Hello,

As the subject says, I'm new; just made an account.

I'm 21, nearly 22 this month, and I need to know the truth behind the surgeries, connect with other people who has a similar condition and to help figure out what, and who I am.

My medical records shows that I have an Adrogen Insensitivity syndrome, where I have XY chromosomes along with ambiguous genitalia (?) But I cannot produce my own hormones, and doctors where sending notes to America and doing tests, they injected some of each hormones and I was receptive to estrogen.

I've had several surgeries over the year to "correct" what I'm told as," having a little bit poking out, and the labia were fused." Also finding a letter, which described, "I've had the perfect pair, but it would potentially become cancerous," (I no longer have this letter and can only remember so much)

Over the years I would have regular check ups to have downstairs checked out while under, probably to check out the uthea and general medical jargon.

I had to learn some of this slowly, and at time, where I get to overwhelmed by it all. I've struggled for so long on my sexuality, and what downstairs should be.

I've had sexual intercourse and always find it uncomfortable, and at times painful. I prefer to do things alone and even the only pleasurable sensation I get is from my clitoris. This has put me of from wanting to be intimate or worse fearing that something could get torn.

My mental health isn't in a great place, I have a history of self harm and I am currently seeing a counselor for this.

I can't help but feel they should have left it alone, and I can never be able have that back. I don't know if there's any cases where it's gone cancerous, or if that is true. I keep going in circles.

Should it have been corrected?
What would have happened if it has been left alone?
Would it have the internal organs, however formed, turned cancerous? If so, how many cases?

I hope that I could get the answers I'm looking for, thank for taking your time to read this topic.

Welcome to Susan's Place. Adrogen Insensitivity syndrome is one of the intersex conditions but it can occur to varying degrees. Some people are mildly so and others are 100%. The ones who are 100% appear female to the point where often they weren't diagnosed until the doctors tried to determine why they weren't having periods.

Depending on the surges that were preformed on you, some are needed and many should wait till latter. Doctors are more careful about the surgeries they preform but not always. One of the issues is you could have been producing massive amounts of testosterone and that was converting to estrogen. Removing the testicles might have been a good decision as I have heard elsewhere about the cancer risk.

We have others who are intersex though they aren't highly active. On the other hand, I have been learning about the subject so I will answer what I am able to.

We issue to all new members the following links so you will best be able to use the web site.

Site Terms of Service & Rules to Live By	Standard Terms & Definitions	Post Ranks (including when you can upload an avatar)
Reputation rules	News posting & quoting guidelines	Photo, avatars, & signature images policy