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Just got out of the hospital

Started by Just Kate, February 02, 2011, 09:46:56 PM

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Just Kate

Wow what a weird couple of weeks!

Three weeks ago after a great night of Whirlyball and Lasertag I got home and found I had a swelling below my calf.  I looked up possibly causes of the swelling and pain and saw "DVT" (deep venous thrombosis) the condition my mother died of so I looked into it.  I noticed I didn't have many of the symptoms, but a few of them.  I went to the hospital the next morning to get it checked out and after some prodding convince the doctor do to a sonogram on my leg to check for clots since the initial blood work came back negative.  They performed the sonogram and only found a SVT "superficial" clot - nothing to worry about, just take aspirin they said.

The next few days my calf got better but the area behind my knee became more and more painful.  I went to my regular doctor who checked me out, but since I wasn't showing any outward signs of further clotting told me to stay on the aspirin just in case.  She was perplexed by there being no obvious reason for the first clot so she decided to run an intense array of blood tests to see if I had any blood diseases that might have caused it.

Within a few days the pain in my leg stopped and all signs of the original clot were gone... except on thing - I had this little pricking pain in my side, in my chest.  I didn't know what it was but I decided if it remained overnight I'd call my doctor again.  (At this point I was feeling like a hypochondriac - I never get sick, have never been the hospital, etc).  I went to work the next day and the pain was the same - I called my doctor and left a message for her.  Within an hour she called back panicked - she said she got my results back and I have a blood disorder called "Protein S deficiency" and the pain in my chest was a likely a pulmonary embolism and that I should get to the ER immediately.  I did so, was taken in immediately, given a CAT scan of my chest and discovered that I didn't just have a pulmonary embolism, but "lots" to use the doctor's words, as well as 3 DVTs in my leg.  He told me if I had been overweight or a smoker I likely would already be dead considering how many embolisms I had.

Strangest thing was that despite a little chest pain I didn't feel sick at all!  I couldn't have known how dangerous of a situation I was in and never would have even checked out the initial clot had my mother not passed away from a DVT.

I was hospitalized that day and by that night, I was in such intense pain the gravity of the situation hit me.  Every little breath caused pain like an ice pick being stabbed into my chest.  Eventually blood thinners and pain meds made me feel better, but I was hospitalized for a week to ween me on to my new blood thinners - something I'll have to take the rest of my life now.

So it was an interesting couple of weeks - my first hospital stay, my first IV, my first CAT scan, my first blood clot (that I knew of).  I am well for now but it will take nearly 3 months for the DVTs in my legs and the clots in my lungs to completely dissolve so I am still at risk.  I try not to think about it though and just go on with life (with a few modifications due to my risk factors).
Ill no longer be defined by my condition. From now on, I'm just, Kate.

http://autumnrain80.blogspot.com
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Janet_Girl

I would said that doing what the doctors told you was a good thing.  But be very careful going forward, because you may be prone to them now.

Glad you are feeling better.
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Just Kate

Quote from: Janet Lynn on February 02, 2011, 10:18:36 PM
I would said that doing what the doctors told you was a good thing.  But be very careful going forward, because you may be prone to them now.

Glad you are feeling better.

Actually the long term implications for me, especially as a transperson, are major.  I cannot continue my HRT (E or T) because my risk for clots is far too high and HRT increases risk for clots.  I cannot risk surgeries due to my unnatural ability to clot.  I will need to be on blood thinners the rest of my life or risk more serious blood clots.

I guess its more valuable to me now than ever to learn to live with my GID considering so my options are getting narrower.
Ill no longer be defined by my condition. From now on, I'm just, Kate.

http://autumnrain80.blogspot.com
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Janet_Girl

I was on Warfarin for a while.  Every week I would have to have my Pro-time check,  Once it got established it would come down to once a month.  Just be very careful of bumps, bruises and cuts.

Sorry to hear that HRT is ruled out.  I hope you can overcome you GID in other ways.
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Cindy

Hi IA,
Sorry to hear about this but I think you were lucky to survive. A very nasty condition..
\Hugs
Cindy
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LordKAT

shocking and alarming experience. I'm glad you are still with us.
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