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Life and Death and everything in between...

Started by Sarah_aus, September 20, 2014, 11:16:38 PM

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Sarah_aus

It's funny really, when I was little, I used to pray to God to fix me, make me a normal little girl, of course he never did, even though I prayed for years and years.

As I got older though, things changed, I stopped praying to God to make me a normal girl.  I stopped believing there even was a God.  I mean, he was supposed to be all powerful, all knowing, all loving, but he still let bad things happen.  He still punished people by sending them to Hell.

I still prayed though, I didn't know anything different, but instead of praying to be fixed, I prayed to God I wasn't even sure existed, to simply kill me.  Give me cancer.  My uncle got cancer, and he died.  If I couldn't be fixed (I was smart enough to know I couldn't be) then the next best thing would be dying.  And God seemed to be okay with people dying.  And if you died of cancer, you got to go to heaven too.  Not like if you killed yourself.

Of course, it never happened.  I went through puberty.  I became the "young man" I was supposed to be. And I gave up on God.  Why not? He gave up on me.  I couldn't even kill myself.  It always went wrong.  The rope broke.  Someone knocked on the door.  The car stopped.  The bullies were all talk.

I was resigned to the fact that I was stuck here, like this, to suffer.  There was no escape.  Until one day, I was reading one of my grandmothers magazines (she used to keep them all) and there was an article about two girls.  One of the girls used to be a boy, but she changed that, she took medication that changed that. That changed her.

It took me a long time to act on that. I even tried to be a "normal" man.  Maybe all I needed was to find the right woman and all this would go away.  Maybe I was just lonely.  Maybe I wanted to be a woman because I thought no one could love me.

But after a few years, I realised that, whilst I loved my partner, she wasn't enough.  She didn't, couldn't fill the void.  I had to be me, I had to be female, or die trying.  She didn't understand.  She came to resent me.  Hate me even.  But in the end I had to try.  I was willing to give up everything.  And I very nearly did.

Fast forward a few years, and I did it.  I became me.  I am female. I am Sarah.  Sure it's not perfect and it was hard, and painful, but I'm happier than ever before.  I have a man that loves me, who even supported me through my surgery.  I have my family.  I have friends.  I am happy, for the most part.

I have pain from my surgery still, but it's not as bad as the pain I felt in my heart before.  I gave up the pain killers - that was hard - but with daily meditation, and the reminder that it could be worse, I get by.  Even though I don't have a vagina now, at least I don't have a penis.  At least everything looks right, down there.

Despite getting by, counting my blessings, I still wanted to live without the pain, so I found a specialist in vulval pain.  She checked me out, ran some tests, and consulted with other professionals.  Which brings me to today -

Sitting here, writing this, as I wait to find out what is wrong with me, what is causing the pain.  Ironically, it's been narrowed down to two things, a skin condition that is permanent, that causes the over production of tissue, which is the leading cause of vulval cancer.  Or, vulval cancer.  Visually, one can't tell.

If it is the skin condition, I will be seeing my specialist every couple of months for the rest of my life for deep core tissue biopsies, to check for cancer.  And if it is cancer, well, it's got about a 50% mortality rate, and a high probability that I will require a complete vulvecotomy, the surgical removal of my labia, clitoris, and lymph nodes, as well as possible surgeries on my bladder, bowel and prostate.

I know many will say I'm jumping the gun, that I might not have cancer, that I might be okay.  But, I can't really explain it, other than to say that the feeling I had in my soul, or my gut or whatever you call it, the one that said I should have been born a girl.  I have that feeling about the cancer.  I just know.  I can't explain it.

I can't tell anyone else, I tried talking to my partner, but he thinks I'm being premature.  So for now I have to wait a few more days until I get my results and can go for the imaging.  But I know.

It's funny really, I guess there is a God, right? And he was listening. He just had a huge backlog and he finally got round to answering me.

At least I got to be me for a while.

I know this seems like an attention seeking thing, but it's not, I'm not looking for anything, I just needed to write it down somewhere, I just needed to tell someone.  You don't have to understand, or feel sorry for me, or even care.  Most people probably won't even read this far.

I wouldn't change a thing though, you know? I wouldn't.  These last few years have been the best years if my life, and I will not just give up, I will fight, but even if I lose, I'm glad I had these last few years.
"There is a place you can touch a woman that will drive her crazy. Her heart." - Melanie Griffith
"It's true that we don't know what we've got until we lose it, but it's also true that we don't know what we've been missing until it arrives." - Unknown
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mrs izzy

Sure it is just not granulation that happens so many times with a neo vagina?

That is a constant overgrowth of tissue. Can cause pain and bleeding.


Mrs. Izzy
Trans lifeline US 877-565-8860 CAD 877-330-6366 http://www.translifeline.org/
"Those who matter will never judge, this is my given path to walk in life and you have no right to judge"

I used to be grounded but now I can fly.
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Mark3

Yes I read it, every last word...
I have so much in common with your story, but from a different angle..
I have liver disease, and they found a cancer on my liver, before I knew I was non binary.. Since then they removed what cancer was there, and so far so good.. But I've had the last few months of understanding what I am, and to enjoy my new universe.. Just like you, I don't know what my future will bring, or how long I have, but I'm so grateful I've discovered the things about me that I have, and now I'm certain my life is and has been worthwhile...

Please keep us posted, and I'll be happy to PM privately anytime you need to talk...
Blessings,
Mark
"The soul is beyond male and female as it is beyond life and death."
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Sarah_aus

Hi Izzy,

I'm sure it's not granulation, I've been back to the surgeon and several other drs and specialists, I only mentioned the latest because of its significance, and I will get a second opinion.

Hi Mark,

Thanks for the kind words, glad to hear you are clear for now, I hope it stays that way, and that you can continue to explore your new universe.

<3

Sarah
"There is a place you can touch a woman that will drive her crazy. Her heart." - Melanie Griffith
"It's true that we don't know what we've got until we lose it, but it's also true that we don't know what we've been missing until it arrives." - Unknown
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helen2010

Sarah/Mark

Quite inspirational stories.  It is funny that often those who have faced the greatest challenges appear to appreciate and to celebrate their lives more.  I salute you and will use your journeys as positive motivation when I face the inevitable curve ball that will come my way.

Safe travels

Aisla
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Taka

i think i learned from my parents that god will now give people what they think they need, but what he knows they need. you got a chance at being yourself, to know happiness. i'm really glad to know that you used the gift you got, and that your life at least won't be ending without you ever knowing anything other than pain. and we can of course hope that this won't kill you quite yet, your positive outlook on things would be appreciated for a long time to come, if you get that much time.
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Rachel

Mark and Sarah, I hope you are clear of cancer and have a long and happy life. You have gone through so much and I will be thinking positive thoughts for your full recovery.

HRT  5-28-2013
FT   11-13-2015
FFS   9-16-2016 -Spiegel
GCS 11-15-2016 - McGinn
Hair Grafts 3-20-2017 - Cooley
Voice therapy start 3-2017 - Reene Blaker
Labiaplasty 5-15-2017 - McGinn
BA 7-12-2017 - McGinn
Hair grafts 9-25-2017 Dr.Cooley
Sataloff Cricothyroid subluxation and trachea shave12-11-2017
Dr. McGinn labiaplasty, hood repair, scar removal, graph repair and bottom of  vagina finished. urethra repositioned. 4-4-2018
Dr. Sataloff Glottoplasty 5-14-2018
Dr. McGinn vaginal in office procedure 10-22-2018
Dr. McGinn vaginal revision 2 4-3-2019 Bottom of vagina closed off, fat injected into the labia and urethra repositioned.
Dr. Thomas in 2020 FEMLAR
  • skype:Rachel?call
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Sosophia

If there is a god , myself i think he might be all loving all knowing all powerfull , but i think also that he is still learning stuff from his position ,and that sometime its us who fix some of the things as we can , you dont have to let what god did or didnt make you doubt about your need or your feeling you shouldv been born a girl.
And dont even listen to me if it doesnt help at all.
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