Susan's Place Logo

News:

Based on internal web log processing I show 3,417,511 Users made 5,324,115 Visits Accounting for 199,729,420 pageviews and 8.954.49 TB of data transfer for 2017, all on a little over $2,000 per month.

Help support this website by Donating or Subscribing! (Updated)

Main Menu

I have no testis

Started by Tatyana, October 08, 2013, 11:18:58 AM

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

JLT1

Well,
I'm nearing the end of a 20 month process with an intersexed condition.   I hope I can share some do's and don'ts. 

1.  Urologist – get a high quality MRI looking for both ovaries and testicles.  It should also be able to see a prostate and/or a   uterus as well as other female anatomy.  Make sure the person who is reading the MRI knows the testicles are either missing or aren't where they should be.

2.  Karyotype – needs at least 30 blood cells, not the standard 3.  It needs to be statistically relevant to rule out or rule in chimerism.   Even then, getting that one diagnoses is tricky.

3.  If you do have female parts, cool.  However, that first visit to a gynecologist is really odd when you are missing the vagina so call first with what the problem is and then make the appointment if they feel capable of seeing you.

4.  There are 12 +/- intrersexed conditions that can produce the symptoms you describe.  Find out which one, exactly and then go accordingly. (Your description is lacking in detail.)

5.  Don't settle for the standard DNA analysis if that is needed.  Send me a message, I have a list of labs that actually can separate out a mixture of DNA s from a single source.

6.  If the doctors put it into the system correctly, there is little or no reason why you're insurance doesn't cover virtually anything you need.  I got FFS, SRS (such as it is) and breast augmentation covered (if I need it).

7.  There are a number of good hospitals in the US and abroad for intersexed conditions.  However, there are far more that are bad.  Be careful.  Check them out. I can send you some contacts from very good people (mainly Stanford) who will help you find the right doctors or hospital to go to.  Send me a message if you would like.

8.  If the really suspect chimeraism, go to a dermatologist and have them shine a UV light on you – it's correct about 90% of the time.

It is quite probable that you are more female than male.  You are you and you are unique.  You are also quite beautiful.  Please, keep us updated.
To move forward is to leave behind that which has become dear. It is a call into the wild, into becoming someone currently unknown to us. For most, it is a call too frightening and too challenging to heed. For some, it is a call to be more than we were capable of being, both now and in the future.
  •  

Tatyana

Quote from: izzy on October 08, 2013, 12:56:14 PM
Your face looks amazingly as female without feminizing effect of estrogen. So will they investigate why. Its good because you may only need a low dose of estrogen if you wish to go further or none at all if you wish.

Wow! So does yours.  Are you trans?
  •  

Tatyana

Quote from: JLT1 on October 08, 2013, 03:42:33 PM
Well,
I'm nearing the end of a 20 month process with an intersexed condition.   I hope I can share some do's and don'ts. 

1.  Urologist – get a high quality MRI looking for both ovaries and testicles.  It should also be able to see a prostate and/or a   uterus as well as other female anatomy.  Make sure the person who is reading the MRI knows the testicles are either missing or aren't where they should be.

2.  Karyotype – needs at least 30 blood cells, not the standard 3.  It needs to be statistically relevant to rule out or rule in chimerism.   Even then, getting that one diagnoses is tricky.

3.  If you do have female parts, cool.  However, that first visit to a gynecologist is really odd when you are missing the vagina so call first with what the problem is and then make the appointment if they feel capable of seeing you.

4.  There are 12 +/- intrersexed conditions that can produce the symptoms you describe.  Find out which one, exactly and then go accordingly. (Your description is lacking in detail.)

5.  Don't settle for the standard DNA analysis if that is needed.  Send me a message, I have a list of labs that actually can separate out a mixture of DNA s from a single source.

6.  If the doctors put it into the system correctly, there is little or no reason why you're insurance doesn't cover virtually anything you need.  I got FFS, SRS (such as it is) and breast augmentation covered (if I need it).

7.  There are a number of good hospitals in the US and abroad for intersexed conditions.  However, there are far more that are bad.  Be careful.  Check them out. I can send you some contacts from very good people (mainly Stanford) who will help you find the right doctors or hospital to go to.  Send me a message if you would like.

8.  If the really suspect chimeraism, go to a dermatologist and have them shine a UV light on you – it's correct about 90% of the time.

It is quite probable that you are more female than male.  You are you and you are unique.  You are also quite beautiful.  Please, keep us updated.

Thank you for that list of very interesting information.  A lot of things to think about.  Up to this point I thought of myself as just a stereotypical girl with a penis.  Sort of a joke.  My self esteem wasn't that great but now I'm starting to feel better about things.  I hope they find some lady parts inside me.  That would fantastic but I'm just going to wait and see where this takes me.  My PC doc is setting up an appointment with a specialist.  Hopefully I won't have to wait too long. 
  •  

Northern Jane

If the doctor couldn't find testes, it is worth having a really thorough examination by a specialist and probably an MRI to find out that you DO have. If you have parts of the female reproductive system it could have a huge effect on your future. Were you tested for estrogen? You may have ova-testes or even non-functional ovaries.

Welcome to the world of Intersex!  ;D
  •  

LizMarie

Intersex medical issues are covered by insurance in the US much more frequently than transgender medical issues. Hopefully whatever policy you have will help you get things corrected so you can live your life as you should. I'm sure all of this must be quite trying and confusing at times.

*hugs*
The meaning of life is to find your gift. The purpose of life is to give it away.



~ Cara Elizabeth
  •  

FrancisAnn

Tatyana,

You look lovely & I'm sure in due time you will become a beautiful happy young woman. Please do not delay in estrogen & your planned SRS.

Thanks for posting & I'm sure all of us are very proud of you for sharing your life story.
mtF, mid 50's, always a girl since childhood, HRT (Spiro, E & Fin.) since 8-13. Hormone levels are t at 12 & estrogen at 186. Face lift & eye lid surgery in 2014. Abdominoplasty/tummy tuck & some facial surgery May, 2015. Life is good for me. Love long nails & handsome men! Hopeful for my GRS & a nice normal depth vagina maybe by late summer. 5' 8", 180 pounds, 14 dress size, size 9.5 shoes. I'm kind of an elegant woman & like everything pink, nice & neet. Love my nails & classic Revlon Red. Moving back to Florida, so excited but so much work moving
  •  

Tatyana

Quote from: FrancisAnn on October 08, 2013, 05:56:05 PM
Tatyana,

You look lovely & I'm sure in due time you will become a beautiful happy young woman. Please do not delay in estrogen & your planned SRS.

Thanks for posting & I'm sure all of us are very proud of you for sharing your life story.

Thank you.  I really appreciate all the support.  This has been coming for a long time and this place gave me the courage to face it.  It's nice to know that there are other people like me.  I love you all.
  •  

FrancisAnn

Tatyana,

We all love you too. It is so difficult opening up about life sometimes.

You are young & deserve a beautiful life. Estrogen & as soon as possible should help you feel even more normal.

Take care of yourself & just try to relax.
mtF, mid 50's, always a girl since childhood, HRT (Spiro, E & Fin.) since 8-13. Hormone levels are t at 12 & estrogen at 186. Face lift & eye lid surgery in 2014. Abdominoplasty/tummy tuck & some facial surgery May, 2015. Life is good for me. Love long nails & handsome men! Hopeful for my GRS & a nice normal depth vagina maybe by late summer. 5' 8", 180 pounds, 14 dress size, size 9.5 shoes. I'm kind of an elegant woman & like everything pink, nice & neet. Love my nails & classic Revlon Red. Moving back to Florida, so excited but so much work moving
  •  

izzy

Quote from: Tatyana on October 08, 2013, 04:12:07 PM
Wow! So does yours.  Are you trans?
thats not my face, lol. i am trans.
  •  

bethanyjadefowell

Your gorgeous, one of the nicest girls I've ever seen. You do what you got to do and have SRS. Love and hugs. Beth x
  •  

Tatyana

Quote from: bethanyjadefowell on October 08, 2013, 06:47:42 PM
Your gorgeous, one of the nicest girls I've ever seen. You do what you got to do and have SRS. Love and hugs. Beth x

Thank you. And you are gorgeous too.
  •  

Jessica Merriman

So that's why you are so beautiful. You are one lucky girl, Deep Sigh!  :)
  •  

Tatyana

Quote from: Jessica Merriman on October 08, 2013, 08:48:24 PM
So that's why you are so beautiful. You are one lucky girl, Deep Sigh!  :)

Yeah when I think about it I can't complain too much.
  •  

bethanyjadefowell

Just a question, do you feel female inside?
  •  

Tatyana

Quote from: bethanyjadefowell on October 09, 2013, 11:09:23 AM
Just a question, do you feel female inside?

Yes I think so.  I definately have female emotions.  I cry like a girl.  I'm typical of a female when it comes to female things like clothes.  I have no interest in things that appeal to men.  So yeah I'm a girl inside no doubt.
  •  

Emmaline

Thats great!  You are a stunning girl already and I hope you come to a good place discovering all about yourself.
  I suspected I was mosaic xxy, so went through all the reading material whilst waiting for my results to help come to terms with the prospect- so I only kind of touched on your experience and am fascinated to hear about your journey.
But yep, ultimately I am your vanilla xy trans.

Body... meet brain.  Now follow her lead and there will be no more trouble, you dig?



  •  

PrincessDayna

Def get a good MRI and have yourself a solid endo as well. You deg would benefit from a urologist and ultrasounds, those can be quite the little surprise keepers lol. And ya, I dare say you are gorgeous! A karotype test def will be more productive hen not at this stage. And dont fret, there are many of us IS ppl out there! There is a solid IS society as well, not at home so Ill have to wait to get home if u want the links? Welcome aboard! This all reads out to me 46xx, 47xxy, but i could be drastically wrong. Only proper testing could reveal that one. The possibilities are endless genetically, up to 47xxxxy really!
"Self truth is evident when one accepts self awareness.  From such, serenity". ~Me  ;)



  •  

Xhianil

I think you look very pretty and i wish you good luck on your journey to help yourself.
  •  

Lauren5

That's very interesting.
You could be considered intersexed by your insurance, which, according to mine, is the only way you can get SRS.
Hey, you've reached Lauren's signature! If you have any questions, want to talk, or just need a shoulder to cry on, leave me a message, and I'll get back to you.
*beep*

Full time: 12/12/13
Started hormones: 26/3/14
FFS: No clue, winter/spring 2014/15 maybe?
SRS: winter/spring 2014/15?
  •