Quote from: JeanetteLW on April 23, 2017, 04:59:54 PM
Thank you Cindy, but I have done anything yet. And no I am not going outside in the daylight yet!! NO!
And how are you doing these days Cindy? I know you have had some rough post surgery issues for a few days from another of your posts and that you were doing a bit better. But how are you doing with other aspects of your life? How are you adapting to the stoma? Are there plans to give you back some kind of speech capability or have they done so already? What about your health now? Darn it Cindy, how are you feeling?
Hugs,
Jeanette
I'm really good. I had my first outpatient follow up last Thursday and was surprised that I had the whole team of 2 consultants and 4 registrars seeing me, seemingly I'm a bit of a star in my recovery time so they're interested in how I'm going. I was asked the usual about pain etc and I said yep, heaps of pain. I was told I had a choice, I have been so heavily irradiated that my wound healing will be slow and scars (both external and internal) will be very tight unless I keep flexing them. If I don't keep flexing I will not have pain but will have very poor movement,. I of course told them that I will have total free movement as soon as possible and as for pain - bring it on.
I'm having a TOF voice system inserted in a week or so, depending upon healing, and will then learn to talk again. I'm also being part of a clinical trial for a new type of stoma button and that will arrive soon.
Eating was an issue so I started to puree my food and then began one meal puree next meal chew and swallow. Last night I had a full home made roast chicken dinner, all chew and although it took me a while I ate the lot without too many swelling issues. Sometimes I need to stand up to allow gravity to help me swallow but that's easy.
I also had a catch up with the pathologist who looked after my histology. We have worked together and been friends for over 30 years so it has been quite a difficult time for him. Anyhow, the cancer had started to spread in the larynx but there were clear margins and it was removed. I had a neck dissection while under and so they kept sending samples to him for checking, the routine is that they will look at about 3 or 4 sentinel lymph nodes and various tissue samples. He called in his Registrars and looked at 35 sentinel nodes and 15 tissue samples while I was under and everything was clear. No wonder I was under for so long but what service!
As for life, well I'm slowly getting back to work here and getting around to some projects that I was supposed to do but had shelved for a while.
I've started a new photography project that I am enjoying.
I'm walking for 1-2 hours a day, my left thigh muscle is now my throat so I need to build up that muscle again.
But most of my time is spent in rebuilding myself, I still need about 10 hours sleep at night and 2-3 hours during the day. I'm down to 48kg so I need to put on about 15 kgs to get back to a healthy weight and I'm trying to balance my pain threshold with meditation and medication to achieve a balance that I am happy with.
Oh and I smile a lot and love life as only people who have had our experiences can.
In my spare time I have taken up the sport of cajoling