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I have been taken off hormones how do I cope

Started by bobbisue, December 02, 2017, 09:41:07 PM

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bobbisue

     I have been taken off hormones 1 week ago no blockers either due to a DVT I understand that this must happen for me to recover but I am having a terrible time the brain fog is returning my temper is getting short and I am crying all the time  what am I to do ?

   bobbisue :(
[ gotta be me everyone else is taken ]
started HRT june 16 2017              
Out to all my family Oct 21 2017 no rejections
Fulltime Dec 9 2017 ahead of schedule
First pass Dec 11 2017
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Laurie

 You can ask for  patches or injections. Both methods are supposed to alleviate the concerns of DVTs.
April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



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bobbisue

    To clarify I was on androcour and estrodot patches estradiol 17b I had had hernia surgery At the end of october and I believe this is what brought on the DVT however my doctor said it was possibly the most extensive he had ever seen and both my docs agreed I must quit HRT for at least 6 weeks  thank you for your concern Laurie  That deep dark hole is looming closer I need a coping strategy knowing there are people out there who care helps


    bobbisue
[ gotta be me everyone else is taken ]
started HRT june 16 2017              
Out to all my family Oct 21 2017 no rejections
Fulltime Dec 9 2017 ahead of schedule
First pass Dec 11 2017
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echo7

You can try getting plenty of sleep, try to relax, and reduce sources of stress in your life.  Lose yourself in a good book or movie or Netflix TV series to keep yourself distracted.
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JoanneB

I would ask about staying on Androcur since E is the only real concern for DVT. It is amazing what a rise in your T level can do, especially cold turkey
.          (Pile Driver)  
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                    ^
(ROCK) ---> ME <--- (HARD PLACE)
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Devlyn

Big hug! I know the feeling, I've been off the girl juice twice. You just need to slog through this temporary slowdown.  :)

Hugs, Devlyn
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jessica95

Quote from: bobbisue on December 02, 2017, 09:41:07 PM
     I have been taken off hormones 1 week ago no blockers either due to a DVT I understand that this must happen for me to recover but I am having a terrible time the brain fog is returning my temper is getting short and I am crying all the time  what am I to do ?

   bobbisue :(
Off female hormones? I see, must be the sudden change, from being on to not being on, the body is probably trying to adapt. Hmm, dont give up and be strong. And perhaps talk to doctor and therapist for advice and help?
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Kylo

It helps being completely aware that any mental changes are a result of the hormonal drop (and temporary). If you know that you can look out for mood changes and try to do things to raise mood. I know this isn't a "solution", but not being aware and falling into inexplicable depression and anxiety is worse in my view because a person can attribute the cause to any number of other things incorrectly and go off the rails. When you don't know the cause it's easy to assume its a permanent problem as well, when it isn't. Speaking from experience.

If you suffer badly, perhaps some anti depressant or anti anxiety medication may help you in the meantime to avoid intrusive thoughts. But they won't improve brain fog. One thing that does help with brain fog and low energy to a small degree is cutting carbohydrates from your diet and going on a low carb high protein diet. You have to get past the first week or two before feeling the benefits.
"If the freedom of speech is taken away, then dumb and silent we may be led, like sheep to the slaughter."
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Rachel

I was off HRT for FFS and GCS. I think it was I think FFS was 3 weeks and GCS was 6 weeks. I was allowed to stay on spironolactone except for GCS when I had to stop 2 days before.

I do not know is androcour is like spiro but there was a profound change in my potassium and magnesium levels. So eating the correct foods to counter the mineral shift is important.

I felt that as my times off HRT progressed I felt dull and lethargic. I never had cold sweats or the like. I was able to stay on spiro so T was not an issue.

Exercise for me was an issue because of the surgeries; I could not exercise. Exercise raises my spirit.

Depression can be an issue and you may want to review it with your doctor.

I hope the time goes fast for you. Sorry for the loss of HRT but in the bright side a DVT could have done you in. When I finally was able to go back on HRT it was an awesome feeling. So perhaps focusing on how the feeling of being back on HRT will be will help.
HRT  5-28-2013
FT   11-13-2015
FFS   9-16-2016 -Spiegel
GCS 11-15-2016 - McGinn
Hair Grafts 3-20-2017 - Cooley
Voice therapy start 3-2017 - Reene Blaker
Labiaplasty 5-15-2017 - McGinn
BA 7-12-2017 - McGinn
Hair grafts 9-25-2017 Dr.Cooley
Sataloff Cricothyroid subluxation and trachea shave12-11-2017
Dr. McGinn labiaplasty, hood repair, scar removal, graph repair and bottom of  vagina finished. urethra repositioned. 4-4-2018
Dr. Sataloff Glottoplasty 5-14-2018
Dr. McGinn vaginal in office procedure 10-22-2018
Dr. McGinn vaginal revision 2 4-3-2019 Bottom of vagina closed off, fat injected into the labia and urethra repositioned.
Dr. Thomas in 2020 FEMLAR
  • skype:Rachel?call
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xAmyX

If I was in a situation where hormones may need to be reduced/removed temporarily until a problem is resolved, my main priority would be resolving that problem so that I can get back to my life's goals. Easier said than done, but with enough determination you will get there! Eat a healthy diet, exercise, get plenty of sleep every night, drink plenty of water, spend time with people that make you happy. Stress plays a huge factor. When you take care of yourself, you'll be surprised how much faster you'll reacquire homeostasis. Speak your concerns with your doctor as well. There may be some options that are completely better than no option at all. There are many different types of AAs, and different types, and routes of hormones as well. Some may be bad in your particular circumstance, but others may be fine. If you are still against all magnitudes of information declined, see another doctor and get a 2nd opinion. Do what you gotta do.

bobbisue

+     Thank you all for your concern and advice I have an appointment with the doctor in charge of my transition the original intent of the appointment was to check my progress and for a referral to the first psychiatrist I must see for a letter for GCS but the scope of this appointment has changed I do hope I can get back on blockers and also get my referral

   bobbisue :)
[ gotta be me everyone else is taken ]
started HRT june 16 2017              
Out to all my family Oct 21 2017 no rejections
Fulltime Dec 9 2017 ahead of schedule
First pass Dec 11 2017
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xAmyX

You're welcome! Hope everything goes well with your appointment. Get back with us, and let us know how it goes. I'll be rooting for ya!

bobbisue

    Monday was really bad my brain fog was so bad I found it nearly impossible to pack my suitcase somehow I made it to the city my DR appointment was Tuesday morning this went quite well I am now on a different blocker Spiractilone  It has a few different restrictions but I dont care My brain is working close to normal already I dont know how soon I will be back on   E as I have to see a blood specialist first and my doc is looking for a trans friendly  one Things are set back but I am still on track

   bobbisue :)
[ gotta be me everyone else is taken ]
started HRT june 16 2017              
Out to all my family Oct 21 2017 no rejections
Fulltime Dec 9 2017 ahead of schedule
First pass Dec 11 2017
  •  

xAmyX


Brooklyn

It sounds like you are getting there... Remember to take it one day at a time and you'll be back on E.  ;)
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Laurie

Quote from: Brooklyn on December 06, 2017, 09:39:01 PM
It sounds like you are getting there... Remember to take it one day at a time and you'll be back on E.  ;)

  Hi Brooklyn , I see that you are new here. So please let me say, Welcome To Susan's Place! Come on in and take a good look around.  Perhaps I can even get you to hop on over to the Introductions Thread and  create a post to tell us a little bit more about yourself so we can get to know you a little better and greet you properly. I'll add some links and information below that can help you get more out of our site. Please take time to become familiar with them especially the RED one as we are always getting questions that are answered there.
Laurie
Global Moderator
Laurie@susans.org

Things that you should read


April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



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