa
However, in my research it appears that this is independant to transsexualism and therefore, I would be having both, which in my opinion is lucky, rather than having just one or the other. Now, thinking back to my other thread that theorizes that TS and IS may be linked, I wonder how many others may have experienced the same set of conditions as me. Looking feminine does not qualify, but undermasculinized (small) genitals do.
Melissa
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Jillieann Rose on June 17, 2006, 08:28:39 AM
Post by: Jillieann Rose on June 17, 2006, 08:28:39 AM
Hey Melissa were can I find out about Mild Androgen Insensitivity.
I may be one too.
:)
Jillieann
I may be one too.
:)
Jillieann
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Melissa on June 17, 2006, 10:04:57 AM
Post by: Melissa on June 17, 2006, 10:04:57 AM
Google it (http://www.google.com/search?num=100&hl=en&lr=&q=%22Mild+Androgen+Insensitivity+Syndrome%22). It's difficult to find a lot of information about it.
Melissa
Melissa
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Kaitlyn on June 17, 2006, 11:01:56 AM
Post by: Kaitlyn on June 17, 2006, 11:01:56 AM
I have been a little bit curious about this for a while. I have pretty sparse facial hair (I couldn't grow a mustache for the life of me, but unfortunately there's still no question that it's 'there'). I would say that I am definitely 'undervirilized' and have a somewhat unusual fat distribution, especially compared to how little I weigh. Of course, part of it is probably because I'm still relatively young (20-ish)... maybe it's wishful thinking, but sometimes I wonder.
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Melissa on June 17, 2006, 11:39:08 AM
Post by: Melissa on June 17, 2006, 11:39:08 AM
A lot of it depends on if you are fertile or not. If you are not fertile, you may have partial AIS, which is more severe. However, since I was (although I suspect this may have not been the case shortly before even starting HRT) fertile (i.e. had kids), I would only have a mild case. I am guessing that because you are in your early 20's, you have not even attempted to have children yet. A sperm check would really be the only way to test that.
I did have little body hair from the waist up and sparse facial hair. Also, a number of other things, but I won't get into that.
Melissa
I did have little body hair from the waist up and sparse facial hair. Also, a number of other things, but I won't get into that.
Melissa
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: stephanie_craxford on June 17, 2006, 01:40:51 PM
Post by: stephanie_craxford on June 17, 2006, 01:40:51 PM
Quote from: Jillieann on June 17, 2006, 08:28:39 AM
Hey Melissa were can I find out about Mild Androgen Insensitivity.
I may be one too.
:)
Jillieann
There is an article in Susan's Wiki found here on the Androgen insensitivity syndrome (https://www.susans.org/wiki/Androgen_insensitivity_syndrome) and while it doesn't talk about a "Mild" form there is a section on Incomplete or partial AIS.
It may help add to your research, then it may not :)
Steph
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Jillieann Rose on June 17, 2006, 02:00:11 PM
Post by: Jillieann Rose on June 17, 2006, 02:00:11 PM
Thanks Steph.
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: buddJT on July 14, 2006, 10:55:33 AM
Post by: buddJT on July 14, 2006, 10:55:33 AM
QuoteI've been doing some research about myself and from what I have concluded is that I have Mild Androgen Insensitivity Syndrome. This is why I feminized so quickly. With MAIS, I am still fertile and was able to have kids, but also have the other symptoms. In other words, my body was not completely masculinized ever because the receptors for testosterone were not quite working right. This resulted in having a much more feminine appearance and um, underdeveloped equipment. So, this explains the physical appearance of my body.
However, in my research it appears that this is independant to transsexualism and therefore, I would be having both, which in my opinion is lucky, rather than having just one or the other. Now, thinking back to my other thread that theorizes that TS and IS may be linked, I wonder how many others may have experienced the same set of conditions as me. Looking feminine does not qualify, but undermasculinized (small) genitals do.
Melissa
This actually describes me very well. I do think it is independent of Tsism for me because I never felt I needed to change myself through surgery nor did I feel I was trapped in the wrong body growing up. But something inside me tells me that I am not your average male.
I know if I was to go on HRT, I will respond to it very easily since many of the traits are already in place, fat distribution, wide hip, breast growth, small penis and etc.
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Melissa on July 14, 2006, 11:05:10 AM
Post by: Melissa on July 14, 2006, 11:05:10 AM
Great example. I think most people who are affected by it are non-TS. I just happened to have both.
Melissa
Melissa
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: buddJT on July 14, 2006, 11:36:08 AM
Post by: buddJT on July 14, 2006, 11:36:08 AM
QuoteI think most people who are affected by it are non-TS. I just happened to have both.
But the questions is at what point does it become Tsism? Sometimes I feel like I am in denail that I may actually be a TS person.
I was rasied in a pretty conservative country and family so I didn't really know about this well into my late teens. Would it be possible for me to accept this if I had known say when I was 11 and started showing signs of gyncomastia? Maybe or Maybe not who knows.
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Melissa on July 14, 2006, 11:40:42 AM
Post by: Melissa on July 14, 2006, 11:40:42 AM
Like I said, they are separate. I knew I was TS before I realized I had MAIS. Most people just don't need to do anything about it. If you believe that you could possibly be TS, then start researching the subject and see a therapist if possible. I think just the fact that you have joined a TG forum speaks something.
Melissa
Melissa
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: buddJT on July 14, 2006, 12:23:38 PM
Post by: buddJT on July 14, 2006, 12:23:38 PM
I don't think it is as clearly defined as you make it out to be. But that's just my opinion.
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Melissa on July 14, 2006, 12:26:38 PM
Post by: Melissa on July 14, 2006, 12:26:38 PM
Perhaps not.
Melissa
Melissa
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: M-F on October 17, 2006, 04:34:35 PM
Post by: M-F on October 17, 2006, 04:34:35 PM
Melissa, have you researched Klinefelter Mosaic syndrome?
You have stated that you are not XXY because you have fathered children. But there are some different Klinefelter syndromes that are XXY & can father children. I have a FEW active active sperm & and 47-XXY
You & I have many simularities.
I am mainly a man with large breasts. The teen years were very rough.
I have no desire now to be 100% male or female
XXMan
You have stated that you are not XXY because you have fathered children. But there are some different Klinefelter syndromes that are XXY & can father children. I have a FEW active active sperm & and 47-XXY
You & I have many simularities.
I am mainly a man with large breasts. The teen years were very rough.
I have no desire now to be 100% male or female
XXMan
Title: Re: Mild Androgen Insensitivity Syndrome
Post by: Melissa on October 17, 2006, 04:56:50 PM
Post by: Melissa on October 17, 2006, 04:56:50 PM
Yes I have researched it. I have doubts about that for others reasons now too. For instance, those with Klinefelters tend to be tall and I'm actually shorter than most of my family, plus I don't recall having gynecomastia at puberty as XXY typically does. Mine actually occurred right after accepting who I was. I am still researching if it may be more that some form of AIS, such as a true IS, with parts of each. I'll need to get tested at the doctor though to be sure. I will save a karotype only if I really suspect it is at my gene level, since the test will probably cost me like $600. Besides, I would rather put that much towards surgery. I want to check if I'm true IS sonce that would severely change the kind of surgery I would get.
Melissa
Melissa