Susan's Place Logo

News:

Please be sure to review The Site terms of service, and rules to live by

Main Menu

what are your experiences with hairloss after surgery?

Started by melanie, May 30, 2010, 12:34:31 PM

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

melanie

Hello girls,

to introduce myself briefly, I am 29 and live in my preferred role for five years now. It is wonderful to know that ist was the right decision. I feel that every day, especially when I picture myself as still being male...what a weird situation that would be. Nothing but misunderstandings.
Unfortunately, male pattern baldness runs in my family, and I am also affected. So far that was no serious problem. It started when I was 21 and I immediately reacted and took propecia and rogaine. these two were capable to stop my hairloss for the following 4 or five years.
During that period I began hormone replacement therapy, and what I thought was this:
when my testosterone levels go down and estrogene goes up at the same time, there will no longer be a need to take any hairloss meds.
But I was wrong because three months after starting HRT, I noticed again that I lost an unhealthy lot of hair and my temple area began to get thinner. This was very depressing for me as you can probably imagine and so I started to take the meds again.

One and a half years later around 27 I had to realize that propecia had lost its former efficiency for me because I did not see any improvement during that time.
I did some research on the topic and found that dutasteride could be the way to prevent further hairloss. So in april 2009 I began taking duta every day along with rogaine once dayly  and nizoral shampoo every other day. In august 2009 I had the surgery done and so far I recovered from the pain and all this and I am really glad about how it has all worked out.
My androgene levels now resemble those of a born female, even if the estogene is a bit under the norm. that was an advice of my endocrinologist.
To be honest I expected that with all the proven hailoss meds and my homone status, hairloss would no longer be an issue for me. I even thought that the chances were good that the hair that I lost already would recover, but again I was wrong on that again.
Now, nine months after surgery my situation is this: I loose a lot of hair in the shower, 150 to 250. My problem areas are the temples and since last year also the vertex. I had very thick long hair and lost maybe 1/2 of it in the last two years. Of course they came back but weaker and fell out after a few months again.
I still take dutasteride, regaine and nizoral. Maybe it would be even worse if I didnt.

It does not make any sense to me. I was convinced that the hormonal change after the surgery would cause the hair to recover. Of course there are individuals with an aggressive form of male pattern baldness who are not so lucky and continue losing them. But doesnt that kind of hairloss begin already at an early age around 17 or 18? As I said before for me it started at the age of 21, so I guess my hairloss is not that aggressive. Or am I wrong? My father got almost bald around 30...not that encouraging.

The whole issue really makes me sad. When I notice my hair is getting less, I feel so depressed sometimes desperate. I cant get used to the fact that it constantly gets worse. Wigs are not really an option. To me it is like living in disguise.

How is your situation concerning this?  All the girls who dealt with hairloss before surgery, how is it now? Is it still a topic for you?
Do you have any advice for me? Maybe I missed something that could help me keeping what I have. That would be so great.
I really appreciate new ideas.

have a good time

Melanie



edited for dosage
  •  

Flan

I would recommend contacting a dermatologist, it might be a medical issue not androgen related.
Soft kitty, warm kitty, little ball of fur. Happy kitty, sleepy kitty, purr, purr, purr.
  •  

K8

Welcome to Susan's, Melanie and jenondblock.  :icon_flower:

There's a lot of good information and good people here.  Each of our stories is unique but we have a lot in common.  Settle in, pull up a keyboard, and explore.

Be sure to look under the Announcements heading.  There you will find the rules we live by in this little world of ours:
Look through the other stuff there, too.

Sorry, but I don't have anything cogent to add about hair loss – I won the genetic lottery in that regard anyway – but I would echo FlanKitty and suggest you seek professional help with it.

Happy exploring. :icon_wave:

- Kate
Life is a pilgrimage.
  •  

K8

Hi Jen,
I am a Bowers girl, four days later than you.  I'm doing very well and am glad you are doing well, too.

And now, back to hair loss...

- Kate
Life is a pilgrimage.
  •  

lisagurl

"Now, nine months after surgery my situation is this: I loose a lot of hair in the shower, 150 to 250"
===========
Hair loss comes from the drugs from surgery. It takes a year to get them out of your system. It also takes almost 2 years to get you hormones balanced again.
  •  

Jessica.C

Quote from: melanie on May 30, 2010, 12:34:31 PM
The whole issue really makes me sad. When I notice my hair is getting less, I feel so depressed sometimes desperate. I cant get used to the fact that it constantly gets worse. Wigs are not really an option. To me it is like living in disguise.
edited for dosage

I so feel you Melanie.  I am totally obsessive about my hair. My biggest fear is the thought of loosing it, at one point i started saving the hair i was loosing to see is it was getting worse or better.

I started transitioning at 22 yrs old. I had long full beautiful wavy hair for years. Right around 35 i went through a losing phase where it seemed i lost allot of hair, breaking off, falling out etc... only to slowly get it back in shape around a year and a half later. It seemed to be slightly thinner than before but workable. Ive went through this cycle several times. Granted I know we all loose hair as we age but it drives me CRAZY!!!

Ive been doing everything i think i can to save my hair. I had a orchie in Feb to rid myself of testosterone once and for all. I went to my doctor and had some tests done. He said my iron was slightly low so i take iron pills now. I always take my meds now never miss a dose. I'm taking proscar and spiro and I'm on the estrogen patch. I take hair, skin and nails vitamins. I take Fish oil for the omega 3 which is suppose to help. I even use Nioxin shampoo. However i still smoke (trying to quit ASAP) and Im very stressed due to a recent break-up and upcoming GRS.

I should say i still have hair but when I'm outside in the sun you can see some scalp. Just this morning i was thinking maybe it would be a good idea for me to call a hair clinic, just to see what they have to say before it gets any worse.

You're not alone in this struggle.


  •  

MeghanAndrews

Quote from: Jessica.C on May 31, 2010, 08:08:06 AM
I so feel you Melanie.  I am totally obsessive about my hair. My biggest fear is the thought of loosing it, at one point i started saving the hair i was loosing to see is it was getting worse or better.

OMG Jessica, I did this too! I was so convinced I was losing it in droves that I saved it and um, counted it, for several weeks. I think the paranoia about losing my hair was probably MAKING it fall out. I did have a little bit of scalp showing through my hair on my crown but the propecia and other meds have really helped. It doesn't mean I'm not paranoid about it, always making sure my hair is done the right way. I think many of us are really, really concerned about losing our hair.

I'm not sure what kind of impact surgery (SRS and Orchi) have on hairloss but someone (Charlotte I think) had said that sometimes even thelittle bit of T that other parts of your body produce can make you lose hair. I have a hard time believing that if you have no major T being produced AND you are taking all the meds we take that your hair will continue to fall out. It's just blah to think about!
  •  

melanie

I guess stress is an important factor and is  maybe underestimated. my dermatologist says that it is one of the major causes of hairloss. The problem is life, at least mine, is full of stress and you cant really control this influence, it just happens. By the way what is a GP, I am from a non english country. is it general physician?
  •