Quote from: EmilyRyan on September 30, 2018, 02:47:16 AM
Okay I get what you're saying now like I didn't think I could make it through college but here I am with my associates sitting (albeit proudly) on my dresser. It's not the bachelors I tried and failed twice to get but I earned it.
You're right I can't rely on others on others to solve all my problems but you are right about the getting help and that's where I keep running into roadblocks like where I working right now my managers know how capable I am at running the register and they know how well I handle the pressures of customer service (something that even surprises me) but a sad reality I'm facing is despite all that they refuse to let me advance and grow. I'd like to work over at the pharmacy and when do that long enough I can earn my license to be a tech but nope instead of seeing what I've all done within a year all they see is someone that takes longer to learn, which due to my disability it's true I'm a slow learner, and instead they rather go through the trouble and resources of bringing extra people in. What do I do about situations like that??
Emily, what can you do in private to practice these skills? What can you set up as an idea to tackle particular issues you are weak on and try and create workarounds for? I know that I and others are very willing to help if you give us ideas of how. However, as Dena stated, you have to fight for every inch. Trying and pushing to the max is something we can help and encourage you in. Giving in is something I cannot follow.
I would not normally reveal any of this.
To put that in perspective. 18 months ago after radio and chemo therapy I was rendered severely dyslexic, I couldn't follow a sentence. I taught myself to read and write again. So I spent 45 minutes every day reading a book and writing every word down and asking a friend to check what I had written.
I had no vocal cords after my larynx was removed and so I had to learn to speak with a prothesis. I read the book that I struggled to read, out load into my phone and played it back until the meaning was intelligible.
I couldn't move my shoulders, I couldn't reach my head to have a scratch, my arms would not raise above waist height, I couldn't balance standing still on two legs, I was bent over in pain.
So I made myself do simple gym exercises every morning. I practiced standing still counting to 3 then 5 then 7. I got a friend to tie a rope to a hook in the ceiling so that I could force my arms into a stretch position above my head in order to break the scar tissue restricting my movement.
So did it work?
Well, I got strong enough to get to a gym and get others to help me exercise. I can now walk for an hour or so at a time, I can wash my hair and shower and clean myself, I can look after my home and wash and clean my clothes, I can cook my meals and I can go out and buy the ingredients from the shops.
I can balance enough now to take photographs - a hobby I took up to push myself into areas that I could not accomplish before. I need ambition to tackle things that I am frightened of so I decided to write a novel. Dyslexic, pain in the hands and have problems concentrating, sounds a good challenge.
I have managed to start reading enough that I am back to enjoying it.
Speech wise, I am reluctant to use a phone as I am not very clear - but I gave a speech at a conference - I made that a bucket list. I've learned how to communicate with my hands and by facial expression and clicking tongue noises. (I still cannot watch TV or moving picture formats.)
Emily, I'm posting this reluctantly. No one here knows what I went through. I'm a fiercely independent person. I've managed to overcome my issues by smashing myself at them until I found a way to break through. I know it isn't easy but I have no alternatives. I have no help, and no one cares about me - except me.
I am nothing special. I am just me but I will not give in and I will not allow myself to be put in a box until I decide.
I'm old, you are young - so as Nike says 'just do it'.
Oh and when it hurts too much - scream.
I can't.