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Failing Health

Started by Alainaluvsu, July 16, 2014, 04:39:27 PM

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Allyda

Quote from: Alainaluvsu on July 20, 2014, 10:06:12 AM
I saw a neurologist from Tulane (they have a great neuro team). She said something was found in my spine as well (lumbar area). She's not sure what is what at this point in either my brain or my spine. The bones in my spine look fine, however, so it's not something simple like a pinched nerve, stenosis, or a disk problem. She said neither indicate MS though. She wants me to get another MRI on my brain and a spinal tap. That'll be tomorrow.

They're scratching their heads. Hopefully the spine tap will say something. I moved a bit on my brain MRI, so who knows what that was about

My right leg is still weaker than the left. Knee reflexes are there, but not ankle. Babinski reflex has gone away (at least on my left foot). It's all very strange.
At least your spasms are going away. Your in my thoughts with hope you'll be better soon with an accurate diagnosis. I'm also very happy to hear it's not MS or stenosis. Hopefully your next MRI and Spinal Tap will point to what is causing your problem.

Take care
Talk soon
Allie
Allyda
Full Time August 2009
HRT Dec 27 2013
VFS [ ? ]
FFS [ ? ]
SRS Spring 2015



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Alainaluvsu

Quote from: Allyda on July 20, 2014, 02:57:11 PM
At least your spasms are going away. Your in my thoughts with hope you'll be better soon with an accurate diagnosis. I'm also very happy to hear it's not MS or stenosis. Hopefully your next MRI and Spinal Tap will point to what is causing your problem.

Take care
Talk soon
Allie


The spinal tap may actually confirm MS. So I wouldn't go cheering yet. The unknown is scary....

Quote from: Cynthia Michelle on July 20, 2014, 01:35:53 PM
Alaina, I am so relieved you went to the hospital. I know being poked and prodded is a pain and I understand you dysphoria makes it so much worse. You are doing the right thing and we are all concerned about your health. Hang in there.

TBH the privacy thing hasn't been so bad. Nobody has had any trouble whatsoever with the gender stuff. Gotta love NOLA.

I will say this, she mentioned brain biopsy. She said she doesn't think it's necessary to get a neurosurgeon involved but it's still a possibility. That is something I'm scared to death of. They have to shave a half dollar out of hair off of my head. That would be devastating to me.... You guys have no idea how much I love my hair...
To dream of the person you would like to be is to waste the person you are.



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Kylie

Well I love your hair so i can only imagine ;)
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Evelyn K

Quote from: Alainaluvsu on July 19, 2014, 08:54:16 PM
No. The heart condition is probably an extra electrical accessory (an extra nerve) going to the heart. It wouldn't contribute to the other stuff, because that nerve is a 1 way nerve.

Yeah what we talked about before, the pre-exitation thing. I'm on beta blockers for mine. Still working for me for 23 or so years to date.

So how's the weather there? Anything interesting to look at or do while you stay? Got a TV? Surfing on a tablet? Laptop? Food alright? Did you catch the eye of any residency fellows? Or nurses? ;)
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Alainaluvsu

Quote from: Evelyn K on July 20, 2014, 04:18:27 PM
Yeah what we talked about before, the pre-exitation thing. I'm on beta blockers for mine. Still working for me for 23 or so years to date.

So how's the weather there? Anything interesting to look at or do while you stay? Got a TV? Surfing on a tablet? Laptop? Food alright? Did you catch the eye of any residency fellows? Or nurses? ;)

The weather has been bipolar. It has rained 3 days straight and been sunny for 3 days straight too. I have a TV that only cycles up through the channels and I have to cycle through 70 channels to turn it off. I am on my touchscreen laptop though! The food is so great I've had takeout all week lol. And I did get a rather cute resident stick his finger in my butt. But most of the people I've interacted with were women, and that's not my thang. Right now I'm listening to music and texting my mom. Here's a tidbit of my moms convo:

Me: What am I going to do about hair if I need a brain biopsy??

Mom: Oh god. Get a wig. Or do an aunt-ah-momma wrap.

Me: Noooooo :(

Mom: I think it would be fashionable.

Me: They would only shave a little bit but Idk if I can go through that. I can handle the fact that they'll be removing a piece of my brain but I can't handle the fact that I'll have a gypsy hairstyle!!!

Mom: I would be more fearful of the other, taken a piece of brain, the tiny scare I could live with.

Me: But I have prettier hair than you do ;) My brain obviously doesn't work anyways.

Mom: Now look... I already had to deal with a negative comment from a stupid woman. Two in one day is a bit too much.
To dream of the person you would like to be is to waste the person you are.



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Elanore joey

here comes superman/woman or bit of both (is that to long for a super hero name), before doing my anatomy degree i was a hairdresser depending where they do the biopsy a good hair stylist would be able cover up a bald patch by doing a disconnected layer it would just look like you have really defined layers may look a bit thin where it covers the bald patch but would only be noticeable close up, i had a client and she suffered from Alopecia Areata this bald was about the size of the palm of your hand and i managed to keep this covered for her.
we are all beautiful in our own way its just some people don't see it :-*
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Shantel

Quote from: Alainaluvsu on July 20, 2014, 06:01:34 PM

Me: But I have prettier hair than you do ;) My brain obviously doesn't work anyways.

Mom: Now look... I already had to deal with a negative comment from a stupid woman. Two in one day is a bit too much.

Waaaaa Hahaha!  :D That sounds so like someone I know, it is most mom-like Alaina!
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Evelyn K

Quote from: Alainaluvsu on July 20, 2014, 06:01:34 PM
And I did get a rather cute resident stick his finger in my butt. But most of the people I've interacted with were women, and that's not my thang. Right now I'm listening to music and texting my mom.

(exasperating) wellLL! :laugh:

Candy striper(s) for me please.
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Shantel

Quote from: Evelyn K on July 20, 2014, 07:26:24 PM
(exasperating) wellLL! :laugh:

Candy striper(s) for me please.

LOL Evelyn you're such a naughty chickster I feel compelled to rent a candy striper uniform and give you a real Auntie Shan finger wave you'll not soon forget and maybe a good spanking while I'm at it.  :D ;D >:-) Oh don't get me going here, I'll get the boot for sure.  ;D
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Alainaluvsu

Quote from: Elanore joey on July 20, 2014, 06:17:09 PM
here comes superman/woman or bit of both (is that to long for a super hero name), before doing my anatomy degree i was a hairdresser depending where they do the biopsy a good hair stylist would be able cover up a bald patch by doing a disconnected layer it would just look like you have really defined layers may look a bit thin where it covers the bald patch but would only be noticeable close up, i had a client and she suffered from Alopecia Areata this bald was about the size of the palm of your hand and i managed to keep this covered for her.

I went to school. My hair is difficult. It's thick so that's a plus, but it's fine and bone straight so it has a LOT of movement. It's also very stubborn with a very healthy cuticle so it doesn't hold a style well at all. My mom has been doing hair for 30 years, and my former friend does hair for movies and neither can even keep it parted in any other way than the natural part. It'd be okay til I got in the wind....
To dream of the person you would like to be is to waste the person you are.



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Elanore joey

if i can find a picture of this client il send you a picture i guarantee no matter how fine your hair is it will cover up a very large area
we are all beautiful in our own way its just some people don't see it :-*
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Alainaluvsu

If you dealt with my hair, you'd understand that it's extremely difficult to 1) style, 2) keep still. Yeah, you can gel it but that means I'd have to gel it every day, which means I'd have to shampoo it every day, which means I'd be making my hair unhealthier. My hair is beyond stubborn. You can apply heat all day long and it will not go in any different direction. My instructor styled it one day and by lunch it was back to normal. She used so much hairspray and gel you could smell it from across the room. My former roommate used to say I had "Japanese hair". He managed to put curls in it by putting a glob of gel AND breaking the hydrogen bonds, but 6 hours later it was relaxing... Not only that, but he learned that you have to roll it the OPPOSITE way in which you want to curl it. It's a bitch, straight up lol. Thank God my hair is bone straight. I'd need a relaxer to keep straight hair otherwise.

To give you an idea of how the cuticle is, it literally feels like glass.
To dream of the person you would like to be is to waste the person you are.



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Elanore joey

The other option would be to cover the area using color for example the nearest color to your natural shade in a triflectives range with a double N tone base and finally pearl mix tone, would give a very nice shattered effect with a heavy base tone this with either a disconnected layer or a reverse graduation only thing is with a reverse graduation you would have go to about shoulder length
we are all beautiful in our own way its just some people don't see it :-*
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LordKAT

Quote from: Elanore joey on July 20, 2014, 09:23:55 PM
The other option would be to cover the area using color for example the nearest color to your natural shade in a triflectives range with a double N tone base and finally pearl mix tone, would give a very nice shattered effect with a heavy base tone this with either a disconnected layer or a reverse graduation only thing is with a reverse graduation you would have go to about shoulder length



Whoosh, right over my head.  What did you say?
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Alainaluvsu

I wouldn't go shoulder length. I have disconnected layers now (the photo was before my current haircut). And on top of that I don't think putting color on top of a surgical site would be a good idea. Although I am a level 1 naturally (hard to believe since I'm white, I know, but it's true) so I probably wouldn't even need any other mixing other than maybe a bit of blue, or blue-violet to offset the tone of the skin (what do you think?). I JUST asked a support group and somebody said it starts growing back pretty much instantly. Since I have VERY thick hair (my hair is a ton of work, I'm telling you lol... I'm glad my mom is a stylist), and it grows about .75" a month, it'll probably be pretty unnoticeable anyways. I'll probably just leave it alone and have a war wound for a few months and a reminder for a couple years lol....
To dream of the person you would like to be is to waste the person you are.



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Misato

I know I'd be all kinds of upset at the prospect of losing even a little of my hair. My last boy haircut was in October of 2012 and I've been growing it out ever since. To have to start over again even in just a spot, ack!

Still, I'd think after a little while you could get extensions to fill the spot in as the hair starts to grow back. My hair was pretty short still when I had mine put in. Probably would still be an investment over time but, there's a chance it'd be a good one.

May that miracle find you soon!
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Miss_Bungle1991

Quote from: Alainaluvsu on July 20, 2014, 09:59:24 PM
I wouldn't go shoulder length. I have disconnected layers now (the photo was before my current haircut). And on top of that I don't think putting color on top of a surgical site would be a good idea. Although I am a level 1 naturally (hard to believe since I'm white, I know, but it's true) so I probably wouldn't even need any other mixing other than maybe a bit of blue, or blue-violet to offset the tone of the skin (what do you think?). I JUST asked a support group and somebody said it starts growing back pretty much instantly. Since I have VERY thick hair (my hair is a ton of work, I'm telling you lol... I'm glad my mom is a stylist), and it grows about .75" a month, it'll probably be pretty unnoticeable anyways. I'll probably just leave it alone and have a war wound for a few months and a reminder for a couple years lol....

I wouldn't worry about it. I had a couple of cysts removed from my scalp a few years ago and I had the same sort of problem. I just left things as they were and let it grow back. There was enough hair that once the site healed and I had the stitches removed, you couldn't really tell. I looked weird in the meantime, though, since I had my hair pulled up and back in a few places that certainly didn't look like I was making some kind of fashion statement. :D But it was just something that I had to deal with.
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Allyda

Quote from: Alainaluvsu on July 20, 2014, 08:21:14 PM
I went to school. My hair is difficult. It's thick so that's a plus, but it's fine and bone straight so it has a LOT of movement. It's also very stubborn with a very healthy cuticle so it doesn't hold a style well at all. My mom has been doing hair for 30 years, and my former friend does hair for movies and neither can even keep it parted in any other way than the natural part. It'd be okay til I got in the wind....
I know what you mean all too well. Though I do currently have 3 spots that are filling back in (Avodart's been a blessing!) my hair is bone straight and thick over most places, and won't hold any style more than an hour, especially in this humidity. Also if I part it any way other than my natural part one gust of wind and it's all over.

Allie :icon_flower:
Allyda
Full Time August 2009
HRT Dec 27 2013
VFS [ ? ]
FFS [ ? ]
SRS Spring 2015



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Elanore joey

Quote from: Alainaluvsu on July 20, 2014, 09:59:24 PM
I wouldn't go shoulder length. I have disconnected layers now (the photo was before my current haircut). And on top of that I don't think putting color on top of a surgical site would be a good idea. Although I am a level 1 naturally (hard to believe since I'm white, I know, but it's true) so I probably wouldn't even need any other mixing other than maybe a bit of blue, or blue-violet to offset the tone of the skin (what do you think?). I JUST asked a support group and somebody said it starts growing back pretty much instantly. Since I have VERY thick hair (my hair is a ton of work, I'm telling you lol... I'm glad my mom is a stylist), and it grows about .75" a month, it'll probably be pretty unnoticeable anyways. I'll probably just leave it alone and have a war wound for a few months and a reminder for a couple years lol....
You shouldn't have any problems with the area if you color it as long as you put barrier cream over the incision. When I was working for goldwell in there academy in London I had a client with a permanent cerebral drain in and I used to colour her hair pink and purple if I remember rightly
we are all beautiful in our own way its just some people don't see it :-*
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Alainaluvsu

Well what's a good mix for level 1 to conceal the skin?
To dream of the person you would like to be is to waste the person you are.



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