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How long does it take you to dilate?

Started by Sonoshee, April 05, 2019, 10:32:32 PM

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Sonoshee

I'm 14 months post-op. I'm supposed to be dilating only once a week now but I'm been having issues with my dilations taking extremely long (about an hour and a half in total) because it takes me so long to get it in. I'm trying to slowly work my way up there but today I had bleeding for the first time in like 6+ months.
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AnonyMs

Sounds like you need to do it more often.
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Dena

The schedule may say you're once a week but your body is telling you that you need more. I suggest you consider bumping it back up to once a day for a few months until insertion is easy then start tapering off till you find what works. Probably every other day then try twice a week. If you start having trouble again, return to the level you were at before the last reduction.

To answer your question, I take 35-40 minutes. About 5 to prep for dilation. About 2 minutes to reach full depth, 20 at full depth then the rest is cleanup. I only dilate once a week however I can go much longer if I am willing to step up the rate for a while to get things back to normal. At 36 years post surgical, things are pretty stable.
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Sarah.VanDistel

Still very new to this (GCS on 20/03)... According to my schedule, I'm doing 3×30' per day + full night. Takes me 5 min to get ready, 2 min to insert to max. depth and 5 min to clean up.

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CynthiaAnn

Just about 3 years post op here, for me it's ~10 - 15  minutes daily (per my dr), I have no issues getting to full depth, feels great, glad to say...

C -
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Mia

I did great the first year post-op, but then I started noticing narrowing and my dilations became more difficult. The less I dilated, the longer it took and I started having bleeding. My dilations were an hour plus as well.

I am now about 18 months post op and am pretty much starting over again - the doctor said depth is good but I need to go back to a #1 and dilate 3-4x daily, moving up a size every week. So far that's working well. Bleeding is minimal, just the first day I move up a size.

I'm also waiting to see a pelvic floor therapist to see if I can learn to better relax the area, I believe I hold stress down there which may be complicating things.

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Mia


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Autrement

Thanks to all for this valuable information.

@Sarah.VanDistel : do you mean you dilate all night (is it doable to keep it in all night)?

Hugs.

Pascale
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Sarah.VanDistel

Quote from: Autrement on April 06, 2019, 08:58:27 AM
Thanks to all for this valuable information.

@Sarah.VanDistel : do you mean you dilate all night (is it doable to keep it in all night)?

Hugs.

Pascale
Hello Pascale!

Yes, I do mean *all* night (roughly from 22h00 to 5-6h00). Of course, you have to wear an elastic panty, otherwise the dilator just glides outside. It's perfectly doable but uncomfortable, albeit not painful. No need to tell you that I get a big relief at 5h00! This will go on till I complete one month post-op... then I'm supposed to switch to a dilator of a somewhat larger girth ([emoji27]), depending on my evolution (again 3×30'/day plus whole night). Then two months post-op I'll start with 30-60 min. 2-3× a week (no nights!) for pretty much the rest of my life...

I don't know if this scheme has anything to do with the particular technique my surgeon used (peritoneal pull-through), but it's apparently how it's done at the University Hospital in Ghent, Belgium. [emoji2370]

No matter how annoying this is, I still didn't get second thoughts, so it can't be *that* bad. [emoji6]

Warm hugs, Sarah

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Sonoshee

Thanks for the info, everyone. It would seem I have some issues if dilation is not supposed to take so long. I'll keep dilating more often for now and have my doctor examine me soon.
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Autrement

Many thanks Sarah.
This is the first time I hear about dilating during nights. It seams to allow doing less during the day.

Hugs.

Pascale
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Gail20

FYI . . . I'm 18 mos post-op and still dilate daily for about 40 minutes. My body seems to really absorb lube very fast. While I'm dilating, and at full depth, I often have to remove it and re-lube otherwise it sticks and is very painful to get unstuck.  Overnight for me would a total disaster . . .
"friends speak for you when you can't speak for yourself" :)
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phydelia

Quote from: Gail20 on April 07, 2019, 01:45:14 PM
FYI . . . I'm 18 mos post-op and still dilate daily for about 40 minutes. My body seems to really absorb lube very fast. While I'm dilating, and at full depth, I often have to remove it and re-lube otherwise it sticks and is very painful to get unstuck.  Overnight for me would a total disaster . . .

Maybe a silly question, but have you tried different kinds of lubes? I started having that that problem around 6 months out with water-based lube (possibly due to massive granulation). I switched to silicone, which doesn't really absorb the same way, and it helped a lot.

For me, after about 18 months, I dilate every other day for about half an hour, using the soul source purple>blue>teal. A couple minutes to get full depth, then about 5 min with the small, 6-7 with the medium, 10 with the large.
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Emjay

I'm at approximately the same place as you, about 14 months.  I've been seeing a physical therapist and dilate daily still.....

I was stuck at the second smallest one until I started seeing her and she really started working on breaking up scar tissue that had formed.....  it's a lot of stretching basically for me.   I started with the one I was on, insert a little and roll the bent end across the sides, stretching the tissue as I go....  not towards my belly or back, just the sides.  In a little more until I feel resistance, stop there, repeat stretching....  it's like massaging the scar tissue to break it up.   I did spot when I started doing all of this but hardly ever do anymore.   It really works!  Currently I spend between 15-30 minutes a day doing this.  Won't even lie, she pushes me in session and it can be a little painful at times.  I know I don't push myself as hard as she does but ive gotten such good results that I can't say enough good about the benefits.

I'm now up to the biggest one and almost can get depth with it.  If your surgeon can recommend someone local who does pt, it's definitely worth a try!




Start therapy:                            Late 2013
Start HRT:                                 April, 2014
Out everywhere and full time:      November 19, 2015
Name change (official):                            February 1, 2016
I'm a Mommy! (Again) :                             January 31, 2017
GCS consultation:                        February 17, 2017
GCS, Dr. Gallagher (Indianapolis, IN)  February 13, 2018
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Marcie237

Just my thoughts on this..
Hard dilators are, well, hard. Even the silicon ones. They hurt unless you are already at that size.  I have gone back to an approximation of what I first knew - what Stanford first gave me, though they had a custom made tube:
Get some large condoms. I use skyn. (Target)
Get some open cell foam.
Squeeze foam and unroll condom over it.
Wash condom lube off (unless you like that stuff!)(ick!)(I use a tiny bit of dial liquid) - I keep the end pinched to keep water out.
Squeeze condom and twist end to keep it squeezed.
Put your lube of choice on it, pop it in, and release the twisted end to let air in.
The foam will do its thing and expand slowly with very little discomfort.
Leave it in as long as you wish. Meditate, listen to rife frequencies, binaural beats, etc (youtube converted to mp3).
Every few days you might wish to try a hard dilator briefly to see size change. I don't use a hard one unless it is easy to slide in.
Enjoy!

When done, roll the condom off the foam, toss it, and set the foam aside in a drawer - protected but doesn't need to be sterile.
As you gain size, just add more open cell foam before you squeeze and unroll condom over it.
No pain, no pain. - I suggest gentle and persistent. (GCS 1975)

Gail20

Quote from: phydelia on April 08, 2019, 08:27:08 AM
Maybe a silly question, but have you tried different kinds of lubes? I started having that that problem around 6 months out with water-based lube (possibly due to massive granulation). I switched to silicone, which doesn't really absorb the same way, and it helped a lot.

I use a gel that had been fantastic.  Ive tried some of the others that are thinner and much more slippery but they seem so messy and harder to use . . . but then again, I guess I'll give them another try . . .
"friends speak for you when you can't speak for yourself" :)
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TheRitz

Only a month in and it takes me about an extra 20 min to dilate.  Depends on the day and how tight I am, I probably get it in a bit sooner but I find focusing on reaching depth makes my clamp up so relaxing and ignoring the fact that I am doing it just makes the process easier for me.  It just slides in and feels fine~ Getting those last few MM feels like I am not pushing at all, which is why it goes unnoticed.

That said I rather take more time and be delicate, then be hasty and hurt myself.  Bleeding is 'normal' except it shouldn't be a norm. If that makes any sense~
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