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Few questions for anyone post op, or anyone in general!

Started by Aussie Jay, February 02, 2014, 06:04:50 AM

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Aussie Jay

FWIW I'll be having RFF phalloplasty in Belgium and have a relatively physical job (paramedic) with limited capacity to do light office duties for a short time but I get 8 weeks annual leave per year...

Is 8 weeks about the recovery time from surgery to return to work??
If not how long was your recovery?? (I can appreciate this will depend on complications etc)
If you traveled, how long did you stay in the area post op??
What was the most painful thing??
When could you stop taking narcotics/strong pain killers??
When could you use your hand/arm??
When were you able to walk, sit, move between the 2 etc with minimal/no pain??
When were you able to return to working out (running, riding, lifting, yoga etc)??
Did you take a travel buddy to care for you post op??
If so who??
If you went alone what were some of the benefits/disadvantages??
Does anyone else feel like they do NOT want family there?? It's not that I don't get along with them I do, and I know all they want to do is look after me and love me etc, it's just I know sometimes when I am sick or in pain I want to be alone but this is such a big surgery compared to all my others I am wondering what others thought/decided??
Is there anything you wished someone had told you pre op??
Is there anything you regret not having with you or doing prior to surgery??
Anything you couldn't live without during the recovery??
Is there any other advice you can offer??
Thanks in advance. The main ones bugging me at the moment are who (if anyone) to take with me going from Australia to Belgium. And the recovery time/how much time I will need to be off work - I have been planning on 8 weeks...

Cheers all, really appreciate your time.

Jay

A smooth sea never made for a skilled sailor.
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Make_It_Good

Hey,

I didn't have the same op as you, but Ill try to help as much as I can.
I did have some surgery that required some fiddling of the arm, so Ill use of the "wisdom" I gained from that experience!

Is 8 weeks about the recovery time from surgery to return to work??
I should think that a physical job such as yours, this would be the minimum amount of time to have off. The RFF phallo will effect your arm a lot. During my second op, where my arm was used, I remember the first few weeks being hardest (...ofcourse), it took about 3 weeks to be able to straighten out my fingers. At 8 weeks, Im pretty sure actually that I was fine, able to go about my daily life, I was back at uni and had my arm free, probably at 4 or 5 weeks. I don't know how much more serious and injured your arm will feel, or what other surgeries you are having done at the time, but I should think 8 weeks should be ok...

If not how long was your recovery?? (I can appreciate this will depend on complications etc)
I managed not to experience any serious complications. The only thing I did suffer was a few wound infections on my side/hips, which took about 2 or 3 months to finally close. I simply wore soft trousers/jogging bottoms so it didn't rub too much, and carried on with every day things.
  If you are getting the urethral hookup done (I cant remember if that is done straight away in the surgery youre having or not), that does give higher risks of complications, but a lot can be resolved on their own or quite easily.

If you traveled, how long did you stay in the area post op??
My op was in the same Country as where I live, but I still had to travel down to London (which is never cheap...). I was in hospital for a week, then went back to where I live. I visited my local DRs once or twice a week for about a month.

What was the most painful thing??
The *!%@#! catheter!! But that's just in my experience...

When could you stop taking narcotics/strong pain killers??
I stopped taking them at about 2 weeks post op.

When could you use your hand/arm??
I could use it properly at about 4weeks post op, but it MAY be different for you since youre having a lot more done to your arm.

When were you able to walk, sit, move between the 2 etc with minimal/no pain??
Depending on what is done to other parts of your body, having the testicle work done is what effected my sitting the most. It took almost two weeks to be able to sit with no pain. (I slouched very badly for awhile).

When were you able to return to working out (running, riding, lifting, yoga etc)??
I went back to the gym at about 2months post op, however, I may have gone too early. I didn't experience any setbacks or complications, but Im not sure if I remember the surgeons suggesting to wait longer...

Did you take a travel buddy to care for you post op??
No. It was difficult getting the train and finding my way back, and sure, I could've maybe done with some help there. But I managed.

If so who??

If you went alone what were some of the benefits/disadvantages??
I did struggle getting my train whilst carrying my bag (bear in mind you only have one arm free)

Does anyone else feel like they do NOT want family there?? It's not that I don't get along with them I do, and I know all they want to do is look after me and love me etc, it's just I know sometimes when I am sick or in pain I want to be alone but this is such a big surgery compared to all my others I am wondering what others thought/decided??
My Mum went to my first op, and I wish she didn't bring my little sibling, as it was clearly hard for them since they didn't understand, only saw that I was injured in a hospital. My Mum only wanted to care for me but what I struggled with is having someone there is a massive obvious reminder of what Im going through, when Id rather just get it over and done with without drawing attention to what I have to endure. It may be hard for families members to face that reality too, but it depends on what your family are like.

Is there anything you wished someone had told you pre op??
Mentally prepare yourself for what your arm will look like. I am completely used to it now, but the first few weeks were very difficult.

Is there anything you regret not having with you or doing prior to surgery??
Again, not that I can think of.... But Ill post again if I think of anything.

Anything you couldn't live without during the recovery??
My laptop and a tv. Its a big thing to admit that since I am not big on technology, but I was glad to be able to waste time in bed.

I hope that helps, and good luck with everything! :)
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Aussie Jay

Thanks a lot mate - really appreciate you taking the time to answer me!

Regarding taking someone with me - I really feel the same as you. I just want it done with and not draw any attention to it. I kinda just want to leave Australia and come back and carry on like nothing happened! My family are very supportive and I know that my parents would just want to be there for me as they would be worried and they just want the best for me. My mother has actually apologised for me going through all these surgeries to be the way I want to be etc so I know they mean well and just want to see me happy...

I think maybe a large part of my problem is that I'm independent, used to living alone for the past 5 years and it's been about the same amount of time since I've had a partner so I'm really used to it just being me!!

Any other thoughts?? I don't want to not have support I'm going to need but I don't want to feel horrible post op and say something I may regret when I'm frustrated and in pain...

Cheers guys!

Jay

A smooth sea never made for a skilled sailor.
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Arch

Jeez, I might have to skip summer school entirely when I have my phallo...if I get the job I'm applying for, that is. With no summer teaching, I will have two months completely off and then will be teaching only one class for more than a month after that.

I hate to give up the money, but you do what you have to do.
"The hammer is my penis." --Captain Hammer

"When all you have is a hammer . . ." --Anonymous carpenter
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Make_It_Good

Aussie Jay - I can understand the independent side of things, but maybe it is best to just bite the bullet and let your Mum go with you. It sounds like she could be good support (and that she wants to be :) ).
   Especially considering that you have to fly abroad for it, it may be best to be safe. I guess it is a time where we should accept and acknowledge that we very possibly could become dependent on someone else for help even if just for a few weeks.
And once you go back to Australia, you can go back to normal. The times of being dependent on someone will be out of sight, out of mind, right? :p

Arch - it sounds like those timings could work out well for you. Given that youre willing to make that sacrifice. It is a big decision to have to make, and can be pretty tough at times when surgery and work conflict. I am in that situation at the moment. I am waiting to have my 3rd op, and have been asking since September for it, where they said thered be no problem having it in January, but they must have forgotten :/ Ive been calling and hassling since then and had left space from Dec to March, so Im earning no money right now.. My dream job starts at the end of next month, and it only comes up once every 1 or 2yrs, but I may have to turn down that career (atleast for now) if I dont get my surgery preferably this week :( Ahhhh the stress of scheduling is probably worse than the healing itself!
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Arch

Quote from: Make_It_Good on February 04, 2014, 05:15:32 AMAhhhh the stress of scheduling is probably worse than the healing itself!

QFT. I worry very much about scheduling because I don't have a conventional job and can't pursue conventional ways of taking time off. If I can't teach one term, I lose my classes and 20-30% of my annual income in one fell swoop because someone else will take over my classes. It's much better to give up the "extra" summer school teaching. I suppose it's possible to lose just a couple of weeks of my term to a substitute teacher, but (again) the regular term is my bread and butter, and I would not want someone else taking over my classes for just two or three weeks. That rarely works out well. So summer it is. That loss is more like 12% of my annual income. Half as bad.

I want to get hysto during my marginal three weeks off in December, but the scheduling has to work out perfectly. I'm already anxious about fitting it in, and it's nearly a year away if all goes well. Sheesh.
"The hammer is my penis." --Captain Hammer

"When all you have is a hammer . . ." --Anonymous carpenter
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Aussie Jay

Quote from: Make_It_Good on February 04, 2014, 05:15:32 AMI can understand the independent side of things, but maybe it is best to just bite the bullet and let your Mum go with you. It sounds like she could be good support (and that she wants to be :) ).

I can definitely see the benefits, especially because it is so far... I'm thinking I might just have a friend or two come - several have offered. I know my parents would and probably would like to but my mum isn't that mobile - she walks with a wheelie walker etc so that might be a better option for me. I'd rather not worry about whether my folks (both in their late 60's) are safely navigating a foreign country when I should be worrying about healing etc - sound fair?? If my friends fell through (and they're good friends) I could always have the family as my back up plan...

Quote from: Make_It_Good on February 04, 2014, 05:15:32 AMAhhhh the stress of scheduling is probably worse than the healing itself!

Man, truer words were never spoken!! In my job we are expected to put our leave in a year in advance for planning for the whole region - what a pain in the ass when you're looking at surgery overseas!!! It was hard enough scheduling the consult!! Thankfully my shrink said he would just write a letter basically telling them that it would be discriminatory and detrimental to my mental health to cause a problem when I finally go and talk to them about leave for the phallo etc... Made me feel a lot better :D (I know probably not an answer for everyone tho...)

A smooth sea never made for a skilled sailor.
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Make_It_Good

Arch - From what youre describing, it sounds like taking the Summer classes off, is much more preferable. Less of a drop in income, and also, there isn't the worry of someone else taking over parts of your classes during term, as well as keeping continuity for the students during term time.
   If you had the hysto over Christmas time, it could very well fit in but as you said, would be very tight scheduling! But, if that doesn't work out, although it would feel crappy for you if youd had your heart set on it, atleast you can have that as part of the phallo without any extra time being added to your time off. :)

Aussie Jay - It sounds like taking friends would be a better option in your case! I completely agree that you wouldn't want to worry about your parents navigating their way around a foreign Country, when you should be having as little worries as you can. Friends it is, I would say :p

You guys have to put your leave in a year in advance?! Wow. What a way to complicate things for you haha.
I did have a job once where they sat me down at the beginning of the year and told me I had x amount of holiday days for the year, but I had to schedule them all in now. How was I supposed to know when Id want off, when Id be ill etc? Haha
Anyway, that is great that your shrink has written that letter, hopefully with that you will have no problems. And what a way to phrase things!! :p
   
When is it that youre having surgery...? I hope all goes well.
   After me being unable to get a surgery date for almost 5months now, I managed to get the managers number, called him, and I now have a date (phew!) Its in 6 days...! :)
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Aussie Jay

That's awesome you pinned them down and got a date mate - hope all goes well :D

I am thinking surgery will be late this year or this time next year - just awaiting to hear of a date from the team  ;D Last person I saw was the shrink and he writes an email to Monstrey reporting I am suitable and from there I get a date.

As for my leave it is ridiculous - I usually pencil in 2 weeks here or there and then cancel them so I can save them haha! Lucky I did because I broke my thumb in October last year - and not at work dammit :/ Just leaves me with very little now :'(

Keep us posted of your surgery mate!! Best of luck.

A smooth sea never made for a skilled sailor.
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