I'm not posting here to let off angry steam, but I'm unsure of what my next steps are here. I mentioned over in my blog that there's a tear in the labrum of my hip, with a possible labral tear in my right shoulder as well. My left hip has a combined FAI, and my right hip has a cam impingement but not a pincer impingement like on the left side. When I go in to the doctor on Monday, they will administer a combination of lidocane and cortisone into the hip joint via syringe. Should the pain diminish enough that there is a noticeable improvement in my quality of life, I will undergo surgery to have the tear(s) repaired, as well as having the femur shaved to reduce the risk of another tear. Unfortunately, my hip socket cannot be fixed and will remain at the odd angle it is tilted at.

There is the possibility of the labrum of my right shoulder being torn in addition to the hip problems. The joint exhibits multi-directional instability, however, giving any surgery a much lower success rate because the shoulder may be re-injured as soon as I pull my arm over my head, an action that without fail subluxates the humerus.  The same can happen with my hipbone, though we hope not.

Several doctors are near positive that I have a type of EDS, which would explain the laxity in my joints. If so, considering the age at which I am experiencing the onset of major issues doesn't give a nice prognosis. In addition, my concern is that a certain diagnosis from a doctor will sent a red flag up to the insurance company, who may refuse to authorize my hip surgery if they see that in my file and deem it not worth the effort and money of trying to repair.

I don't like to talk about the things that ail me because others have it so much worse, but typing it out is acting as a form of distraction for the pain. Currently, it is making me feel nauseated and dizzy, and I am unsure of where all of this leads me. So far, however, the path isn't looking good.

*gentle hugs*

*touches hand*

Hoping for the best.

Thank you, Beth Andrea. It wouldn't be too terrible if I weren't allergic to any sort of OTC pain medication. I shouldn't react to the lidocane, but we're not even sure if I can have cortisone. Could be a fun experience like with the contrast dye they said nobody is allergic to, or the anesthesia they also said nobody is allergic to. Hopefully not, because that kind of defeats the purpose of the test 

Ah well, I'm sure some of this is my fault. Didn't mention the hip injury I apparently sustained just by crossing my legs while sitting on a windowsill with a radiator until three years later when the pain got really bad, and then spent the next three convincing her that it was actually a problem and not just me attention-seeking. Hah, at the first sign of a sniffle she always says, "Don't even think about it, you're going to school". It's probably the old-school Italian in her speaking. Now I just need to find a way to cure these ailments with homemade chicken soup.

I'm kind of bumping this topic instead of making a new one, sorry for the double post.

They did an MRI of my back and found two herniated discs. Not severe ones, but they're there. I don't even know what's going on in my shoulder, and quite frankly I don't want to know anymore. Yet I need to, like how you shield your eyes to avoid seeing a terrible car crash but then take your hands away because you have to look. Now I'm being told not to get surgery, and doctors keep pawning me off onto other doctors. One wants to shoot up my back, one wants physical therapy and other painkillers, and the one who wanted surgery now doesn't want to touch my case anymore. They were certain I have EDS, and now the doctor who said it says he doesn't think so. Didn't give a reason for it either, considering that I have so many symptoms of it.

I don't understand why they can't just be straightforward about things...this isn't NCIS, this is my damned health we're talking about. I can't even look for myself because the images are on a CD, I don't have a fully put-together laptop with a disk drive save for one missing a charger, the geniuses at the place I got the test done neglected to send the images to my doctor who is busy anyway, and I'm still a kid so I can't access my own (partial) records online until my mother signs a proxy form the next time we go to a doctor within NYU.

I don't want to be bounced around anymore. It felt like we were so close to finding answers...and then they slipped away, danced out of reach. I hate this.

Quote from: chipper on September 15, 2013, 03:40:54 PM
This post is old, sorry for reviving it.
I have a friend with EDS, so this posting caught my eye.
How is everything coming along?
Hope you are well.

Thank you, and it's all good. I'm getting by, my physical therapist was out for a week after my initial appointment but I go back tomorrow. Starting to have issues with my left shoulder but maybe this can be nipped in the bud with sufficient work.

If you don't mind me asking, what type does your friend have, and how are they doing?

I've heard about someone in Boston, it'd be quite the drive but maybe after this school year we'll look into it. My left shoulder has a bicep sprain according to my physical therapist and is doing alright, but everything else has been hurting something fierce lately. Not a good thing considering I have to play my instrument for some rather important people in a few days (of course, I've come down with something on top of it because why not) and that requires my shoulder working.

And yeah, people don't get how that is. It sounds like your friend has Vascular Type EDS, which was formerly called Type IV. Not a good type to have. I have no clue which type I have, but the hypermobility is most definitely there along with the damage caused by it, as well as the bruising. My sympathies are with her, though.