Dont read if you dont want to hear details.... but who can stop now, right?
Sorry, its pretty frank...Ive searched the web for answers and come up empty


So I want to talk a moment about my, ummm.... private parts, yeah... thats it.

I have what I would refer to as both, sort of...

If and when I get an erection, I have 6 inches and fairly large girth, I also have fairly large testicles (which I despise)
but erections are rare lately, normally my penis is shrunken, mostly hidden and I have a "cavity".... Im leary to call it anything else yet. I can insert a fairly large "interphalactic device" maybe 4 inches worth of depth. With fingers I can also feel "squeezing" within this cavity. My testicles also "draw up" inside me and I could nearly pass as female genitals. Its been a couple months since I have masturbated as a "male".... Im trying to train myself to not have erections and I think its working.

I should also mention that I have been drinking soy milk for a little more than a month, my penis is smaller and less obtrusive since starting it. And orgasmic playtime is way different, what used to take me a couple minutes now has turned into 25-30 minutes and I am able to have more than one orgasm during this time

Now, I must say that I am overweight, but I have lost 40-50 pounds recently and it has not lessened the "vag" in any way. I dont think its just cuz Im fat, and a few years ago I lost a 100 and it was still the same then.

I may also have had some form of intersex surgery as a child, but I have not gotten records to confirm or deny this.

I know shortly after birth I had some sort of "problem" with my penis/circumcision... which require a few doctor visits to fix it. Of course this was in 1968 and my parents know nothing. When I was 12 I had to go to cleveland clinic for a major operation, they claim it was a renal bypass... did I have "girl parts" removed?  Again, parents act oblivious to anything being wrong, but they also seem weird when discussing it.

Looking at pics of me as a child, I look very girly. And I have always had a "hidden penis" which made locker rooms a bad situation

well if you made it this far, thanks for your time... Im just trying to see if anyone else is like me out there.

Have you looked into whether you are intersex or if you have XXY chromosomes?

No, I havent.... but I have been thinking about it. Im very anti doctor/medical... so that opens a whole new can of worms for me

I wish i could just send a sample off to some secret lab and get the results and not have them say "BTW, we found you have this problem as well.... "

Unfortunately the world is rarely so easy. Also, in order to test for something they usually need to be looking specifically for it, in some jurisdictions it can be illegal to test for certain things when they have not been requested by the patient.

I can understand your reluctance to go anywhere near the medical profession as I'm on the intersex spectrum myself.  I was messed about with by surgeons to 'fix' me when I was 12 which is something I still feel annoyed about now at age 61.  My daughter is intersex too and my ex and I refused to let any doctors mess about with her when she was a child which my daughter is very pleased about now as an adult.

Welcome to the forum by the way, you are certainly in the right place and you'll find that we are all a friendly bunch who try their best to offer support and encouragement where needed.

Thats coincidental that you also were 12....

when doctors have seen my scar and heard I had a renal bypass at 12, they all have had this puzzled look on their faces

I have a huge scar across my abdomen that follows my rib cage, 72 staples worth

Thanks for the replies....

Is there some reason why you can't order a copy of your medical records?

No, other than stalling on my part, deciding what I really want to know

you're not trying to get any form of legal proof here. i would think you could mail in a swab. i just have never thought about looking into that.

Do you have normal testicles? Also, you mention having a hidden penis and being overweight. If you search on YouTube for a UK show called "Embarrassing Bodies", they show the process of an apronectomy, this is an operation performed to reduce the volume and "hang" of the prepubic fat pad, as this is the tissure that hangs over the penis, giving it the appearance of being hidden.

Ok male pelvic anatomy 101. For all male assigned at birth persons the testes start inside the body up near the kidneys – as you grow in the womb they descend guided by a cord called the Gubernaculum which pulls them down into the scrotal sac through a tube called the inguinal canal.

In most people the inguinal canal then obliterates leaving only a small opening through which the spermatic cord, testicular artery and vein pass. In some people however one two things happens, either one or both testicles fail to descend (cryptorchidism) or the canal does not fully obliterate – which leaves a much increased risk of inguinal hernia or hydrocele development.

Neither of these things is an intersex condition as such although both do commonly require surgical correction. However they can also occur as secondary complications to Androgen insensitivity either partial or complete.

In most cases Androgen insensitivity would usually also cause a hypospadias

The only reliable way to tell whether this was the reason for the problem is to have a genetic test which is quite impressively expensive... I know this because I paid for one to be done on me!!! In my case by the time the technology was available to answer the question I was already nearly two decades post SRS.

So bottom line if you have had some surgery in the past it is still quite possible, actually even likely, that you are in fact not intersex as the majority of people who have those symptoms aren't. The gene test however would prove it one way or the other, although the medic in me would ask whether it would make a difference to know the answer? If not then its probably better to save the thousand or more dollars that it costs towards something more useful.

Quote from: Rejennyrated on September 09, 2015, 09:02:11 AM
Ok male pelvic anatomy 101. For all male assigned at birth persons the testes start inside the body up near the kidneys.....

That was a great post.

Quote from: Rejennyrated on September 09, 2015, 09:02:11 AM
Ok male pelvic anatomy 101. For all male assigned at birth persons the testes start inside the body up near the kidneys – as you grow in the womb they descend guided by a cord called the Gubernaculum which pulls them down into the scrotal sac through a tube called the inguinal canal.

In most people the inguinal canal then obliterates leaving only a small opening through which the spermatic cord, testicular artery and vein pass. In some people however one two things happens, either one or both testicles fail to descend (cryptorchidism) or the canal does not fully obliterate – which leaves a much increased risk of inguinal hernia or hydrocele development.

Neither of these things is an intersex condition as such although both do commonly require surgical correction. However they can also occur as secondary complications to Androgen insensitivity either partial or complete.

In most cases Androgen insensitivity would usually also cause a hypospadias

The only reliable way to tell whether this was the reason for the problem is to have a genetic test which is quite impressively expensive... I know this because I paid for one to be done on me!!! In my case by the time the technology was available to answer the question I was already nearly two decades post SRS.

So bottom line if you have had some surgery in the past it is still quite possible, actually even likely, that you are in fact not intersex as the majority of people who have those symptoms aren't. The gene test however would prove it one way or the other, although the medic in me would ask whether it would make a difference to know the answer? If not then its probably better to save the thousand or more dollars that it costs towards something more useful.

which gene tests proves one way or another

A karyotype test would be a start.

yeah karyotype test was about 300 bucks in Australia, that's something a regular gp should be able to organise. Not to expensive.

Yeap. Nothing much to it. The thing is though, with normal anatomy, there's no reason to suspect an intersex condition soooooooo, why bother?

Quote from: Serenation on September 09, 2015, 09:42:54 AM
which gene tests proves one way or another

The gene itself is part of a group labelled NR3C4 which controls expression of nucelar receptors in the cell. Normally Locus:Xq11-Xq12 will show point deletions, substitutions or sequence replications... These are all well known and there is a chip test available for this specific defect. (AIS)

Quote from: Serenation on September 09, 2015, 09:51:45 AM
yeah karyotype test was about 300 bucks in Australia, that's something a regular gp should be able to organise. Not to expensive.

Unfortunately a Karyotype is a rather more primitive way of examining chromosomes using visual inspection of the visible banding on whole chomosomes visible in cells with arrested metaphase and will NOT repeat NOT give the level of information that a proper genetic sequencing or modern PCR test can yield.

In the case of AIS it sadly doesent give a definite answer unfortunately.

By the way PCR - stands for Polymerase Chain reaction and is DNA amplification technicque often used with ELISA and or electrophoresis chromatography in modern genetic sequencing. No disrespect to karyotyping but its a bit like comparing a 2015 formula one car with a 1950's runabout...

Quote from: Rejennyrated on September 09, 2015, 10:22:07 AM
The gene itself is part of a group labelled NR3C4 which controls expression of nucelar receptors in the cell. Normally Locus:Xq11-Xq12 will show point deletions, substitutions or sequence replications... These are all well known and there is a chip test available for this specific defect. (AIS)

Unfortunately a Karyotype is a rather more primitive way of examining chromosomes using visual inspection of the visible banding on whole chomosomes visible in cells with arrested metaphase and will NOT repeat NOT give the level of information that a proper genetic sequencing or modern PCR test can yield.

In the case of AIS it sadly doesent give a definite answer unfortunately.

By the way PCR - stands for Polymerase Chain reaction and is DNA amplification technicque often used with ELISA and or electrophoresis chromatography in modern genetic sequencing. No disrespect to karyotyping but its a bit like comparing a 2015 formula one car with a 1950's runabout...

interesting, I guess these are not available in some countries. 10 years of pressure on endocronoligist and genetics specialists got me a  karyotyping and a mri scan. They said that's as deep as it goes in Australia. (I'm going to add for intersex and transsexuals) I just googled and they can do it, just they pick and choose who.

Quote from: Serenation on September 09, 2015, 09:43:34 PM
interesting, I guess these are not available in some countries. 10 years of pressure on endocronoligist and genetics specialists got me a  karyotyping and a mri scan. They said that's as deep as it goes in Australia. (I'm going to add for intersex and transsexuals) I just googled and they can do it, just they pick and choose who.

Yep - hence my original comment about it being "impressively expensive." As a result I can say for sure that I have the genetic features of AIS even though I was only mildly symptomatic, but in reality I only really did it for my own curiousity as by that time it was purely academic to my life choices.