Quote from: Michelle_K on Yesterday at 03:16:05 PMMy urologist has stated, after my mentioning Klinefelter, that I can be referred to another urologist that knows more about Klinefelter. The other urologist will still be in the CentraCare system, but first we take care of the bladder stone.
I have heard of men going to a urologist for infertility, and The urologist tells by just looking that they have Klinefelter syndrome. It is the first time they have been diagnosed with Klinefelter syndrome.
And the endocrinologist that I got sent to for estrogen, when I mentioned Klinefelter, told me it would have been caught when I was born, and would be in my records. Since it is not in my records, then it is not possible for me to have Klinefelter syndrome. I think she also sent me to a therapist to get a gender dysfunction diagnosis when it was already in my records. I was not concerned about the side effects of estrogen because they are the symptoms of Klinefelter syndrome that I already suffer from. Why should I be concerned about estrogen causing erectile dysfunction when I have had that for the past 30 years? And, I have a problem with discussing male sexual problems with a female doctor.
I am hoping that the Urologist will be someone I can discuss my symptoms with and has the authority to order the keryotype test. At this point I would not be surprised if I turned out to be a XX-male.
Michelle
Hi Michelle, I read somewhere that many people with Klinefelter syndrome go undiagnosed until adolescence or even adulthood. So I'd say it's a red flag that your endocrinologist claimed it would've been caught at birth, that's just not true in many cases.
I can relate, too. I've had decreased libido, erectile issues, gynecomastia, and low muscle tone. No matter how much I worked out, I never really toned up the way others did. So before I started estrogen, I didn't see those effects as risks either, they were already part of my life as well.
All of my doctors are women, and honestly, I've found them to be really supportive when it comes to discussing my sexual health. These days, we're even starting to compliment each other's nails, body hair, breast growth, and all those "women things," lol.
It's been unexpectedly affirming.
As for the XX-male possibility, yeah, it's extremely rare, but not impossible.
And if getting a karyotype test gives you peace of mind, I say go for it.
From what I was told, you don't necessarily need a specialist; your primary care provider should be able to order it.
Just ask and see what they say.
Wishing you clarity and answers, Michelle.
I really hope you get to the bottom of this soon.
For me, I've chosen to identify as intersex based on my lived experience, no test needed, and that's totally okay with me.
~ Lilis 🫂🌷