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Top Surgery Recovery Updates (a place for all members to update after surgery)

Started by Bimmer Guy, December 28, 2013, 10:42:57 AM

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BGking

Quote from: devention on July 18, 2014, 02:20:02 AM
Awesome! Everything I hear about Rockmore makes me more confident that I'm going to him next year when my insurance comes through.
Congrats on your surgery! Can't wait to see the pictures!
He definitely knows his profession well. He seemed very confident. He was friendly during the consultation and before surgery. He talked about the weather because he knew I had a three hour drive back home from NY afterward and of course it was raining. :P And while marking my chest (which was just two lines underneath my old chest mass - which kinda surprised me he didn't draw more) he asked how long I was on T and then he said it was definitely doing its job! I think he only made two lines because he just knew what he was doing and had the vision of how he wanted my chest to look in mind already. The only thing I found really odd with him was when I woke up the nurses said he had left already but before the surgery they said he would come in when I was awake to make sure everything was alright. I mean I suppose it doesn't matter I just expected him to come in and ask how I was. But other than that I think my results will turn out very well without my worrisome self getting too stressed about not wearing a compression vest. I'll post some pictures later on when I figure out how to post them. :P Thanks everyone!
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devention

Quote from: BGking on July 18, 2014, 03:37:04 AM
He definitely knows his profession well. He seemed very confident. He was friendly during the consultation and before surgery. He talked about the weather because he knew I had a three hour drive back home from NY afterward and of course it was raining. :P And while marking my chest (which was just two lines underneath my old chest mass - which kinda surprised me he didn't draw more) he asked how long I was on T and then he said it was definitely doing its job! I think he only made two lines because he just knew what he was doing and had the vision of how he wanted my chest to look in mind already. The only thing I found really odd with him was when I woke up the nurses said he had left already but before the surgery they said he would come in when I was awake to make sure everything was alright. I mean I suppose it doesn't matter I just expected him to come in and ask how I was. But other than that I think my results will turn out very well without my worrisome self getting too stressed about not wearing a compression vest. I'll post some pictures later on when I figure out how to post them. :P Thanks everyone!
I'm guessing that some emergency came up that he had to deal with.
Good to hear you had such a good experience. After hearing so often about bad trans healthcare (not from plastic surgeons, necessarily), it's nice to hear stories about awesome trans healthcare experiences. Very encouraging.
To post images, there's a button right beneath bold on the main post reply page. Upload a picture to the image hosting site of your choice and put the URL between the image tags. I think you have to have a certain number of posts, but I can't remember how many.
The more I know, the more I know I don't know.






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Blue Senpai

Quote from: BGking on July 18, 2014, 03:37:04 AM
He definitely knows his profession well. He seemed very confident. He was friendly during the consultation and before surgery. He talked about the weather because he knew I had a three hour drive back home from NY afterward and of course it was raining. :P And while marking my chest (which was just two lines underneath my old chest mass - which kinda surprised me he didn't draw more) he asked how long I was on T and then he said it was definitely doing its job! I think he only made two lines because he just knew what he was doing and had the vision of how he wanted my chest to look in mind already. The only thing I found really odd with him was when I woke up the nurses said he had left already but before the surgery they said he would come in when I was awake to make sure everything was alright. I mean I suppose it doesn't matter I just expected him to come in and ask how I was. But other than that I think my results will turn out very well without my worrisome self getting too stressed about not wearing a compression vest. I'll post some pictures later on when I figure out how to post them. :P Thanks everyone!

I just looked up Rockmore and realized he's in Albany. Definitely someone I'll consider.
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Bimmer Guy

BGking,

Garramone has a tight garment around you ( double incision...it is rare or I think maybe now never? he does any other technique), for those 6 days while the drains are in.  It is after he removes those that you no longer have any kind of compression.

I would call them today and ask for the reason why your chest, specifically.  I think that is a reasonable question.  Good luck.
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



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aleon515

Quote from: Brett on July 18, 2014, 06:43:05 AM
BGking,

Garramone has a tight garment around you ( double incision...it is rare or I think maybe now never? he does any other technique), for those 6 days while the drains are in.  It is after he removes those that you no longer have any kind of compression.

I would call them today and ask for the reason why your chest, specifically.  I think that is a reasonable question.  Good luck.


(Dr Garramone) It's on his page that he does peri, but every person I know of has been talked out of peri by him. Some people go and get a peri elsewhere and some do end up with a DI. I think he likes it better because he can control results more. If I could have had a peri he would not have been my surgeon. I want someone who WANTS and LIKES to do the procedure I want (or is reasonable), not someone who has to do it kicking and screaming, so to speak.

--Jay
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Blue Senpai

Quote from: aleon515 on July 18, 2014, 07:02:20 PM

(Dr Garramone) It's on his page that he does peri, but every person I know of has been talked out of peri by him. Some people go and get a peri elsewhere and some do end up with a DI. I think he likes it better because he can control results more. If I could have had a peri he would not have been my surgeon. I want someone who WANTS and LIKES to do the procedure I want (or is reasonable), not someone who has to do it kicking and screaming, so to speak.

--Jay

Funny you should say that, Beck talked about Dr. Garramone on pressing for DI surgery in his video.

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aleon515

Quote from: Blue Senpai on July 18, 2014, 07:07:26 PM
Funny you should say that, Beck talked about Dr. Garramone on pressing for DI surgery in his video.


Well it DEFINITELY is not any kind of secret. A Lions' Fears talks about this in his video and does go for DI. I think if you asked he would say he doesn't like to do it and it doesn't have good results.

--Jay
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BGking

Quote from: Brett on July 18, 2014, 06:43:05 AM
BGking,

Garramone has a tight garment around you ( double incision...it is rare or I think maybe now never? he does any other technique), for those 6 days while the drains are in.  It is after he removes those that you no longer have any kind of compression.

I would call them today and ask for the reason why your chest, specifically.  I think that is a reasonable question.  Good luck.

Hey guys I called the office today and asked the nurse why I wasn't given a compression vest. They said Dr. Rockmore used to use them but stopped a year or so ago because he saw that the risks outweighed the benefits so he doesn't use them anymore. They said if it caused wrinkles or folds in the skin it would negatively impact results and patients may swell up after so they don't fit causing more creases and whatnot. They told me as long as I am not bruising or bleeding from the location of the drains I'm healing just fine. Still barely draining anything but I suppose that's good. The nurse said Rockmore sometimes suggests wearing an under armor sports compression shirt for a month after the drains are removed and I should ask him during my follow up appointment this Tuesday. I will definitely ask him. Whatever he thinks is best I suppose I just want as awesome results as Kenton and the other guys I spoke with before settling on him!
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Bimmer Guy

Quote from: BGking on July 18, 2014, 09:04:25 PM
Hey guys I called the office today and asked the nurse why I wasn't given a compression vest. They said Dr. Rockmore used to use them but stopped a year or so ago because he saw that the risks outweighed the benefits so he doesn't use them anymore. They said if it caused wrinkles or folds in the skin it would negatively impact results and patients may swell up after so they don't fit causing more creases and whatnot. They told me as long as I am not bruising or bleeding from the location of the drains I'm healing just fine. Still barely draining anything but I suppose that's good. The nurse said Rockmore sometimes suggests wearing an under armor sports compression shirt for a month after the drains are removed and I should ask him during my follow up appointment this Tuesday. I will definitely ask him. Whatever he thinks is best I suppose I just want as awesome results as Kenton and the other guys I spoke with before settling on him!

Glad it worked out!
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



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aleon515

BTW, I don't think Beck is right that only people who have had surgery 2-3 years ago or more are happy with results from Dr G. I know plenty of people who had surgery recently that are happy, as I am.  The statement on "trademarking" is not *entirely* true according to Dr G's Facebook. At the time, he felt someone else was going to trademark it and keep other people (him) from using the term, so he trademarked it. He says he has never tried to stop anyone else from using it, which must be the case as a lot of surgeons use the term. If he wanted to sue them, he could do so. But I do agree that he doesn't really like to do peri (and may not really do it).

I didn't watch the whole 18 minutes but was kind of curious about it.


--Jay
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Bimmer Guy

Quote from: aleon515 on July 18, 2014, 11:57:24 PM
BTW, I don't think Beck is right that only people who have had surgery 2-3 years ago or more are happy with results from Dr G. I know plenty of people who had surgery recently that are happy, as I am.  The statement on "trademarking" is not *entirely* true according to Dr G's Facebook. At the time, he felt someone else was going to trademark it and keep other people (him) from using the term, so he trademarked it. He says he has never tried to stop anyone else from using it, which must be the case as a lot of surgeons use the term. If he wanted to sue them, he could do so. But I do agree that he doesn't really like to do peri (and may not really do it).

I didn't watch the whole 18 minutes but was kind of curious about it.


--Jay

I really think it is as simple as, "You can't please all of the people, all of the time".  There are also some people who can just never be pleased, no matter what you do.  There are going to be people who are not pleased with his work.  There are going to be people who are not going to like his personality.

But, here's the thing, there must be less of those people who feel the above (don't like his personality and aren't pleased with his work), or people still wouldn't be coming to him in droves.

I talked with Garramone on the phone 4 days ago (which I will write about in a update post in this thread).  I have hypertrophic scarring completely across both incisions.  These are scars that are thick, raised, and will take a long time (a couple of years), to flatten and go white.  I called him to see what he thought.  He told me that if I wanted to, he would do a scar reduction for free.  This means removing the entire scar and restiching me.  The chance of the new incisions/scars not becoming hypertrophic again is very slim.  It is how my body heals on my chest.  He is willing to do this FOR FREE EVEN THOUGH IT IS NOT HIS FAULT.  Knowing that it is pretty futile, it is not like he even tried to talk me out of it.  He was just like Brett, it almost always comes back, but I will be happy to do it.  Prior to calling him, I had already done research and knew the lack of success with this, so it didn't surprise me when he said this.  But, what did surprise me is that he was willing to do it for free!

Oh, and the other thing about the video was that the guy was upset that Garramone doesn't do more for the community?  What the heck?  Being a surgeon for a specific surgery doesn't mean he needs to be an advocate for the community, advertise things on his site that could help transguys, etc.  Do we expect oncologists to go on cancer walks, advertise products that could help cancer survivors, etc.  It makes no sense to me.

Garramone owes the community nothing.  He is just a guy who happens to specialize in top surgery. 
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



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aleon515

That's great re: scar revision, do tell more.

I don't think the guy in the video has any knowledge re: what he might do for the community (if he does) one way or the other, how does he know this sort of thing? Many people who do things for the community do them quietly, so it's possible someone funds programs or something quietly. But I don't think a surgeon is required to be an activist, in any case. Being an excellent surgeon is actually doing "something for the community" imo. I really don't like people bad mouthing someone they don't know. From his FB, I think he is rather hurt by this sort of thing. He's kind of a sensitive guy actually.

--Jay
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devention

Being so specialized in doing one type of surgery that a tiny portion if the population would benefit from is definitely "doing something for the community". Imagine him retiring without a protege.
He could make a lot more money doing other surgeries. But he's helping a population that doesn't have enough in the way of support.
The more I know, the more I know I don't know.






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aleon515

Quote from: devention on July 19, 2014, 08:48:08 PM
Being so specialized in doing one type of surgery that a tiny portion if the population would benefit from is definitely "doing something for the community". Imagine him retiring without a protege.
He could make a lot more money doing other surgeries. But he's helping a population that doesn't have enough in the way of support.

I agree with that assessment. I think a lot of doctors are learning top surgery by looking at the kind of results he is getting. Results are really much better everywhere because the bar gets raised. I think at some point he may hire someone to work with him, but he is still doing some crazy number of surgeries per day and not seeming to be slowing down any. (This happened with Dr Brownstein, he started off alone and then hired Dr Crane.)

--Jay
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devention

Quote from: aleon515 on July 19, 2014, 10:48:46 PM
I agree with that assessment. I think a lot of doctors are learning top surgery by looking at the kind of results he is getting. Results are really much better everywhere because the bar gets raised. I think at some point he may hire someone to work with him, but he is still doing some crazy number of surgeries per day and not seeming to be slowing down any. (This happened with Dr Brownstein, he started off alone and then hired Dr Crane.)

--Jay
I really hope he does hire someone that he sort of hand-trains. He and Brownstein are/were considered the best in the industry for a reason. And he has definitely raised the bar all over.
The more I know, the more I know I don't know.






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Bimmer Guy

Let's get this thread back on track and do our best to keep it on track in the future.    We want to keep it to a place where guys don't have to read through a bunch of unrelated posts when they are healing and looking for tips (yeah, I know I contributed to the derail myself!  So, this is a reminder to myself as well.  :)).  I know I can't tell people what to post and where (please don't read this as me trying to be a moderator), but the reason it is a sticky is so it stays focused and doesn't get lost, kind of like the passing thread.


8 MONTHS 2 WEEKS AND 5 DAYS UPDATE

Hi, guys.  I am writing this 2 weeks after the above date, but the below picture was taken at the above date, so I figured I would back date.

Surgery Date: 10/10/13
Surgery: Double Incision with free nipple grafts
Surgeon: Garramone
Scar Treatment:  Scar Away Strips/Scar Away Gel.  Used 24 hours a day, every day (3 weeks - 6 months).  Kelo-Cote (6 months - present)
On Testosterone: No
Currently Strength Training: No


My last update was at 6 months (page 21, post #413).  At this time I spoke about my hypertrophic scarring.  I won't go back into that, as you can see the photos and information on that post, and prior posts.

Since that time, I have been using Kelo-cote which is "intended for the management of old and new hypertrophic and keloid scars..."  I have not been massaging because my experience with massaging was a widening of the scars.  I am sure this is was not the case (as I have not seen any research saying that does widen scars), but it is "just in my head".  Regardless, I have not been massaging.

I have not gotten cortisone shots became I know for certain that the scars widen when you do that (logical, the skin has to fall to the sides).  My theory (based on my own hope...I have read no research claiming this), is that if I let the raised scars deflate naturally, there won't be a widening effect, but instead will just sort of subside in place.  Thus far, I have seen this come to pass (except in one spot, but I had been furiously massaging that area at the time of widening).  This is one reason I continue to plan to not get cortisone shots.

So since last update, the hypertrophic scars are less "angry" so to speak and less hard.  They are slightly deflating.  They are not getting any wider as they subside in height.  They continue to get a bit lighter and are light pink.  This is significant, as most hypertrophics stay red/purple (but, mine were never purple), for at least a year.  I truly believe that the Kelo cote has made a big difference.  It has also made a significant difference in flattening out the vertical scar on my stomach from another surgery, and also the color of another scar on the top of my chest.  These scars are 4 years old and were quite "bumpy" so to speak.  The change is incredible.  I REALLY wish I had taken before pictures of these scars.  I will say that for these old scars the Scar Away gel/strips was already flattening them, and I do believe that the Scar Away gel/strips is what kept my incisions from getting as red/purple as you see with most hypertrophic scars.

In my last update I talked about contacting Garramone for consult about the cortisone shots.  I emailed him on a Sunday and never heard back.  I didn't follow up, mainly because I met Kathy Rumer, MD at a trans conference (not, not Philly's) and let her look at my chest.  She said that I should wait for a year and then come see her.  I figured Garramone would say the same.  Additionally, I didn't plan on shots, anyway (there is a risk of cortisone flattening the scar too much, creating an indentation, of sorts).

The last month or so I started thinking more about scar revision and decided even with the cost of travel, I would prefer that Garramone would do this work.  Knowing that there is a very high probability that the incisions would become hypertrophic again (some people just tend to get them after surgery, especially in the chest area), I thought we could at least talk about it.  Well, he said a couple of things:

1) They pretty much always come back and he doesn't think the surgery is worth it, but he would be willing to do it
2) I should wait a year from date of surgery to see how much better they get before making a decision
3) I should wait a year from date of surgery to see how much better they get before doing cortisone shots (I'm glad I went with my instincts to wait).
4) He would do the scar revision for FREE!  Now this one I didn't expect!

I didn't expect the free scar revision (which includes removing the entire old scar and restitching), because my scarring has nothing to do with his work.  It is just how my body heals.  So, I thought this was pretty cool.  I did mention to him that I read (in one article) that sometimes if a person gets cortisone shots every two weeks after surgery, that hypertrophic scars may not form again, but he didn't think this was really accurate.

So, my plan is to wait a year to do the cortisone shots.  I am guessing I will never get scar reduction surgery.  Honestly, it will just be too stressful and disappointing if it doesn't work and who knows if it will be worse?  Plus, I will have to start ALL OVER with hypertrophic scars again.

I also contacted Garramone because I did not like that the sides of the chest continues to have a bit of extra skin that kind of pops out to the sides.  It isn't something I see on bio males.  I knew that they were not "dog ears", nor did I think they were "back fat".  I wondered if a bit of lipo suction was in ordered.  Anyway, I sent him the picture below.  I put my arms and upper back into a position that highlighted the problem as much as possible.  Meaning, it actually doesn't look this bad when standing naturally (note my 6 months picture...the swelling on the left side did go down since that picture, as I said I hoped it would).

I have seen the look of this on many other guys (different surgeons), some a lot worse, but I have never seen them talk about it.  Garramone acknowledged what I was seeing was correct and this is his explanation:

He said that I was indeed seeing things correctly, and that this does happen to individuals who have top surgery.  What happens is that our side incision scars stop the fat from dropping down naturally like a bio male.  He said that surgeons do the best they can to take out the right amount of fat, but you can only tell so well during surgery how much to take.  He says that if you take too much out, you run the risk of creating a indentation on the sides of the chest that look weird.  That of course looks weirder than having a little extra fat there.

He said that he thought mine looked pretty good (again, I positioned my body to accentuate the fat as much as I could for picture).  He said that typically what is seen as a poor result is if the skin flops over.  As you can see, mine does not, even when I hold my body in a certain position to make it as obvious as possible.

Really, I noticed it the most when I am leaning back in a chair.  The fat flattens to the sides and it looks funny if I look over at my armpits.

Garramone said he would do a free revision on this, using lipo.  Just like the scar reduction, he said I should wait a year just to make sure none of it is swelling.  He said I should massage the sides too, to try to break down any of the scar tissue that could be impacting the issue.

Anyway, below is the picture with the fat accentuated.  I don't have another picture to post, sorry.  Pretty much though my chest looks the same as the 6 month pic, except the scars are a bit lighter.



P.S. If the other guys who had surgery could post updates, that would be great.
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



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BGking

Does anyone know a good image hosting site that doesn't share your pictures with other website other than where you post the link? I would like to post photos but am weary of the chance they may be able to be "searched" for on the host's website? Anyone have any good host sites they trust? Thanks guys.
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Blue Senpai

Quote from: BGking on July 20, 2014, 03:31:34 PM
Does anyone know a good image hosting site that doesn't share your pictures with other website other than where you post the link? I would like to post photos but am weary of the chance they may be able to be "searched" for on the host's website? Anyone have any good host sites they trust? Thanks guys.

You can make a Photobucket account, make an album (set it to private) and just share the uploaded pictures located in the album.
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SX0877

Your chest looks great, Brett. I won't worry about the underarm fat. It is normal and I have seen cis guys with it.
You body also looks very masculine and fit, especially for someone who is not on T and does not to strength training.
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Bimmer Guy

Quote from: SX0877 on July 20, 2014, 04:09:07 PM
Your chest looks great, Brett. I won't worry about the underarm fat. It is normal and I have seen cis guys with it.
You body also looks very masculine and fit, especially for someone who is not on T and does not to strength training.

Thanks, SXO.  Like I said, I actually moved my arms into the position where it looks the worst for the camera.  It just bugs me every time I look at it, so I really might get some free lipo done.

I need to get back to working out.  I was pretty religious about it before surgery and I have always gone back and forth with being committed to cardio and weights, or just cardio.  Then I get off track...you know how it goes.  Anyway, I wondered if working out would decrease the fat on the sides.  Logical, right?  But, since I never had that before I thought maybe it was connected to the surgery.  So, I asked him about it.

I find the whole scar tissue blocking the ability of gravity to do its job, interesting.  Anyway, I thought my long tale might be useful to someone as like I said, I have seen it before. 

Thanks for your thoughts and good wishes.
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



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