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Post-Op Stop HRT?

Started by Alaska_Rachel, February 17, 2017, 06:38:47 PM

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Alaska_Rachel

Hi,
I'm a 19 year old post op trans woman, I had the surgery about 1.5 years ago. I was on hrt for years before the surgery and up until 4 months ago. 4 months ago I went completely off of it to see if that would help improve my mental state, and it did tremendously. So much so, that I do not consider it an option to go back on estrogen. I simply won't.

I want to know what is going to happen to my body now that I have no sex hormones, as well as how fast the changes will occur?  Currently I have noticed a severe drop in strength, as well as aching all over my body, centered mostly on my back.

I have a doctor's appointment with an endocrinologist in my area but the earliest I can be seen is 2 months from now and I wanted more information quicker.

I recognize that it is very dangerous, and potentially life threatening. I don't want anything sugar coated. I just want to know what to expect so I can prepare for it.
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AnonyMs

Search the forums for osteoporosis, a few have had it. Not many, because very few stop hrt. You'll need estrogen or testesterone.

What hrt were you taking? Here's a few things that can cause problems.
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Dena

I would highly recommend against quitting estrogen. I was having difficulty getting it and my doctor thought it was time to stop because of my age so 10 years ago, I went off estrogen. I am slim but I lost fat off my legs and it ended up on my stomach. The worst damage was to my face as I developed sunken cheeks that made me look far older than I was. I am back on estrogen and the damage is being undone but it's still a work in progress. My levels are in the menopause range around 50 pg/ml so it doesn't take much to do the job. One pill a day would be enough to maintain your looks and keep your bones healthy.
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cej

I know an older post op trans women who hasn't been on E for over a decade. She's doing fine.

Eunuchs have existed for millennia, so you have a decent chance of survival. You might want to play around with other hormone regimens though (adding progresterone if you weren't doing that before, or small amounts of T, or try a different E delivery mechanism) to see if there's anything else your brain can handle
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apsharas

My endo kept me at the same E dosage pos-op, just removed the cyproterone acetate. That one may be the culprit for my worsened mood / depression, as things are better now (not only because of the effect of SRS).

The 40 days I was off HRT (speciall after the balls went away) were hell. My body does not like not having any sex hormone.
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KayXo

If you don't take any sex hormones, you might encounter the following symptoms:

- osteoporosis
- brain fog, lack of concentration
- muscle aches, joint pain
- tiredness, lack of motivation/drive
- memory problems, over time increased risk of Alzheimer's, Parkinson's
- anxiety, depression, irritability
- ageing faster
- weight gain
- increased risk of diabetes type 2, over time
- very low libido
- sunken face and some loss of feminization

The outlook is not so good on low sex hormones. You need to discuss this thoroughly with a doctor that has knowledge in this matter and understands the risks associated with low sex hormones.

The HRT you might have been on post-op could have been inadequate for you. Orals can sometimes intensify menopausal symptoms in some.
I am not a medical doctor, nor a scientist - opinions expressed by me on the subject of HRT are merely based on my own review of some of the scientific literature over the last decade or so, on anecdotal evidence from women in various discussion forums that I have come across, and my personal experience

On HRT since early 2004
Post-op since late 2005
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AutumnLeaves

I think you need to seriously reconsider your actions. To be without sex hormones at 19 is to risk rapid bone loss and probably osteoporosis and deformity (think of those old women you see who look like hunchbacks; this is due to their fragile vertebrae cracking then healing time after time after time.) You will lose breast tone and some of your feminine body shape, though you won't return to your "male" status due to having had surgery. You are also likely to suffer from hair loss, sweating, rashes, trouble sleeping, dry skin, headache, and possible emotional issues. There was a time I had to go off hormones when post-orchiectomy to see if it helped my migraines, and I felt so horrible I can't imagine ever going back to that. April Ashley, in her book, discusses having gone off HRT after surgery due to bad medical advice of that period, and she ended up with multiple bone breaks and a heart attack.

I don't know what was wrong with your "mental state" that you thought "life threatening" complications was worth going off HRT, but I strongly suggest you make an appointment with a psychiatrist or other mental health professional in addition to the one you have with your endo. I don't know what HRT you were taking, but for most people plain old estradiol has few side effects and certainly nothing worth risking your life over by stopping. You are very young, and the risks of stopping HRT are much higher than for a woman who stopped, say, in her 50s or something.
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