And there's my dilemma, that need to protect my family vs my own needs. *sigh* And I generally tend to put other people ahead of myself, always have.
Last night I was feeling particularly miserable. My body was all "oh yeah, ovulation, that's a thing I should do!" and because my ovaries are like 90% cyst that means an hour or two sitting unable to move, taking shallow breaths because anything else is too painful and cursing my stupid body for being so useless.
My chest was also SO sore I couldn't even brush against it without wincing.
My body is terrible at this whole "woman" thing. It genuinely seems to have no idea what it's doing. Never has, never will.
I've described it before as being like a car running on the wrong fuel. That's how it feels.
I said to husband, even without the dysphoria i'd for years wanted to have these stupid ovaries removed but the idea of being on female hrt for the rest of time horrified and scared me. I was actually given the low micro dose estrogen they use for exactly that a while back and my blood pressure spiked after just ONE pill. The doctor panicked and told me I was never ever to take any more ever. And that was the tiniest dose they do!
The thing that's always stopped me having my ovaries just taken out is the fear of how much sicker hrt would make me. I produce very very tiny amounts of feminising hormones apparently, next to no fsh, next to no lh, very low estrogen and progesterone but my body is used to such low doses so it kinda.. almost.. functions on them. You give me synthetic hormones and it's too much for my extremely sensitive system and overwhelmed it.
Estrogen could quite literally kill me by giving me a stroke.
Which is pretty scary.
Of course there's no guarentee testosterone wouldn't do the same thing. It may be that i'm just not designed to tolerate hormones in general because my system is so broken. Which sucks.
I feel unwell right now because I have progesterone and estrogen surging through my system and they'll continue to fight one another and not actually know what they'll doing for a good month or so until I finally get a bleed, some brief relief and it all starts again.
I'm on cd 36 today. Normal women ovulate around cd14 but I never do. cd35 is actually pretty normal for me. It means in most cases the eggs aren't viable. The fact I managed to have 3 kids despite that is frankly miraculous. By all medical science I should NOT have been able to have kids. My middle kid was a cd30 egg! That shouldn't have been possible.
But just because I ovulate on cd35 (if I have a cycle at all, half the time I don't) doesn't mean i'll get a period in 2 weeks. Nope. What will happen is i'll get headaches on and off as my progesterone falls, forgets it's supposed to be dropping and starts to rise again and my estrogen does the opposite. They will yoyo for weeks and weeks till one eventually wins and i'll finally have a period but till then i'll be SICK as anything and in agonising pain. My chest hurts, my stomach hurts, my head hurts, I feel nauseated and foggy and just generally unwell.
and it's only getting worse.
Even without the dysphoria this is pretty intollerable. I have for the past 5 years or so really honestly wished for early menopause or something just so I can be DONE with it, but of course then there's the hrt problem.
Much as i'd love to whip the whole lot out it makes me nervous because I know there's a real chance no hormones will work for me and the idea of osteoporosis is just not fun. But also because my aunt, who had similar issues to me with her body had a full hysterectomy and was left with endless trouble including her bladder leaking into her blood stream!??? AIEEE!
That sort of terrified me.
thing is, a lot of women have hormonal problems but they don't go "if I was a man this would all be better". Do they? They don't tend to fantasise about taking testosterone. I'm pretty sure the majority of them would be really uncomfortable with the idea of taking T to fix their problems because they wouldn't "want to be masculine" but for me? The idea is super appealing. Not just because of the idea it might maybe possible fix a lot of my issues but because I never bloody asked to be a woman in the first place!
And it's sort of this cruel irony that I never asked to be a girl but was given the most terribly defective female body anyway. (it has no idea what it's doing like.. at all. I mean heck, it even got confused about which duct system it was supposed to form so I have a remnant of the wolfian ducts too! WHY? why body? WHY? and thinking about it, this might be why they checked my chromosomes... hmm.)
and that defective body does NOT help the dysphoria.
I wonder if maybe if it worked okay, if I didn't get all these horrible symptoms and the constant sickness that maybe i'd be able to just cope with being a masculine presenting girl. I wonder if it's making my disconnect with by biological sex all that much worse.
But the last ditch effort the doctor suggested was a mirina coil which involves an internal and she herself was reluctant to do it because I sort of scream during internals....
they're horribly and unpleasantly painful and made worse by my anxiety relating to them.
if the mirina coil didn't help and in fact made things worse they'd have to go back in there and retrieve it and just eugh.. the idea of two traumatising internals is too much.
I personally wanted to try the implant but the doctor had been given a batch she didn't trust (it was causing problems for a lot of regular women) so said it was a bad idea.
Having a thing stuck into my arm seemed way less horrible than a full internal.
I do have a very very nice doctor who does really understand how unpleasant I find the whole thing, but her hands are pretty tied by NHS protocol. she wanted the hospital to do the coil insertion with me under gas and air or some other form of sedation but the hospital refused because it's "not protocol" and my doctor was angry at them. But that's how it goes on the NHS.
I have to wonder how surprised she'll be if I go in and ask for a referral to the gender clinic.
The drug I found personally the absolute worst? Clomid. Oh my god clomid is horrible! (it's a fertility drug for those not in the know) Clomid tricks your body into producing more estrogen which in turn makes you produce fsh to mature some nice little eggies. And you know what that did to me? It made me INSANE. I at one point actually punched my husband, in public, several times, because he took me to a regata I didn't want to go to. Okay I was also cripplingly depressed at the time but the drugs did NOT make things any better. I felt out of control, disconnected, a passenger in my own crazy train. My emotions were all over the place. I spent days hiding in a bedroom crying, screaming, wanting to punch things. Clomid makes most people a bit crazy but I HATED the feeling so much. I had no control, I have no doubt had I remained on it I would have actually really hurt someone. Which is a frightening thought. I mean there were points I wanted, so much, to actually severely injure my other half over stupid irrelivant things. Even pregnancy didn't make me that psycho! It took SO MUCH strength to not rip his throat out with my teeth (Genuinely, I wanted to! I was like a freaking animal!)
The rage was just... wow... intense. I've never felt such intense uncontrolled anger. i was one step off flipping a dang car!
Poor guy had to deal with a lot. That he didn't run for the hills says a lot about his character.
Hormones man... just eugh... I mean more power to you ladies who willingly pump estrogen into your bodies. Makes me want to curl up and whimper. *shudder*
But I suppose that's the thing isn't it. My brain is geared up for one set of hormones, my body for another and they're in constant conflict.
I'm a petrol engine pumped full of diesal, no wonder nothing works right.
But eugh...
Surgery freaks me out. I worry it'll go wrong and i'll make things worse. Honestly the fear of making things worse has me frozen and unable to move forward. I just keep thinking "well sure, things are bad now, but they could be way worse. And if you do something more permanant and it makes stuff worse, you can't go back"
If I knew it'd all go perfect and fine i'd have had a bloody hysterectomy years ago.