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body integrity identity disorder

Started by metal angel, August 25, 2009, 06:05:16 AM

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metal angel

What does the TG community think of GID being compared to body integrity identity disorder (BIID)? I have heard the comparison a lot, but only from the BIID-community side.

People with BIID have the incurable belief that part of their body is not part of them (most often the left leg apparently), it can also be called "alien limb syndrome". They persistently try to have the offending part removed. There's a fair bit of controversy about whether surgeons are ethically allowed to help them, for obvious reasons. I think though if the distress is genuinely incurable and stops them from being happy and productive, maybe medically assisted amputation is reasonable. In terms of "years of healthy life lost" i think depression tends to have more of an impact on people than amputation.

Still... there is something very weird going on with these patients either psychologically or neurologically. do you think the comparison to GID is valid, the idea of the body somehow being wrong for the mind or visa versa, and needing to be re-aligned to achieve inner peace?

I guess they are trying to gain some sort of acceptance for their course of action by comparing themselves to a group that already has at least a little bit of acceptance among the medical community, and gets access to surgery to correct another mind-body mismatch.

One example of the comparison, and a relatively convincing story of BIID.
http://www.abc.net.au/rn/ockhamsrazor/stories/2009/2608482.htm
press "show transcript" or download the audio.
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finewine

It's tempting to draw comparisons because there's a desire to have the physical body match a mental image.  However I think that it's important to assess conditions like these on their own merits, especially as the origins and causes could be very different.

One could argue that an anorexic is starving in a struggle to get their physical body to match their mental image of how it should be.  I imagine that few would suggest it's appropriate to let them starve.  Ah, some might retort that anorexia is classed as a psychiatric disorder but so what?  There are neuro-physiological causes for anorexia nervosa too.

BIID is certainly a genuine disorder and deserves proper study and research.  I advise against trying to draw any meaningful comparisons with GID - or any other disorder that presents a mental/physical incongruity.
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Shana

I have to agree with finewine.

Another thing to think about is, for some BIID people, their ultimate goal would be complete quad-amputation, which does in the end make them unable in most cases to care for themselves, or at least be extremely dependent on others and nearly unemployable without heavy-duty prosthetics, which are only now just becoming available.  This may not invalidate their feelings or desires, but the consequences are beyond them alone.

For the most part, those of us dealing with GID, those who complete transformation, or are along in the process are still very much capable of being productive and vital members of the world. Most of the hurdles in our way are systemic and social stigmas.

I know this is a callous analysis but I do think it reflects the fundamental differences in the two groups.
:icon_female:

Ok.. teacher part over.. now.. COOKIES!!
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Nicky

I think there are parallels. For example, the desire of many MtFs to remove their offending member. Likely this is all brain structure stuff. Perhaps there is an overlap in that both 'conditions' involve similar parts of the brain regarding the way the body is mapped, but that is not saying the mechanisms for why these arise are the same. 
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Shana

I completely agree.

In my own case, it was the internal map I had of what my body was supposed to be that began causing the greatest problems from the earliest ages.  But that is only my personal experience.
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GinaDouglas

I saw a documentary about this a few years ago, and, hearing the people who have BIID talk about it, I was struck by the similarities to transsexualism.

Just to correct something in a previous post, none of these people wanted to remove their arms, only their legs.

The strongest similarity was that legless was the way they were supposed to be, and that not being that way was an affliction that tormented them day and night.

The second strongest similarity was their frustration with a medical community that didn't understand them, didn't care about them, and set themselves up as the arbiter of something that should only concern the patient.

Watching the documentary, I was struck by the notion, as illogical as it might be - that both conditions could be explained by reincarnation, and the desire to be as we were in a previous life.
It's easier to change your sex and gender in Iran, than it is in the United States.  Way easier.

Please read my novel, Dragonfly and the Pack of Three, available on Amazon - and encourage your local library to buy it too! We need realistic portrayals of trans people in literature, for all our sakes
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Shana

Gina, just to clarify; BIID can include the want to remove various parts, not just arms or legs..  I have heard of ears, eyes, tongue, eyelids, etc..

http://www.biid.org/basics.php?page=05&lan=en
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Nicky

This unrelated but have you seen that stuff online where people castrate themselves because it turns them on or they fill their testicals full of saline or split their penis in half. Weird.

The comments to the pics are so weird "that is so hot" " I always wanted to do that" etc..
It's funny though listening to them talk after they actually castrate themselves when the euphoria wears off they are like "damn, now I have nothing to play with  :'( ". El loco.
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Shana

Yes, and not just on line.. The Penis thing is more related to body modifications like extreme piercings, cuttings and hook hanging.

Self castration is probably as old as time..  but saline in the testicles or scrotal sack is a new one on me, unless it is a medical fetish..

Si, es muy loco..

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Cindy

Oh dear this has sent me thinking,

When is a disorder a disorder, when is it a habit, when is it a fetish, when is it a neurosis, when is it pathological?

Can't answer to be honest. I see people with tatooed bodies and I think Yuk, why? I cannot place myself into the mind set of wanting a limb/s removed. I cannot put myself into many fetish situations. But I would argue that in all logic I'm female in a male body (yea same old story) and would be happy to have body parts removed, and even added if possible to make me "normal".

If body harming is a psychological disease then, many of the opinions of MtF and FtM on this site are are wrong.

I think it may come down to that great equaliser, statistics.. We are all normal, but some are more normal than others.

Strange world we live in


Cindy
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heatherrose




I too, saw the news show about BIID, some time ago and I
must say as hypocritical as it may sound, I was repulsed, literally
sickened, by the idea of removing perfectly good limbs. When I
thought about it, it was not a huge leap for me to equate that
with removing "perfectly good primary and secondary sexual
characteristics". It has taken a while for me to be able to define
for myself the two different frames of mind of a person who
seeks SRS and someone who suffers from BIID.

Is it a form of psychosis for a cis-gendered individual to
desire a face lift, breast augmentation or circumcision, none of
which could be considered disabling? In fact, at least from the
point of view of a transsexual individual seeking FFS and/or SRS,
the surgeries could be considered enabling. In the case of a person
seeking to remove one or more body parts which would affect their
ability to care and provide for themselves, if they are able to
achieve their goals of body modification, they would
become a burden to themselves and to others.



"I have always wanted to have a neighbor just like you,
I've always wanted to live in a neighborhood with you.

So let's make the most of this beautiful day,
Since we're together, we might as well say,
Would you be mine?
Could you be mine?
Won't you be my neighbor?" - Fred Rogers
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Just Kate

While parallels can be drawn with the most dysphoric TS, they cannot in the majority of cases of GID.  I think the outward manifestation of GID is far more similar to BDD (Body Dysmorphic Disorder).  Check if out if you haven't already.  I'm interested to hear what you think.

Quote from: metal angel on August 25, 2009, 06:05:16 AM
What does the TG community think of GID being compared to body integrity identity disorder (BIID)? I have heard the comparison a lot, but only from the BIID-community side.

People with BIID have the incurable belief that part of their body is not part of them (most often the left leg apparently), it can also be called "alien limb syndrome". They persistently try to have the offending part removed. There's a fair bit of controversy about whether surgeons are ethically allowed to help them, for obvious reasons. I think though if the distress is genuinely incurable and stops them from being happy and productive, maybe medically assisted amputation is reasonable. In terms of "years of healthy life lost" i think depression tends to have more of an impact on people than amputation.

Still... there is something very weird going on with these patients either psychologically or neurologically. do you think the comparison to GID is valid, the idea of the body somehow being wrong for the mind or visa versa, and needing to be re-aligned to achieve inner peace?

I guess they are trying to gain some sort of acceptance for their course of action by comparing themselves to a group that already has at least a little bit of acceptance among the medical community, and gets access to surgery to correct another mind-body mismatch.

One example of the comparison, and a relatively convincing story of BIID.
http://www.abc.net.au/rn/ockhamsrazor/stories/2009/2608482.htm
press "show transcript" or download the audio.
Ill no longer be defined by my condition. From now on, I'm just, Kate.

http://autumnrain80.blogspot.com
  •  

deviousxen

Quote from: metal angel on August 25, 2009, 06:05:16 AM
What does the TG community think of GID being compared to body integrity identity disorder (BIID)? I have heard the comparison a lot, but only from the BIID-community side.

People with BIID have the incurable belief that part of their body is not part of them (most often the left leg apparently), it can also be called "alien limb syndrome". They persistently try to have the offending part removed. There's a fair bit of controversy about whether surgeons are ethically allowed to help them, for obvious reasons. I think though if the distress is genuinely incurable and stops them from being happy and productive, maybe medically assisted amputation is reasonable. In terms of "years of healthy life lost" i think depression tends to have more of an impact on people than amputation.

Still... there is something very weird going on with these patients either psychologically or neurologically. do you think the comparison to GID is valid, the idea of the body somehow being wrong for the mind or visa versa, and needing to be re-aligned to achieve inner peace?

I guess they are trying to gain some sort of acceptance for their course of action by comparing themselves to a group that already has at least a little bit of acceptance among the medical community, and gets access to surgery to correct another mind-body mismatch.

One example of the comparison, and a relatively convincing story of BIID.
http://www.abc.net.au/rn/ockhamsrazor/stories/2009/2608482.htm
press "show transcript" or download the audio.

Well... There are no lines between disorders between each other. All complexes interact with each other. Thats why when one thing gets sick (Lets say from poor drinking water... Which we should be effing OVER by now), everything else gets the ripple too or is just affected.

And people in general have overlapping perceptions in their minds about them and the world around them, so nothings ever going to be a clean area of the brain called, "BODY INTEGRITY" and another called, "GIDLAND"
Well if you wanna be completely honest...

My boy junk NEVER felt like mine. It didn't just not belong but I also felt like it was somebody elses and I was like... Its stewart or something crazy like that. I'd sit in the bathtub wondering where it SHOULD have been...

Then I saw Fullmetal Alchemist... And I think now that like...
But I was like. HOLY CRAP I'M WRATH!

... A homunculus .___________.
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Shana

Kara, I had the same feelings with mine.

Interesting thing with FMA.. I have had a similar feeling when I saw a documentary on actual human Chimera*. These are people who are composed of cells from two separate embryos, who blend in very early development... I am the last one to be trying to find the "absolute medical causation" around what and who we are.. just a mind poser..  I have wondered how many of us could be such people.. A blending of parts from two pseudo-twins, fully merged.. with genitalia, organs, and brains a blend of paternal twins in varying proportions, one starting male and one starting female. I have no medical background but the idea really struck a chord.

We could start another thread if this seems too off topic.  :)

*   http://www.medterms.com/script/main/art.asp?articlekey=8905
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metal angel

The chimera idea is interesting, but to me it seems implausable that you could get all the brain from one embryo and all the body from another. It's just too unlikely for it to be that exact. You would expect a lot more TS people to show intersex characteristics, but i gather that most TS people are pretty much bodily normal for their biological gender? Maybe with some masculine or femine features that they appreciate more than their cis-gederred counterparts, but not really intersex.

Also, it doesn't quite make biological sense. In an embryo cells don't just follow a pre-set plan of i'll divide here, then i'll diferentate here into this. They talk to each other and communicate a lot. A lot of the differences between male and female brains would have more to do with the developing gonads than the genomes in the cells of the brain itself.

So, a very elegant theory, but unfortunately it seems implausable.

But i only did developmental biology as an undergraduate student at uni. Cindy, you said you were in cancer research right? Most cancer biologists know a fair bit of developmental biology?what do you think of the Chimera theory?

Post Merge: August 28, 2009, 09:19:07 AM

Quote from: CindyJames on August 26, 2009, 05:01:38 AM
When is a disorder a disorder, when is it a habit, when is it a fetish, when is it a neurosis, when is it pathological?

Yeah i don't think it is at all constructive to have a disorder-correct model in socioty or medicine. I think in all except for the most imminently physically life threatening cases a model of variation-optimise would be better. Not "is this person diseased?" but "is this person as happy and productive as they can be?" Particularly in psychology, but also in medicine in cases such as intersex conditions, and some which have a culture attached like deafness. Even the life threatening cases could just be seen as the very un-optimal end of variation.
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Shana

Thank you Metal Angel, and you are right, I am a complete lay-person in this field and bow to those of greater understanding. I would love to hear more from those with Biology or Medical backgrounds.

I agree that an entire organ would be unlikely to be completely from one or the other, more a law of percentages.. however, within the Chimera is the conundrum of Harlequin children. These individuals have skin which is in patches, from either embryo, leading to a patchwork quilt effect, some in nearly perfect checkerboard squares, often of different skin tones which is where the syndrome gets it's name.

I agree that most of us are biologically normal for our birth gender. It is only a mind chewing theory of mine, probably best left to fiction than science.

My problem with BIID is getting my mind around their disconnect without having my own experience and opinions regarding GID coloring my perceptions.  Kind of like a lizard looking at a snake. (No pun intended.)
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finewine

Quote from: Shanawolf on August 28, 2009, 01:36:11 PM
[...] within the Chimera is the conundrum of Harlequin children. These individuals have skin which is in patches, from either embryo, leading to a patchwork quilt effect, some in nearly perfect checkerboard squares, often of different skin tones which is where the syndrome gets it's name.[...]

I think you're referring to a "tetragametic chimera" in the previous context of gender (which isn't about the brain from one and the body from another - this all occurs waaaay before any such structure develops). This could lead to a hermaphroditic fetus.

As for the "harlequin" icthyosis, this is due to a specific mutation in a gene preventing the production of a protein vital for the proper development of the skin - I don't think this has anything to do with the "merging" of embryos per se.
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Shana

Thank you finewine.
I have seen the two linked before, but probably in the same way GLB and Trans often get linked.
I have to admit I am out of my depths on this idea and have not done any extensive research.
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metal angel

actually there was a thread here a while ago about an athlete who was mainly XX cells with a few XY, she failed a gender test due to the few Ys but later they geve her her meddle back because they decided most of her cells were XX.

you could get some kind of part sparation if there was a parasitic twin... but again that would lead to TS being a lot more anatomically unusual than they are.

and yeah with the harliquins the first medical text book i grabbed of my bookshelf agrees with finewine... but some gogling tells me that male tortise shell cats can be chimeric... so there might be a human condition like you describe by another name?
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perfectisolation

BIID is this the same thing as Amputee Identity Disorder I've read about?

I think there is a huge difference here though, it's gendered behavior vs. wanting our limbs amputated. GID is most likely caused by hormones or lack of one kind of them in the womb. BIID/AID sounds more like a brain-body map thing. The only similarity I see is wanting certain parts that are proof of our bio sex removed/added on.
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