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Testim Gel - Side Effects

Started by Bimmer Guy, September 15, 2014, 07:33:14 PM

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Bimmer Guy

Hi, guys.

I started taking a low dose of Testim 7 days ago.  I am taking one quarter of the average dose.

I have never been one to champion taking hormones as a diagnostic tool.  However, 15+ years of going back and forth as to whether or not I wanted to transition hormonally (and subsequently socially), has simply exhausted me.  I finally decided I had to call a "hung jury", and accept I am simply not going to figure it out by only thinking about it.  No amount of soul searching seems to make things clearer for me.

So I decided that I needed to at least "try" testosterone to see how I felt emotionally on it.  I need to know if this is what my body is missing, if it will give my mind peace.

So, here I am, on low dose T.

Here's the point of my post  :laugh::

I am wondering about the side effects I am experiencing.  I have heard people complain about all of the below while taking T (all different forms), but I have never read people describe it as extreme as I am feeling.

I am interested in hearing both from people on Testim, and people who aren't.

1) I have a sore throat every single day since the day I started this.  I don't recall anyone saying their throat hurt every day.  Voice is already slightly lower, too (which again, I think is odd on 1/4 the dose).

2) Feeling pretty darn emotionless.  I like the fact that I am feeling calm, but I am feeling "flat" as well.  Too flat.  I feel like a kid with Attention Deficit Hyperactivity Disorder on Ritalin who hates the flat/blah feeling the medication gives him.

3)I feel achy and slightly nauseous all of the time.

I have heard people complain of feeling sick the first day or two and the sore throat, but I don't recall ever hearing someone say it is an ongoing thing.

Is it possible it is just the brand/form of T I am taking?

I see my medication provider in one week, so I at least have one more week to see how this goes.

Thanks in advance for your thoughts.
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



  •  

CursedFireDean

I am currently also 7 days on T, I have been taking half dose injections myself.
1. I have had a sore throat ever since a few hours after my first shot, and this finally went away today, however my throat still does not feel the same. It is definitely different. I'd think your throat is pretty normal. Mine too is SLIGHTLY different, which I didn't expect on a lower dose either.
2. I personally haven't noticed this, however I know that T can mess with people's emotions. Hopefully other guys can give you advice.
3. No aches, but I felt nauseous for two days after my first shot and for about an hour or two today after my shot. That is something you may want to mention to your doctor.

All of these things COULD be the brand, but I'd definitely consult your doctor. Some of these changes are normal however, and I think if you are uncomfortable with it you need to talk with a therapist or do some serious soul searching (I know you said you have) because the changes you experience that make you uncomfortable may not be reversible. T is not something to just try, some effects are permanent and if you are not sure, then it is not healthy for you to do something to give you these permanent changes. If you are uncomfortable with the changes, you need to stop immediately and evaluate your feelings again, either by yourself or with the help of a therapist.





Check me out on instagram @flammamajor
  •  

David27

Initially I was put on a low dose patch approx 80% of a low dose of gel.

1. I had a sore throat for a week or 2. My friend who started with injections reported similar occurrences. I'm not sure if I just got used to it after 2 weeks or it stopped as my throat almost always hurts a little.

2. My emotions leveled out a lot which was good because being angry all the time was not good. I did initially feel a little depressed and subsequently feel that it is easier for me to get depressed on T. Although I haven't had a good experience with social transition until this summer leaving fall-spring as a hell hole regarding people I was around, which may explain why my depression last school year was so bad.

3. First couple of days I felt dizzy and nauseous after initial application. Also after my first shot I felt dizzy and nauseous. Now I don't have those problems, but in a weird way I kind of felt the T kicking in in the first couple of days.


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Bimmer Guy

Thanks for the responses guys.  It sounds like what I am experiencing is normal.

Hey, Dean, there actually isn't any masculinization effects that I don't want, per se.  I know that is the reason many people look to low dose T is because they want to present as androgynous or want certain male characteristics.  That is not what I am looking for.

The issue is my age at 44 years old and how the transition will impact my life (work and personal).  I am weighing out dealing with the dysphoria (and not taking hormones), vs. the potential losses due to transitioning.  If I could do it again, I would have started 15 years ago, but it was pretty rare back then.  My goal now is to see how I feel emotionally on T before too much change results.  From there, I will either stop, or move to long term full dose.  What I am looking for is to see if T "tips the scales" towards transition.  It's complicated.

Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



  •  

CursedFireDean

Quote from: Brett on September 15, 2014, 08:24:46 PM
Thanks for the responses guys.  It sounds like what I am experiencing is normal.

Hey, Dean, there actually isn't any masculinization effects that I don't want, per se.  I know that is the reason many people look to low dose T is because they want to present as androgynous or want certain male characteristics.  That is not what I am looking for.

The issue is my age at 44 years old and how the transition will impact my life (work and personal).  I am weighing out dealing with the dysphoria (and not taking hormones), vs. the potential losses due to transitioning.  If I could do it again, I would have started 15 years ago, but it was pretty rare back then.  My goal now is to see how I feel emotionally on T before too much change results.  From there, I will either stop, or move to long term full dose.  What I am looking for is to see if T "tips the scales" towards transition.  It's complicated.
Okay, that makes more sense. I wasn't sure before what you were uncomfortable about, but I see now. Social transition is definitely scary and good on you for considering it! I'm at a great transition point in my life (starting college) and even then it was a huge step to take and at times I was very unsure about whether to socially transition. So great on you for putting yourself first and considering coming out. I hope your desires are easier to see soon!





Check me out on instagram @flammamajor
  •  

Bimmer Guy

Quote from: CursedFireDean on September 15, 2014, 10:22:00 PM
Okay, that makes more sense. I wasn't sure before what you were uncomfortable about, but I see now. Social transition is definitely scary and good on you for considering it! I'm at a great transition point in my life (starting college) and even then it was a huge step to take and at times I was very unsure about whether to socially transition. So great on you for putting yourself first and considering coming out. I hope your desires are easier to see soon!

Thanks, Dean.  I actually was hesitant to even mention here that I am on low dose T, as I believe that some people can be judgmental about that choice (not saying you, just saying in general).  However, I am excited to be on T, so I wanted to share with the group.  Also, I want a place to be able to discuss it and ask questions.  Thanks for your support.
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



  •  

makipu

Hi Brett, I started to take that exact amount of Testim gel a couple of months ago and I also experienced a notable throat pain every morning when I woke up.  It would usually last for 1-2 hours and I even had it happening for the entire day a couple of times. I think it diminished during the 2nd month for me though.

By the way, I am very sensitive to any medication that I can think of so that may be the case with me.
I am male because I say so and nothing more.
I don't have to look or act like one therefore.
  •  

Bimmer Guy

Quote from: makipu on September 16, 2014, 02:01:21 PM
Hi Brett, I started to take that exact amount of Testim gel a couple of months ago and I also experienced a notable throat pain every morning when I woke up.  It would usually last for 1-2 hours and I even had it happening for the entire day a couple of times. I think it diminished during the 2nd month for me though.

By the way, I am very sensitive to any medication that I can think of so that may be the case with me.

Hey, makipu.  Thanks for the response.  I actually ordered a scale that I just received in the mail, so that I can be precise in my measurements (I am kind of weird like that, and the shape of the tube is not helpful in determining weight).  Are you still on this dose?  I seem to recall you saying somewhere that your voice dropped at 2 months?
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



  •  

makipu

No, I am not on T anymore due to my paranoia with my current hair loss so I have a full box that I probably won't even use :(

After 2 months of continuous use I reached a distinct lower voice (I do usually get sir'ed on the phone) but I am able to at least control it meaning if I speak softly at a low volume I can sound like how I originally was before T.  At the same time however,  when I leave a message on the phone, I sound so low that I can't even believe that's me.

It's funny but I am stuck with my voice still cracking.
I am male because I say so and nothing more.
I don't have to look or act like one therefore.
  •  

Leo

Hey Brett, congrats on starting T...I've been on Testim for almost 5 months now, so I will try to give you a bit of advice based on that short (but intense and dense) experience.

I did experience an increase in preexisting depression and anxiety. It scared me at first too, since my mental health was already pretty bad. 3 months in I had suicidal thoughts. I had to call the PA that was taking care of me and she immediately took me off T. I have since then found a more qualified endo, am back on T, but I have reflected a lot on that experience, as it was pretty distressing.

Here are a few things I learned:

-Do you have a preexisting mental health condition? Personally, I have been in therapy for a decade, have had episodes of major depression and panic disorder consistently since the start of my first puberty. Although I was hoping that it was all due my GID, and thus would all go away once I medically transition into my true self, it's not that easy. I have come to the realization/acceptance that clinical depression and anxiety are caused by a chemical imbalance in my brain - not just circumstantial. It's a tendency I have and will always have. I have thus surrendered to medication and I am now on Wellbutrin - and starting to feel much better. I don't regret it: taking antidepressants is enabling me to look at the positive aspects of my transition, instead of beating myself up over the negative ones, ENJOY the changes that ARE taking place, and be grateful for what I do have.

--> starting T did increase my preexisting depression/anxiety. That doesn't mean that transitioning itself is making me depressed; I can now see that what happened to me was mostly chemical. Either T increases depression and anxiety, or simply going through puberty when starting HRT is hard on people who are already sensitive to depression and anxiety. It's a hormonal roller-coaster, no doubt we all go through intense feelings and mood swings - maybe just more intense on those with preexisting mental health issues.

-Of course there would also be circumstantial reasons for being depressed or anxious when starting HRT - let's be honest, who could be totally at peace living as a transgender individual in this society? All the external hardships that come with being trans - job, housing, or family situation, insurance issues, etc. - make it anything but a smooth ride. And then add to that the more "existential" difficulties of being transgender that you may or may not have, and might be even more prone to if you are of an anxious nature: guilt, shame, self-loathing, etc...and then the whole (beautiful) process of becoming that comes with transitioning - yes you have always been male, but have you had the chance to express this externally, to give that man some room to grow and fully develop? Or isn't transitioning precisely a way for you to finally let yourself become who you were always supposed to be? In that case, there is a necessary adjustment period - I'm guessing you haven't lived as a man in this society yet, because you might not have always been seen and treated like one. So some of this is new.

--> what I mean is that change, novelty, all that is involved in a transition (any kind of transition...), is scary! It's unfamiliar, it requires adjustment, some grieving and rebirth, some losses and some gains...And when you are of an anxious or depressed nature, you can triple your reaction to change/unknown future, and you tend to focus on the negatives...you probably freak out. Does fear mean that you are going the wrong way, though...? I don't know if it does for you, but for me, I see fear as a natural obstacle on a path to my true self. It doesn't mean I should stop; on the contrary, it presents itself as an obstacle to overcome so that I continue my path even stronger and more confident.

-Last thing: "My goal now is to see how I feel emotionally on T before too much change results.  From there, I will either stop, or move to long term full dose.  What I am looking for is to see if T "tips the scales" towards transition."
I know what you mean. I have had this thought in my anxious states. I think the problem though, is that you actually have to be on T long enough to really know...You've probably heard of the 6-month "mark", the 1 year mark – I don't think it's a myth. As I'm approaching the 6 months mark, I am feeling better and better every day. My body is adjusting, the hormonal roller-coaster is slowing down, I am finally starting to see some changes, it's making me so happy to finally see a boy in the mirror, I am settling into my self gradually...I was in total panic 1 month ago, still. I was scared it would never end. Now I feel confident that it will, that things only get better with time...but you have to accept going through the storm first. And I think it's easier to do that if you have faith that things get better, if you keep your eye on that belief. In that mindset, the bumps in the road are easier to handle, because you can see that's all they are, you don't cling to them as permanent states. I think that, in this state of puberty, you HAVE to learn to take a step back from your thoughts and emotions, or else they can overwhelm you and you can give them much more importance then they deserve - and lose track of your original intention and deep desires.   

What is your intention, what are your priorities? Personally, I know and have known for a while that transitioning is necessary for my well-being, I came to a point where it wasn't an option. Once I accepted that, I also committed to accept all the hardships that come with it. I just can't turn my back to my true self. It's not easy, but that doesn't make it not worth it. You're only 7 days on your journey...I would advise that you give it some time, that you try to relax, let go of the handlebar, and let T do its work for you a bit.

That said, it's a sure thing that transitioning can be extremely difficult and lonely, and it's not a joke when they say that you need a very strong support system – that can mean therapy, medication, support groups, trans friends, a supportive social circle etc. Sorry for the length but I guess my main point is: depression and anxiety shouldn't be surprising in trans folks, they are not necessarily "red flags" that mean you are on the wrong path. They might be for some people, but then you will know if that is the case for you, if you are either not meant to medically transition or simply not ready. And also you should really try to distinguish between feelings caused by hormonal fluctuations, preexisting chemical imbalances, circumstances, etc. T is powerful but there are so many other factors at play when you transition. Hope this helps a bit.

  •  

adrian

Just wanted to say thank you for this thread - it addresses a lot of things I'm contemplating at the moment in my attempt to figure out whether to t or not to t :)
  •  

Bimmer Guy

Quote from: makipu on September 16, 2014, 09:57:38 PM
No, I am not on T anymore due to my paranoia with my current hair loss so I have a full box that I probably won't even use :(

After 2 months of continuous use I reached a distinct lower voice (I do usually get sir'ed on the phone) but I am able to at least control it meaning if I speak softly at a low volume I can sound like how I originally was before T.  At the same time however,  when I leave a message on the phone, I sound so low that I can't even believe that's me.

It's funny but I am stuck with my voice still cracking.

makipu, were you on 1/4 of the average dose those entire two months, or did you increase it at some point?

Now that some time has passed (and since I have switched to taking the T in the mornings), the negative side effects have decreased.  The last two days my body hasn't felt achy and I haven't had as much of a foggy head.  Still have the sore throat, but it has decreased.  The nausea went away the last two day.  I like the extra energy I am feeling and the emotional "flatness" has already started to feel normal.  The sense of calm is still there, which is nice.

Leo, thanks for your thoughts.  I am fortunate that I am not suffering from any depression or any significant anxiety.  I just have a general sense of emotional discomfort, which I suspect is connected to not having enough of the right hormone in my body (testosterone).  That is what I am saying I am seeking to assess.


P.S. makipu, I know a genderqueer person who originally thought he wanted to be on T long term.  He decided a couple of months later (at full dose), that he didn't want facial hair, so he decided to stop T.  However, with his voice still cracking (and weak), he is going to go back on T for a time, until his voice gets solid sounding.  Is this something that you have considered?  Maybe with taking time off from T, you can return and it will adjust your voice and you will be able to stop it again prior to hair loss.  The other thing is don't you think that your "hair loss" was just you getting a male's hairline and not actual "hair loss"?



Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



  •  

makipu

No, when I started T for the very first time I took that amount and gradually increased it bit by bit in a few days.(1/4,2/4...) and then due to facial hair coming  within a month I was kind of overwhelmed with the change happening so quick so I stopped for the next month. Within this period I actually lost that low voice I gained in 1 month and it literally reversed back so I wanted to just get it over with (until my voice got stable) and restarted it with going for 2 months this time (with full tube).
After 2 months my voice was the way I wanted it but still cracking so I continued to take it. (Low/normal amounts)
Unfortunately I then noticed my hair falling all over the place. I wouldn't even touch my hair and it would fall down. I was so mad and sad at the same time (still am) so I made a conscious decision to stop and that was over a month ago even though I wanted to continue taking it until my voice was fixed..

The problem is, it's STILL falling just the same. So I don't even know HOW I can tell if it was from the T. Is there a way to tell? If this helps, my hair is significantly thinner. But then again, why would it even be the male baldness pattern when I took it for such a short time?
I told the doctor when I went (this was after stopping T) and he said that it could be hormonal imbalance and said give it more time.

I really don't know what to make of this.
I am male because I say so and nothing more.
I don't have to look or act like one therefore.
  •  

Bimmer Guy

Quote from: makipu on September 21, 2014, 05:45:17 PM
No, when I started T for the very first time I took that amount and gradually increased it bit by bit in a few days.(1/4,2/4...) and then due to facial hair coming  within a month I was kind of overwhelmed with the change happening so quick so I stopped for the next month. Within this period I actually lost that low voice I gained in 1 month and it literally reversed back so I wanted to just get it over with (until my voice got stable) and restarted it with going for 2 months this time (with full tube).
After 2 months my voice was the way I wanted it but still cracking so I continued to take it. (Low/normal amounts)
Unfortunately I then noticed my hair falling all over the place. I wouldn't even touch my hair and it would fall down. I was so mad and sad at the same time (still am) so I made a conscious decision to stop and that was over a month ago even though I wanted to continue taking it until my voice was fixed..

The problem is, it's STILL falling just the same. So I don't even know HOW I can tell if it was from the T. Is there a way to tell? If this helps, my hair is significantly thinner. But then again, why would it even be the male baldness pattern when I took it for such a short time?
I told the doctor when I went (this was after stopping T) and he said that it could be hormonal imbalance and said give it more time.

I really don't know what to make of this.

I think the above just points out the dangers of the decision to take T if a person doesn't plan to take it long term/not sure if they will take it long term.  I know it was a long decision for me.

I'm not sure what to tell you, but I can understand why it would be distressing.  Two months seem early for any hair falling out except for the creation of the male hairline.  But, then again, I don't know when that is supposed to start to happen, but it really does seem like it happened early for you.  Is that where your hair is falling out?  In the front area only? 

I don't know if the medication provider you are working with is an Endocrinologist, but they would know more than the regular family physician about hormones.

Good luck to you and I hope it stops soon.
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



  •  

makipu

Thank you Brett, it actually took me about 10 years to consciously decide to take it but I knew from the beginning that I wasn't going to take it all my life but just do it so it would lower my voice.  The hair seems to be falling from all around but it is more towards the front actually.   I've never been to a endocrinologist before but if I go to one do I have to tell them that I took T because I wouldn't be comfortable saying anything that exposes my condition.
I am male because I say so and nothing more.
I don't have to look or act like one therefore.
  •  

Bimmer Guy

Quote from: makipu on September 22, 2014, 03:50:13 PM
Thank you Brett, it actually took me about 10 years to consciously decide to take it but I knew from the beginning that I wasn't going to take it all my life but just do it so it would lower my voice.  The hair seems to be falling from all around but it is more towards the front actually.   I've never been to a endocrinologist before but if I go to one do I have to tell them that I took T because I wouldn't be comfortable saying anything that exposes my condition.

I was suggesting the endocrinologist for the specific purpose of finding out if the T could have created this ongoing hair loss problem for you, even though you are not taking T anymore.  Not telling the Endo about the T would defeat the purpose of the visit.  You would go to them so that a person who specializes in hormones could give you an opinion.  It sounds like you don't feel that confident in the provider (family doc?) who prescribed you the T, so that is why I was making the suggestion.
Top Surgery: 10/10/13 (Garramone)
Testosterone: 9/9/14
Hysto: 10/1/15
Stage 1 Meta: 3/2/16 (including UL, Vaginectomy, Scrotoplasty), (Crane, CA)
Stage 2 Meta: 11/11/16 Testicular implants, phallus and scrotum repositioning, v-nectomy revision.  Additional: Lipo on sides of chest. (Crane, TX)
Fistula Repair 12/21/17 (UPenn Hospital,unsuccessful)
Fistula Repair 6/7/18 (Nikolavsky, successful)
Revision: 1/11/19 Replacement of eroded testicle,  mons resection, cosmetic work on scrotum (Crane, TX)



  •  

makipu

Yes, you're right. I made an appointment with an endo and I guess I will see how it goes. It's just that I don't want someone to ask me WHY I took T and be ignorantly judgmental about it.

By the way, should I then NOT mention the other problems that may cause it such as hypothyroidism, being on birth control pills that are also related to hormones?
I am male because I say so and nothing more.
I don't have to look or act like one therefore.
  •  

aleon515

No, I didn't have any of those effects. I have hoarseness but not at all from "day 1". It's possible you aren't tolerating the "carrier" which I think in gels is alcohol. I am on compounded cream. Never had an issue with it. But I have heard enough stories of "T flu" leading me to believe there is such a thing.

BTW, I am not entirely against "taking T" as a diagnostic tool so to speak, under the care of a doctor. I think there is room for very low dose in that way. I don't mean with someone who has never examined himself, a very young person, seems not to be wise. But otherwise I am not at all "judgemental" about it.

Could you maybe be actually sick?? Low grade something or other?

BTW, 1/4 dose may NOT be so low dose. After all it is low for an average but might not be really low for you. We're all different. I say this because I am on half dose and this is not low for me.


--Jay
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