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I would think you'd want it to get checked out. My first guess would be some sort of androgen insensitivity (and maybe the elevated levels would come from it not getting taken up and excreted or converted? But there are a number of conditions I'm aware of, and probably even more that I'm not aware of that could lead to this?

As you point out, the fact that you don't/didn't respond to those levels seems like one reason the caregivers at the time might have ignored it, or assumed perhaps you were self-medicating? I'm sure the diff Dx is more complicated than I'm personally aware of. Maybe others will comment on this... I have read some studies that have suggested, for at least some of us, that androgen insensitivity is something some of us happen to be "blessed with" among those who have been studied most closely? Easy to jumble this stuff up, and docs have a tendency to ignore lab values that don't seem to show any physical signs, unless they're something that can go silent but lead to major problems down the road.

If they were assuming you were on track for orchiectomy and SRS at some point, they might just have seen it as a curiosity to note, but not as something they felt they needed to discuss with you in depth, if it was clinically of no consequence?

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All I can suggest is that maybe (and your anxiety about speaking about it directly could be a factor?) -- maybe they were not aware of or thinking about the possibility of insensitivity? Granted, I wasn't there, and can't see you in person... just thinking that there are many ways you might have presented the issue, given the sort of anxieties and fears we commonly face?

Quote from: girl you look fierce on January 22, 2013, 04:41:12 PM
Yeah I'm not really sure about what the professional people thought, to them I was just getting tested for "low male T" so I don't know.

Now that I actually am getting GID treatment by an endo I'm gonna ask her if she knows what's up, kinda starting to wonder if it's some kind of AIS, apparently a symptom of that is high T because of no feedback from the body, but that sounds hart to test for.  On the other hand if I had it I would like to know I guess. 

But more than anything I just hope I can take enough spiro to get that T down... because it seems like I am already taking a lot and it only got me to a normal range

I think they've done studies where after a certain amount of spiro it stops doing any more. I'd say the easiest option though not the cheapest would be an orchi. That would get your T down real quick 

If serum testosterone means free, un-utilized testosterone in the system, it could indicate the receptors are adequately blocked.  But that is sheer speculation.

Mild AIS?