Quote from: Night Haven on November 05, 2013, 12:37:22 PM

I have to second LearnedHand. Could this apply to those who've gotten oophorectomies as well?

Nothing is ever completely without risk, however this one isn't actually that high on the list of probables.

Obviously if you are one of the few unlucky ones who do suffer then you will tend to hear about others, because people will tell you "oh yes I heard about xxx who had that..." So it's a bit like driving an unusual car - before you buy one you never see them - then suddenly when you have one they appear everywhere because you start to notice them.

Fact is from what I have seen this is a relatively rare complication, but it can't be easy to believe that, when you were the unlucky sod who went and developed it... because for you, as it turned out, the risk was 100%.

All I can tell you is that from the figures I have seen this is not something that most of us need to lose sleep over.

Quote from: Princess_Jasmine on March 19, 2013, 04:18:42 AM
My main point in all of this is that the dramatic hormonal shift / disruption of the HPTA axis caused by SRS/Orchi can set the stage for an autoimmune thyroid attack leaving one completely hypothyroid in just a couple of years. It happened to me, and it happened to others I know in real life. Therefore, this is something that everyone should be made aware of. Thank you!

I went through the same thing, but I wound up getting thyroid cancer! So definitely a good post! I hope you remember me girl?!

Thanks Jasmine and Peky et-all, It is good to let people know about these things, so at least if they get Symptoms they can bring it up with their Dr's.

Good post and thread, thanks 

L Katy

FTM here. I was diagnosed with hashimotos at age 13.  Not overweight, no diabetes. Just very fatigued and a slightly swollen thyroid gland. It's been well controlled for over 30 years by taking thyroid replacement, with occasional dose adjustments .
Anyway, you do NOT have to be overweight to have hashimotos. But it does make gaining weight very easy and losing weight very difficult.

After having read this post, I looked into the symptoms of hypothyroidism, and I have most of the symptoms. I'm going to check with my endocrinologist, as this would explain of lot related to how I've been feeling in the past year or so. Thank you for posting.

Quote from: Princess_Jasmine on March 18, 2013, 11:09:04 AM
Dear everyone on Susans.

I would like everyone to be made aware of a very serious health problem that can happen to you when you go through SRS/orchi. This may or may not happen to you, but you should be aware of the symptoms so that you can get it treated in order to ensure a successful transition. I am talking about AUTOIMMUNE THYROID DISEASE, that is usually triggered by dramatic hormonal shifts/disruption of HPTA axis. So, it makes sense why myself and many other transpeople I know also experience this disease due to the disruption of HPTA axis after both SRS and Orchi. I have heard of it happening to one Tgirl I do not know personally after 3 years on hormones and no surgery, but my own experience is that SRS and Orchi have triggered it among both myself and other Tgirls I am close friends with in real life.

I have been posting on these forums for approximately 3 years now, but for the past 2 years I have been posting about how I have defeminized post op, regardless of how "optimal, low, or high" my estrogen levels have been. My breasts have diminished, I grew weird facial hairs I did not have before, developed depression and fatigue, and also developed serious brain fog. I never had any such symptoms or this feeling of "loss of my old self" before my SRS. My HRT blood tests would come back perfect And FINALLY I have figured out the problem!

Finally, after 2 years, I broke down in front of my teacher at school during her office hours and told her all of the problems I had been having (brain fog, hair loss, depression, no energy, never feeling tired, never feeling hungry, weight fluctuations, food intolerances) and I told her I had nothing to be depressed about but yet I was. She looked at me like it was an epiphany moment and told me the exact same thing happened to her after she gave birth to her second child. She told me giving birth the second time around triggered autoimmune hypothyroidism that went undiagnosed for 12 years before a doctor finally did the right tests and treated her for it. I told her all of my doctors tested my TSH and they always called me and said it was fine. I also told her that most doctors laughed at me when I asked if I was hypothyroid because they said only overweight people could have hypothyroidism. Surely, they said, someone who was a skinny girl like me could not possibly have it. One doctor even laughed at me and said "well you're skinny so you if you do have a thyroid problem, you're probably hyperthyroid and not hypo!" My teacher, flabbergasted, told me that the TSH is a pituitary hormone and can take many many years (in her case it took 12) before the TSH matched how low her actual thyroid hormone levels (free t3 and free t4) had been all along. She urged me to go get a bunch of tests done, and so I found an endocrinologist willing to do it. After visiting countless endocrinologists, I found one (who ironically goes to my church) to do all of the correct tests for my thyroid (a full thyroid panel, not just the TSH like most doctors).

Well, wouldn't you know it! At only 21 years old, my SRS for me triggered autoimmune thyroid disease. My thyroid labs came back, and my thyroid hormones (free t3 and free t4) were at the bottom of the range! Also, the explanation of how the thyroid goes through stages of hyper and hypo over a period of months to leaving one completely hypothyroid after a couple of years perfectly explained why every couple of months everything continued to worsen (weight fluctuations, hair loss, etc)! I also have read on another forum of another T-girl who went through exactly what I did, except she never had her surgery. She had simply been on hormones for three years, and something "changed" like it did for me after my surgery.

I am finally being treated for this condition, and I am on the path to feeling like my old self again! It takes a while for your body to readjust, but my depression is gone (yay!!) and already my body is looking back to its feminine self The reason I feel this is necessary to be made known to everyone is that I know of at least a couple of other T-girls in person who have the exact story as me as soon as they completed their SRS, and I am shocked at how common it is. The part of this all that irritates me is that most doctors will blame it on depression, especially if you are female and especially if you tell them that you're trans. It's simply assumed that depression is always the cause, but for me I knew it was a side effect of something else (not the cause)! I just know my body and I knew something was not right. I never thought something like this could happen to me at only 21 years old, but I am hoping that my story will urge others to go get their thyroid checked if they are experiencing the same symptoms after their SRS/orchi or having been on HRT for years. Now at age 23, it took me 2 years to finally put this mystery together, and I hope that everyone will be made aware of how autoimmune thyroid disease can really put the brakes on your transition no matter what stage you are in.

P.S. I forgot to mention that the "adrenal overdrive" that some people notice after SRS/orchi is likely due to the beginning stages of hypothyroidism, where the thyroid actually goes hyperthyroid. Hyperthyroidism triggers the adrenal glands to release higher cortisol/hormones in order to block excessive thyroid hormone levels from pooling in the blood. Some people are lucky, and the thyroid will regulate itself after this stage and function normally. However, others will be left with autoimmune hypothyroidism. Just some of my research I thought I would share

Kisses and hugs to all of my sisters xoxo

I am experiencing the same thing right now, after more than 1 year going 2 years of srs, everything went downhill, i lost a lot of my hair in my temple high/low dose of hormones, finarid, minoxidil etc nothing stopped my hairfall, I look tired and old, I am deperate, the problem here in my city Endo's are limited, Sis I hope you can pm me I have question. Thank you

Quote from: moon20heart on March 17, 2019, 07:34:15 AM

I am experiencing the same thing right now, after more than 1 year going 2 years of srs, everything went downhill, i lost a lot of my hair in my temple high/low dose of hormones, finarid, minoxidil etc nothing stopped my hairfall, I look tired and old, I am deperate, the problem here in my city Endo's are limited, Sis I hope you can pm me I have question. Thank you

@moon20heart 
Dear Moon20heart:
     I am so very glad that you have become a member here and that you found the Susan's Place Forums.

    As you continue to post on the forums you will be able to exchange thoughts and comments with others that are experiencing many of the same things that you are.   I expect that you will be getting many members offering their thoughts and suggestions as you continue to post here. 

    This is the right place for you to be to find out what others may have to say that may have been in your circumstances and with your questions and concerns.
    There are a lot of members here that will be able to identify with your situation and as you continue to feel free to share with all of us.

    I also want to warmly WELCOME you to Susan's Place. 
You will find this a safe and friendly place to share with others and to read about others similar trials, tribulations, and successes.

    As you are certainly aware you can share with others and involve yourself with some give and take with other like-minded members.  When frustrated or if you have successes you can share it here if you wish and receive support from others and offer support to others. ....
     ***There is a very good chance that you might find that you will make some new like-minded friends here. 

    Please come in and continue to be involved at your own pace.
   
    I have attached important and informative LINKS that will help you to navigate around the Forums and will allow you to enjoy the features here.     
Please look closely at the LINKS in RED, answers are there to many questions that new members ask.

Again, Welcome to Susan's Place.
Danielle

Here are some links to the site rules and stuff that all new members should be familiar with:
 

Site Terms of Service & Rules to Live By	Standard Terms & Definitions	Post Ranks (including when you can upload an avatar)	Cautionary Note
Reputation rules	News posting & quoting guidelines	Photo, avatars, & signature images policy	Membership Agreement

@moon20heart   
Oh, and another thing Moon20heart...
Please plan to write a post and tell us more about yourself in the Introductions Forum so that other members will be aware of your arrival... therefore you will be able to share your thoughts with more members here.
     
Thank you again for joining Susan's Place and being involved in the Forums here.
Best wishes to you,
Danielle
NOTE: Now after all of this Greeting Stuff I will let everyone have this thread back so that the exchange of conversation can continue.
Other members here will certainly be along to give you their comments and suggestions that you may be seeking