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How receptive is the NHS to partial transgender ?

Started by KayT, May 24, 2014, 01:18:32 PM

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KayT

I have not been here for a while as I have been undergoing LGBT counseling, but something has come up that echoes a desire I had in the past of which I cancelled through honesty. But what has come up given it has been suggested that through myself being an atypical XXY human I am in fact what is called an androgyne, partial transgender may be of benefit to me, and yes this does appeal but I fear.

I fear the NHS plain and simple as my experiences with them have not been good, where it was when XXY was discovered they were eager to help but when they found I did not fit the usual picture they suddenly lost interest culminating in the refusal of further care, where I was actually told by my female GP to not come back unless I had worries other than my lifetime's confusion, where I guess a binary mindset just can't understand an in between mindset.

So I wish to ask of those that have partially transgendered or are going through it if they have been allowed, what is the NHS's attitude towards them, are they helpful and understanding or are they grudging and obstructive with their, well, 'care' ?
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HughE

Well at least you got a diagnosis. My doctor gave me a testicular exam (presumably to establish whether I'm XXY, which I'm not - it's definitely secondary hypogonadism), after which he announced that my testosterone was normal and there was nothing wrong with me, goodbye, see you next year (he wouldn't let me see the blood test results though). I've been self medicating ever since.

Following that I was seeing a gender therapist for a while who was going to get me into a gender clinic, but unfortunately by that point my money had run out (I've been out of work for 3 years now), and I had to let the place I was renting go and move from that area. So I don't know how a gender clinic would handle someone who doesn't identify fully as either male or female, but my guess is that they're entirely geared towards the gender binary.

If you look at what people say on hypogonadism and hypothyroid forums, it seems that they have a universally poor experience on the NHS. Medicine in the UK is extremely conservative and they're decades behind the rest of the world in a lot of the treatment they hand out. On top of that, the NHS spends nearly all of its budget on management, admin and pensions, so they're cash-strapped and always looking to cut costs when it comes to patient treatment. Any excuse they can find to avoid treating you, they'll take it, as you've already discovered it seems!

Here are the US guidelines for treatment of hypogonadism in males:
https://www.aace.com/files/hypo-gonadism.pdf

You'll note how one of the things doctors should be doing is checking your bone density every 3 years, since if you have any form of congenital hypogonadism, you're at high risk of developing osteoporosis as you get older (especially if you're not on HRT).

Here's the EU guidelines:
http://www.uroweb.org/gls/pdf/17_Male_Hypogonadism_LR.pdf

I have secondary hypogonadism, whereas, if you're XXY, you'll have primary hypogonadism. The overall effects of the two are fairly similar, the main difference is that someone with secondary hypogonadism can take fertility meds as an alternative to TRT (which is what I'm currently doing).

FWIW, here's the only UK guidelines I've been able to find:
http://www.endocrinology.org/policy/docs/10-12-01_UK%20Guidelines%20Androgens%20Male.pdf

There's essentially no content of value in those UK guidelines, but if you look through the US and EU ones I've linked to, you'll see that it is quite important not to have both your testosterone and estradiol low for extended periods of time. Not only does it completely destroy your quality of life, it can irreversibly damage your health too.

Did you know that, in both the US and UK, you can buy womens HRT hormone creams online? They're not strong enough to drive a full MTF transition, but they can give you some of the psychological effects of female hormones. One option might be to see whether you can get TRT through the NHS, and then supplement with women's HRT cream. My experience has been that progesterone and estriol make a very nice combination once you get the dosage right!  :)
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