Susan's Place Logo

News:

According to Google Analytics 25,259,719 users made visits accounting for 140,758,117 Pageviews since December 2006

Main Menu

Re: Here I go again :-( 2.0

Started by Shy, January 17, 2018, 02:38:45 PM

Previous topic - Next topic

0 Members and 2 Guests are viewing this topic.

Laurie

Jayne,

  I know it sounded bad. They aren't pleasant thoughts to be sure. I have those feelings and thoughts almost constantly. Cindy knows what I mean and so do some of the others here I am sure.
  I am actually doing pretty good. As I said I think I see some hope but it cannot erase this specter I live with. If you do think of something you would like to do sometime it crosses your mind. I live in increments of 90 days from appointment to appointment. You can't think in terms of next year or even 6 months. 90 days is the limit will it be this time? How many months will I have? Or will I get another 90 days? In one sense it would be a relief to know. Order the medications,  say my goodbyes, take the medications and go to sleep. All problems solved.
April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

Jayne01

Well o will thing beyond the 90 day's for you. You will hang around until I get to meet you, and beyond. I am getting a real life hug from you some day and if you wish, I can deliver one of my slaps to you personally.

I am glad you are starting to see some hope.

Jayne
  •  

p

Laurie, I was glad to read the thrilling conclusion of the Chronicles! And OF COURSE your middle name will be Jeannette, I still remember those good old days, don't listen to any of these wacky gals! I know that it is still a struggle to find self acceptance and motivation. I am not here to rush you. I just want you to know that I love you and will support you however I can <3
Patti

Something is off - 2016-17
Out to husband - 2/14/17
Full-time - 3/9/17
HRT - 6/14/17
  •  

Sephirah

I know what it's like to have a sword of Damocles hanging over your head. It starts to be all you can think about. Your life revolves around it and you start to wonder what the point is in anything when it can all be taken away. Or worse, it falls before you get the chance to do what you want to do.

But if I can share one thing I learned through trying to deal with it, it's this: Our time on this world isn't measured by the amount of days in a life. It's measured by the amount of life in each day. All of us could be dead at the drop of a hat. We could get hit by a bus, or contract something unpleasant, or any number of different things. To live in fear of our own mortality, and become resigned to the inevitability of it, is to give up everything that you're capable of. Everything that you still have inside you. The second you decide to do that is the second you stop living, even before anyone has said a word. People are worth more than that. Capable of more than that. Deserving of more than that.

Cindy, Laurie, and everyone else who's dealing with this... I know your state of mind. I know that it feels like you're just treading water, waiting for someone to tell you that your life will soon be over. My advice to both of you is to prepare for the worst... make sure your affairs are in order... and then go on to live like you don't give a damn. Life is what you make it, not what it makes you. Do the things you want to do. Now more than ever. Let it motivate you, not resign you to an existence in a waiting room. Be who you want to be and do what you want to do.

This is all easy to say. I know it is. I know the emotional rollercoaster can be often unbearable. But I always looked at it this way: What do you have to lose? If you're already expecting the worst then what do you have to lose by just doing as much as you can? Living life the way you want to? Forget waiting around for the end. When the end comes, make it a fitting epilogue to an amazing story. :)
Natura nihil frustra facit.

"You yourself, as much as anybody in the entire universe, deserve your love and affection." ~ Buddha.

If you're dealing with self esteem issues, maybe click here. There may be something you find useful. :)
Above all... remember: you are beautiful, you are valuable, and you have a shining spark of magnificence within you. Don't let anyone take that from you. Embrace who you are. <3
  •  

Laurie

Morning Folks,

  Thank you ladies for your thoughts and support. Each of you help me get through my not so good days and bring smiles and joys on the good ones.  Sephirah, my "affairs" have been in order for 3 1/2 years. Should something happen to me my daughter and my sister should get what I have. My daughter may have turned her back on me but I have not turned mine on her. In spite of our differences she is still Daddy's little girl and always will be.
Today is the day again.  I've had my coffee and soon will get ready to have my fun day at the VA. It will be a busy day starting about 9am with lab draws (if there are more to be done) followed by having the IV being put in for the contrast injection while the CT machine does it's imaging... Breathe in, hold your breath,  breathe... rinse and repeat several times. Then check in for my appointment with my Oncologist visit to get the verdict. Good or bad what will it be this time? Life , for another three months or a death sentence again? Who knows? I'll pass on the verdict shortly after I find out if the hospital wifi is working well enough. After a bite to eat it a short walk to my pill pusher's (Psychiatric Nurse Practitioner) waiting area and check in and wait. This appointment should not take long. It is just a checkin with her to discuss how I'm doing with the antidepressant and melatonin + benadryl I'm taking. Then it's time to see my therapist to update him on all the fun I've had since last visit about 3 weeks ago. An hour later I'm done and can join the traffic heading south from Portland and home for supper. Just another fun day at the VA with a lot of hurry up and wait.

  It's not that bad I suppose I'll be getting a lot out of the way and scheduling done for the next time.

  Hugs to all of you,
   Laurie
April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

Laurie

Quote from: Laurie on February 26, 2018, 09:35:02 AM
Morning Folks,

  Thank you ladies for your thoughts and support. Each of you help me get through my not so good days and bring smiles and joys on the good ones.  Sephirah, my "affairs" have been in order for 3 1/2 years. Should something happen to me my daughter and my sister should get what I have. My daughter may have turned her back on me but I have not turned mine on her. In spite of our differences she is still Daddy's little girl and always will be.
Today is the day again.  I've had my coffee and soon will get ready to have my fun day at the VA. It will be a busy day starting about 9am with lab draws (if there are more to be done) followed by having the IV being put in for the contrast injection while the CT machine does it's imaging... Breathe in, hold your breath,  breathe... rinse and repeat several times. Then check in for my appointment with my Oncologist visit to get the verdict. Good or bad what will it be this time? Life , for another three months or a death sentence again? Who knows? I'll pass on the verdict shortly after I find out if the hospital wifi is working well enough. After a bite to eat it a short walk to my pill pusher's (Psychiatric Nurse Practitioner) waiting area and check in and wait. This appointment should not take long. It is just a checkin with her to discuss how I'm doing with the antidepressant and melatonin + benadryl I'm taking. Then it's time to see my therapist to update him on all the fun I've had since last visit about 3 weeks ago. An hour later I'm done and can join the traffic heading south from Portland and home for supper. Just another fun day at the VA with a lot of hurry up and wait.

  It's not that bad I suppose I'll be getting a lot out of the way and scheduling done for the next time.

  Hugs to all of you,
   Laurie
Okay, I have gotten another reprieve! No sign of the dreaded grim reaper.  See you again in three months.  Had a nice chat with my oncologist during which I apologized for making her worried last time.
  Two more appointments to go.

Hugs,
  Laurie

Sent from my LGL44VL using Tapatalk

April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

Cindy

Talk about coincidence, my oncology appointment is at 11 am today to review the scans from last week.

I also need a blood draw to check a few things as well.

I'm feeling good and positive this week so to hell with gloom and bring it on.

Oh and I have picked out a particularly colourful "Kapow" badge to wear over my stoma. I do like it when people stare and then look away all embarrassed as if they have been caught out like naughty children.

I think I have an attitude problem  >:-) :laugh:

Have a lovely day and time for me to leap out of bed and face the music.
  •  

Laurie

Quote from: Cindy on February 26, 2018, 03:07:23 PM
Talk about coincidence, my oncology appointment is at 11 am today to review the scans from last week.

I also need a blood draw to check a few things as well.

I'm feeling good and positive this week so to hell with gloom and bring it on.

Oh and I have picked out a particularly colourful "Kapow" badge to wear over my stoma. I do like it when people stare and then look away all embarrassed as if they have been caught out like naughty children.

I think I have an attitude problem  >:-) [emoji23]

Have a lovely day and time for me to leap out of bed and face the music.
But I love your attitude,  hun. Go give them hell.

Hugs,
   Laurie

Sent from my LGL44VL using Tapatalk

April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

Sarah_P

Quote from: Laurie on February 26, 2018, 02:58:10 PM
Okay, I have gotten another reprieve! No sign of the dreaded grim reaper.  See you again in three months.  Had a nice chat with my oncologist during which I apologized for making her worried last time.
  Two more appointments to go.

Hugs,
  Laurie

Yay!! That's great news.
--Sarah P

There's a world out there, just waiting
If you only let go what's inside
Live every moment, give it your all, enjoy the ride
- Stan Bush, The Journey



  •  

Laurie

Quote from: Sarah_P on February 26, 2018, 05:34:59 PM
Yay!! That's great news.

Thank you Sarah. You know I'm going to need some contact information for you. Don't make me hunt you down girl. You or anyone else that want to let me know their contact info can email me at Laurie@susans.org.

Hugs,
   Laurie
April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

Cindy



I'm all good for another 6 months.

There was one comment on the CT scan 'visualised brain unremarkable', I felt that explained a lot.
  •  

Cassi

Quote from: Cindy on February 26, 2018, 09:48:51 PM

I'm all good for another 6 months.

There was one comment on the CT scan 'visualised brain unremarkable', I felt that explained a lot.

Well, that was dumb for the CT Scan to note that!
HRT since 1/04/2018
  •  

Laurie

Quote from: Cindy on February 26, 2018, 09:48:51 PM

I'm all good for another 6 months.

There was one comment on the CT scan 'visualised brain unremarkable', I felt that explained a lot.


YAY! Cindy. Hey! How come you get twice as long as I do?   I'm glad the results were good for you also.
April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

Cindy

Quote from: Laurie on February 26, 2018, 10:26:41 PM
Quote from: Cindy on February 26, 2018, 09:48:51 PM

I'm all good for another 6 months.

There was one comment on the CT scan 'visualised brain unremarkable', I felt that explained a lot.


YAY! Cindy. Hey! How come you get twice as long as I do?   I'm glad the results were good for you also.

Well that was the chemo-oncologist, the radio-oncologist still wants every 3 months and the surgeon every six weeks.

So I've recovered from chemo, recovering from radio and we are not letting you out of our sight for the surgeon.

I'm good. I am looking forward to a small glass of bubbles this evening while sitting outside on a rather lovely 35C Adelaide afternoon, in the company of a large Redback spider that I have caught, that is patiently chewing her way through the side of a container next to my camera while I wait to take her picture.

Knowing my luck she will escape, fly through the air with a murderous spider scream and bury her fangs in my neck and I'll drop dead before I can press the shutter.

  •  

Laurie

Quote from: Cindy on February 26, 2018, 11:00:27 PM

YAY! Cindy. Hey! How come you get twice as long as I do?   I'm glad the results were good for you also.


Well that was the chemo-oncologist, the radio-oncologist still wants every 3 months and the surgeon every six weeks.

So I've recovered from chemo, recovering from radio and we are not letting you out of our sight for the surgeon.

I'm good. I am looking forward to a small glass of bubbles this evening while sitting outside on a rather lovely 35C Adelaide afternoon, in the company of a large Redback spider that I have caught, that is patiently chewing her way through the side of a container next to my camera while I wait to take her picture.

Knowing my luck she will escape, fly through the air with a murderous spider scream and bury her fangs in my neck and I'll drop dead before I can press the shutter.

Interesting....
   The redback is one of the few spider species that can be seriously harmful to humans..... Predominantly neurotoxic to vertebrates, the venom gives rise to the syndrome of latrodectism in humans; this starts with pain around the bite site, which typically becomes severe and progresses up the bitten limb and persists for over 24 hours. Sweating in localised patches of skin occasionally occurs and is highly indicative of latrodectism. Generalised symptoms of nausea, vomiting, headache, and agitation may also occur and indicate severe envenomation. .... Red-back spider bites were considered not life-threatening but capable of causing severe pain and systemic symptoms that could continue for hours to days.[

  At least it shouldn't be fatal Cindy.
April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

davina61

Well done love , found my "urgent" phone call from docs was just to have a routine check up. so we are all in the clear. 
a long time coming (out) HRT 12 2017
GRS 2021 5th Nov

Jill of all trades mistress of non
Know a bit about everything but not enough to be clever
  • skype:davina61?call
  •  

p

Laurie, Cindy and Davina--so much good news, I am happy for all of you! <3  :-*
Patti

Something is off - 2016-17
Out to husband - 2/14/17
Full-time - 3/9/17
HRT - 6/14/17
  •  

Laurie

April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •  

Sarah_P

--Sarah P

There's a world out there, just waiting
If you only let go what's inside
Live every moment, give it your all, enjoy the ride
- Stan Bush, The Journey



  •  

Laurie

Not quite a Squeeee, but it has possibilities....

April 13, 2019 switched to estradiol valerate
December 20, 2018    Referral sent to OHSU Dr Dugi  for vaginoplasty consult
December 10, 2018    Second Letter VA Psychiatric Practical nurse
November 15, 2018    First letter from VA therapist
May 11, 2018 I am Laurie Jeanette Wickwire
May   3, 2018 Submitted name change forms
Aug 26, 2017 another increase in estradiol
Jun  26, 2017 Last day in male attire That's full time I guess
May 20, 2017 doubled estradiol
May 18, 2017 started electrolysis
Dec   4, 2016 Started estradiol and spironolactone



  •