Well, to be honest I'm deathly afraid of ending in a nursing home. I was in one after my hip replacement and when I was 20 I worked in one. The one I worked was the most uncaring environment and the one I spent time in after my operation 40 years later was not much different and that's not taking into account being trans. Even though the one I worked at was truly deplorable . The aids didn't care at all.

I have hearing problems and joint issues. I've given this a lot of thought. If there should come a point at which I can no longer function independently, and my quality of life has deteriorated, and there is no effective treatment ... well, I live in a country were euthanasia is an option. I certainly have no intention whatsoever of living in a home where I may be mocked or mistreated because of my differences, more or less at the mercy of others. That is not to say that it is certain that such a thing would happen (many nurses are incredibly kind and compassionate people) and there is always the possibility of home care (I have a friend in the Netherlands who works for home care company devoted exclusively to LGBT patients) - but should a time come when I have no other options, well ... I know what I'd prefer.

Thomas

Yeah, you guys totally missed what I was trying to get at. I guess the word "home" threw all of you off. I couldn't think of a better word. I'm not talking about a nursing home. I just mean a place that closely resembles a a "normal"-looking household specifically designed to help transgender people who are aging and disabled. It could employ only transgender people since other transgender people would be the ones being served, right?

~Nixy~

Quote from: Cindy on November 13, 2015, 11:32:40 AM
Well, not much!

What rich people!

Hm. So what ideas might you have in regards to this? While I may not be a genius or anything, I don't like to think of my ideas as "not much." That honestly really hurt my feelings.

~Nixy~

Quote from: King Phoenix on November 13, 2015, 08:56:30 PM
Yeah, you guys totally missed what I was trying to get at. I guess the word "home" threw all of you off. I couldn't think of a better word. I'm not talking about a nursing home. I just mean a place that closely resembles a a "normal"-looking housbehold specifically designed to help transgender people who are aging and disabled. It could employ only transgender people since other transgender people would be the ones being served, right?

~Nixy~

Quote from: Cindy on November 13, 2015, 11:32:40 AM
Well, not much!

What rich people!

Hm. So what ideas might you have in regards to this? While I may not be a genius or anything, I don't like to think of my ideas as "not much." That honestly really hurt my feelings.

~Nixy~

Sorry King I certainly didn't mean to offend you!
My apologies

Quote from: Cindy on November 13, 2015, 09:35:01 PM
Sorry King I certainly didn't mean to offend you!
My apologies

Ah. Its ok, Cindy. No hard feelings!^_^

This is a very touchy subject that's quite capable of startling us.

~Nixy~

I looked after my Mum for ten years until her dementia became so bad Mum had to go into 24 hr care.  My intersex daughter lives with me and she has visual impairments, is autistic, has fibromyalgia and suffers badly from PTSD due to having suffered shocking abuse at the hands of strangers.  Somehow despite that my daughter managed to acquire an international reputation as a software developer and troubleshooter, but due to her disabilities is unable to hold down a job or work on projects anymore.

And then of course there is me.  I have Chronic Fatigue/ME, narcolepsy and kidney failure (as a result of having been prescribed Premain).  Both my brothers would dance a jig and crack open bottles of champagne if I died and not surprisingly were no help at all and highly critical when I was caring for Mum.  Now that I'm having increasing problems with illness myself and not able to visit Mum because I can no longer drive my youngest brother has taken the opportunity to take me to task over my 'ability' to look after Mum's affairs.

I used to be a social worker with the adult community mental health service and it's not been easy to discover that all my training and experience is virtually useless when it comes to trying to care for myself.  At present my doctor has put through various referrals in an effort to try and get me the help I need, but I'm not holding my breath.  So far I've been told I'm too young and not disabled enough.  And because my daughter is living with me she should be looking after me never mind the fact that my daughter is disabled herself.  (My daughter does do her best to help me by the way).

Having watched my active and fiercely independent Mum disappear forever into dementia and become a helpless stranger has not left me with any kind of rosy tinted view of my own eventual passage into old age.  The list of things I used to enjoy doing and can't do any longer is steadily increasing, so yes I am worried about what might happen to me should I have to go into care.  And of course I worry about my daughter and what will happen to her once I'm not able to fight her corner anymore.

Bloody hell what a depressive tirade this post turned out to be (sigh).

In the NYC area there are outreach centers that have support group meetings for older LGBT people addressing the various concerns surrounding us. Slowly some states and a lot of cities are enacting better laws to protect trans discrimination.

One of the two primary reason these days why I am holding off fully transitioning is caring for my wife and the 'Us'. A transition may result in a job loss, followed by the loss of health care and our shaky financial empire. So I (try to) stay in this holding pattern I'm in while doing what I can to be a health care coordinator, cheer leader and rock for her.

I'm disabled 73 have diabetes heart problems DVT venous vein diffency leg ulcers.i hear that HRC is looking into the solution for elderly and disabled

Please anyone out there please check with a doctor to see if you can get DVT before taking hormones as DVT can be fatal. I have a friend who is on hormones and she developed DVT and has developed a lot of leg ulcers and minor wise her leg skin has turned permanently purple.